tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Sarah
Yes you are my “posh” stalker lol. Ye I know I can do it it’s just giving me an iccle bit of a curve to be fair and we all need curves lol.
Love iccle ole me onwards and upwards xxx
Ps tell the Old Boy well done and no wrinkles or creases in the clothes lol xx
tom replied to the topic Are we new ?? in the forum General 10 years, 10 months ago
Hi Jo and welcome back to the forum, it’s still playing up with me at times not posting half postin and blooming double posting, hope your ok Jo and it’s not too cold for you
Love Tom onwards and upwards xxxx
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Judy
Welcome and sorry to hear about your pain with Velcade but am pleased they soon sorted you out. Where are you now in your treatment Judy ??.
Maureen just to let you know am still on the vodka and red wine lol.
Liz Elaine is doing great ta and ye she has hawk eyes ha ha, but am pleased about that as am sure I would miss something out he…[Read more]
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Well double post and some missing
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Carol
Bragg away young lady that’s something that should be shouted from the rooftops and you have some spare I will need to do another harvest
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Carol
Bragg away young lady that’s something that should be shouted from the rooftops and you have some spare I will need to do another harvest
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Thanks you all.
Had first one done today and that consisted of Bloods taken, Zometa infusion,10 iccle Dex tabs, oh and one amaprasil (check spelling lol) and my Subcut Velcade, The Velcade will be given every week, the bloods every three weeks, the Dex and Amaprasil to be taken once a week. jobs a good un.
Chris when my cells were collected in…[Read more]
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Cheers Kevin
Its gonna roll well this new treatment,Happy Birthday to your Stem Cells, its great to be in remission and more so when they give you 6 months before you see Dr again.
Keep well Kevin
Tom onwards and upwardsx
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Stanstan, thanks it’s gone be another doable just hope it goes into remission faster so am not too near Xmas for my SCT this time.
Hi Jean, we are also expecting more than four this time round, yes we are both strong folk and will crack it.
Love to you all.
Tom onwards and upwards xxxx
tom replied to the topic Are we new ?? in the forum General 10 years, 10 months ago
Hi Charlie and Mary
Yes am fine Thanks, yes its come back but to be fair I look and feel better than I have for some months to be fair.
Aww and dont mention No Computer 🙁 when we moved all I had was my Mobile phone to go on tinternet and it just aint the same Ha ha.
We sold our Home and are now in a rented Bungalow put the money in the bank…[Read more]
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Megan::Am pleased its not too painful all the time but am sure the niggle knowing its with you is a bugger 🙁 Thanks for your advice, I hope phil is soon sorted x
Hi Helen:: pleased you got through it and I know I will also 🙂 am pleased you are in remission and so soon its a great feeling I can tell you. x
Hi Liz and Kev::: well mine…[Read more]
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Thanks Megan, and yes they cut it down to just the once a week due to the side effects,and I hope for as few as possible Lol.
Hope Phil is sorted re the PN ??
Love Tom Onwards and Upwards x
tom replied to the topic Chest infection in the forum Treatment 10 years, 10 months ago
Hi Jane
Well you are for me young lady.
sorry about your rigs and high Temp and 17 Grandkids wow well done you lot ha ha.
Chest infections is a burden for us all with this MM and High temps we just have to keep on top of it all the time, normal folk can aloow a bit of a delay before Dr is contacted but we have to contact them and have them on…[Read more]
tom replied to the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi Carol
I am pleased I light your path, We have to stay strong and face it head on I am expecting another four years on this route and am sure we will get it 🙂
Good Luck on Monday and dont forget suck ice pops when they give you the Melphan like it is going out of fashion, and use the mouth wash as its also going out of fashion I used bottles…[Read more]
tom replied to the topic Are we new ?? in the forum General 10 years, 10 months ago
Hi Emma
Am ready for it as I knew it would come back and four years remission I think was good.
Yes the site has had a fair bit of logging on that bad I changed my password a few times thinking it was me ha ha.
Pleased your Mum is doing well and you had a great Xmas.
Love Tom onwards and upwards xxx
tom started the topic Start new Regime on Monday 20/01/2014 in the forum Treatment 10 years, 10 months ago
Hi everybody
Yes I will start new treatment on Monday as my myeloma is active again.
I will be going on Velcade and a wee bit of Dex, once a week regime for four weeks then a week of then same till I get back into remission then 2nd SCT.
We are ready for this battle as I have been drug free for years so my body will be ready for the fight.
Love…[Read more]
tom replied to the topic Are we new ?? in the forum General 10 years, 10 months ago
Hi Liz
No dont know what treatment will be as yet just guessing at the moment but am sure he will tell me what on Thursday as thats when I go and get my BMB results.
And Jean Elaine and I just might do Belfast this year 🙂
Catcha all Lata (now lets see if ths post goes lol)
Tom Onwards and Upwards xx
Ps photo of the young bride and I on our Holls xx
tom replied to the topic New treatment starts today. in the forum Treatment 10 years, 10 months ago
Hi Andy and Steph
Well you both know how i feel for you two but am sure it wont be long before you are coasting alone and waving to me as you pass Sunny Scunny on many of your jaunts away, I also know you both will stay strong and fight this reroute that has been thrown your way.
Love to you both
Tom Onwards and Upwards xx
tom replied to the topic Are we new ?? in the forum General 10 years, 10 months ago
Hi Liz and Kev
Its a bugger this ins thing but am sure their is loads on here that use it but for me I only go on normal ins to be honest but i dont go far, I am not saying others should but I only go when am fine, had a great time for the last week and I hope i can get another couple in this year.
And Harmony the moment has been seized with both…[Read more]
tom replied to the topic Are we new ?? in the forum General 10 years, 10 months ago
Hi Dave
And thanks am sure we will.
That sun on the back of my fat neck is gonna be real good.
Tom onwards and upwards x
Hi Tom
I’m good at the moment. Been on Revlamid as a maintenance drug for almost two years and feeling the best I’ve felt since this all started ten years ago. X