Debs replied to the topic HERE WE GO AGAIN !! in the forum Treatment 13 years, 5 months ago
Big hugs Bridget. It sounds like you're having a really tough time so keep that chin up and I hope that you get stronger. Are you getting your appetite back at all?
Lots of love
Debs x
Debs started the topic Penny Lane. in the forum End of Life and Grief 13 years, 5 months ago
I know that Penny hasn't posted on here for a long time, but some of you may know her from the old site, or from the Under 50 site.
Sadly, after having gone in for her allo transplant in November, Penny passed away this morning after having been in hospital nearly continuously ever since.
Penny was so positive going into hospital and was an…[Read more]
tom replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 13 years, 5 months ago
Hi Pete
Well am sorry you had to start your treatment 🙁 to start with I will say listen to your body? yes it was only a couple of days ago you could run burn the candle at both ends and lift more than the other bloke at work BUT to be honest your treatment will take it out of you (but you will get through it) rest when your body tells you…[Read more]
tom replied to the topic Pain of trapped wind in the forum Side-effects 13 years, 5 months ago
Aww Bless Tina
Am sure that its not nice? But as My young bride can tell you I just suffer wind and its not trapped ha ha, but on a serious note I dont know what you would need to take to solve it.
Good Luck on the Burp side and burp away
Love Tom windy But "Onwards and Upwards" xxx
Debs replied to the topic POSTBONED in the forum End of Life and Grief 13 years, 5 months ago
Dear Eve and Slim
I am so so sorry to hear your really sad news.
Wishing you all lots of love
Thoughts are with you
Debs xx
Debs replied to the topic Hello to All in the forum Newcomers 13 years, 5 months ago
Welcome Jacqui
Love
Debs x
tom replied to the topic Latest results 🙁 in the forum Treatment 13 years, 5 months ago
Hi Andy
Am sure its a worry but I like Dai hope its just a blip. Its a worry at times like this but am hoping it soon settles.
Keep Strong
Tom "Onwards and Upwards"
tom replied to the topic Hello to All in the forum Newcomers 13 years, 5 months ago
Hi Jacqui
A warm welcome, I know we all will understand that its all new to you and you have gone through some of the post on here? then am sure you know we have great Folk on here that have and are going through treatment and am sure that what ever treatment you get/having some of us will have had it or be just in front of you, so when your…[Read more]
tom replied to the topic itchy rash in the forum Side-effects 13 years, 5 months ago
Well what can I say my skin aint been the best I have dry skin (always have) so cant comment on it but I did have more of a body rash after sct?
Hope Henry is soon sorted.
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic I'm back. in the forum General 13 years, 5 months ago
Hi Andy
Welcome Back M8 I have had that twice Infection but nothing ever found?? strange thing this MM.
Kepp strong and away from the hight temps
Tom "Onwards and Upwards"
tom replied to the topic relapse first time in the forum General 13 years, 5 months ago
Hey Sally you aint alone now you have joined our motley crew. and am sure we all know how it feels too many Q and too many forgot to ask its? put it all down on paper as the days go on and add as you come up with something you feel you need to know.
And Trust me That "Old Sal" will soon be back with a vengeance.
Love
Tom "Onwards and…[Read more]
tom replied to the topic The Big Picture… in the forum General 13 years, 5 months ago
Well mine looks Ok ? BUT is it ? Thanks Dai.
Hope ur doing OK 🙂
Debs replied to the topic Revlimid and Velcade in the forum Treatment 13 years, 5 months ago
Hi Stephen
Just to say, I think it is TOTALLY normal to be preoccupied with your pp levels pre transplant. I definitely was, and used to phone the hospital as soon as I thought the results would be in! It is only post transplant that I have now trained myself to wait until the next appointment! The reality is that pre-transplant, you know that…[Read more]
Debs replied to the topic Revlimid and Velcade in the forum Treatment 13 years, 5 months ago
Hi Stephen,
Just a quick one as I have to dash out, but I am on the Myeloma XI trial and started on revlimid. After 4 cycles I also plateau'd and was randomised to Velcade. (My pp had dropped from 55 to 28 by this point). The velcade did a similar thing…dropped quite quickly in the first couple of cycles and then slowed down. I had to stop…[Read more]
Debs replied to the topic Glitz and Glamour Ball in the forum Off topic 13 years, 5 months ago
Thanks Helen,
That's really kind of you!!! It's really lovely that people are prepared to go out of their way to help raise some money for the charity that supports us all so much!!
I look forward to getting the package!! It's like Christmas come early!
Debs xx
tom replied to the topic Relapsed and starting VCD – keen to hear from others on same journey! in the forum Treatment 13 years, 5 months ago
Hi Vanessa and Philip
A warm welcome to the group.
Cant give advice on VCD as all I have had is CDT then SCT all done in 2009 and now am drug free.
Just wanted to say Hi 🙂
Love Tom "Onwards and Upwards" xx
tom replied to the topic POSTBONED in the forum End of Life and Grief 13 years, 5 months ago
Eve and Slim
I am so sorry for your loss, I send our condolances to Matty's Family and Friends.
Love and ((Hugs)) to you xxxx
tom replied to the topic Day one of CTD in the forum Treatment 13 years, 5 months ago
Hi Tina
Dont worry about the sleep in the afternoon I do that and am only 56 and not on any meds these days Ha ha.
Keep strong and sleep often
Love and ((Hug))
Tom "Onwards and Upwards" xx
tom replied to the topic Revlimid and Velcade in the forum Treatment 13 years, 5 months ago
Hi Stephen
A Warm welcome to this forum, please take your shoes of and sit back and feel comfy.
Sorry I cant answer your Q as I have not been on that, but am sure some one will be along and be able to give you the advice you need.
Good Luck on your road to remission.
Tom "Onwa
tom replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 13 years, 5 months ago
Hi Pete
Well you know how good we are and how good YOUR Forum is, so use it and us for advice to have a moan and or a winge as am sure that you and Ann will want to use it to the max, dont worry about saying/asking a Q you think might be silly (av done it loads and loads Lol)
Good Luck for Tues as for Full X Ray I had no bone damage? hoping…[Read more]