Hi Sue and Michael

I am so sorry to read that its not working for you two and of course your family and friends.

You all have put up a great fight with this Myeloma,am sure Michael will be made comfortable and be pain free, Yes you both could have been told better that the treatment had stopped working but please dont dwell on it as you…[Read more]

Hi Polly

Am sure with a handfull of Onwards and Upwards and a sprinkle of one day at a time, and everyone crossing everything we have all it made am sure, hope all went well yesterday

Love Tom "Onwards and Upwards" xx

Hi David
Well we know you cant beat that Bombing about malarky 😀 , lets hope its for many a year 😎

Tom "Onwards and Upwards" x

Hi Kay

Am sorry to see you joined the site on behalf of your Mum.
I cant add anything to your Q as to what does or might not happen at the end stage of MM.
Am sure if you talk to the Dr who is treating your Mum he/she will tell you the best way to go re treatment for your Mum at this stage.

I just wanted to send my thoughts to you your…[Read more]

Come on in Dai its nice and warm in here 😀 pleased the wedding went well and i cant wait to see more photo's.

Tom

Not heard anything yet and I know he did the walk and done it in a great fashion 😀
If I hear anything from our dai I will let you all know.

Tom "Onwards and upwards" xxx

Hi Gill and Dave

A warm welcome to the forum, sorry you had to.

Well If I remember correctly those first weeks/months were a whirlwind, plzd ur getting down and on with it as its the only way am afraid.

I was on CTD then had SCT all in December 2009 and doing well now so its worth it 😀
Heavy feet? well Gill ate Daves feet/ankles…[Read more]

You aint done it too easy have you? well its started now its just a sit and wait. Good Luck with it all

Onwards and upwards Tom xxx

All crossed for you all its gonna be spot on, keep well you both and keep us posted 🙂

Love and Hugs Tom "Onwards and Upwards" xxxx

Hi Mary
Your more than welcome 😀 , its a hard place to be this MM malarky and all its treatments :-S but it will be worth it in the end am near 3 years post SCT and drug free 😎 it was an uphill struggle some times but the end result is Tom back to (near) Normal, but after us all going through MM we forget what normal is am afraid.

Stay…[Read more]

Hi Polly

Well I had my first BMB with no notice and to be honest it was a lot better than the weeks worry if I had to come back later Lol.
As for keeping the clots at bay I took an asprin every day (worked for me)
You will be fine Polly I worked up till my fourth cycle and had to go on sick for a year, that year took me through My SCT so its…[Read more]

Hi Lisa

Sorry to welcome you here but as you are a warm welcome.

Pain with it?? I have to say I had None except when I was having Bone marrow Biopsy :-/
Was on CTD then onto a SCT and that was 2009 now am drug free and doing well 😀
Its normal to be scared and worried but now your dad has got MM its a road he has to travel am afraid :-(…[Read more]

Hi David
I cant add to it either am afraid, Just wanted to wish you better soon.
Take Care my Friend.

Tom "Onwards and Upwards" x

Hi Vicki

I was always told "If you have it Flaunt It" so here I am near three years on and waiting for you all to be the same as i then we can "Flaunt it" to all the newbie's.

Love One "Three year on (near) Tom "Onwards and upwards" good Luck for Monday, I was out on Day 16 lets see if Colin can match it :-)…

Na then Mary and Charlie

Yep we all get it more than we care to let on to be fair 🙁 yep I went to have a bit of counceling 😀 wouls i advise people to go ?? too true i would, I didnt think I (a big hairy ass docker) but yep it was just one of the things i needed and if I felt the need i would go again 😎

Now let me see Scream hell yes…[Read more]

Hi Marian

Sorry for the Late reply.
Sory I cant help you with this as i have never done a trial nor been asked to do any research, Just wanted to welcome you to our little group and wish you well on your road to remission.

Tom "Onwards and upwards" xx

Hi Chris
Looking Great My Friend 😀 its not started yet I dont think as and when you cant drink ask for the drip to be put back (I did) its bloomin hard to drink as much as you need and i found it better to use the line for mine for a day or two 😀 Just dont forget to unplug it before you get that need to dash to the loo ha ha I did many a…[Read more]

Hi Jean and Frank
The CTD was not good for me it forced me on to the sick 🙁
Yes I had swollen feet and legs, Kids used to laugh when I showed them the ring around my sock top lol, Elaine got me new socks with no elastic in them real loos at top and that helped :-), the feet/legs will go down but my feet and fingers aint too good lol I still…[Read more]

Morning Chris
Hope those stems flow in nice and easy and are kind to you during the grafting and growing, hope ur counts shoot up fast.

Tom "Onwards and Upwards" oh my SCT seems years annd years ago 😎

Ur welcome Keith 😀
I am pleased ur Doc is pleased with you and is keeping an eye on ur Platelets 😎
As you know I am spot on thanks
You Keep getting fitter and soon all will be sorted for you.

Tom "Onwards and Upwards" x