Mrs

  • tom replied to the topic Over-large profile images in the forum General 13 years, 5 months ago

    Hi Stuart its not a problem we can cope with it till its sorted 😀 so many thanks to you and the rest of the team on doing a great job.

    Tom

  • tom replied to the topic Another 3 months in the forum General 13 years, 5 months ago

    Way to go that young lady Well done Wendy am well chuffed for you.

    Its great to read about some one getting good results and i know its just great to be told they are good 😎
    Enjoy the next three months and put this MM out of your mind 😎

    Love from One "Onwards and Upwards" MM Person to another 😀

    Love Tom xxxx

  • tom replied to the topic relapse first time in the forum General 13 years, 5 months ago

    Hi Sally

    A Warm welcome to the site 😀

    Sorry to hear you are back into MM and need more treatment.

    I am not on any treatment I had my SCT in dec 09 but am sure people in the group are on the same as you and will pop in and give you advice.

    Keep Strong am sure you will soon kick the MM back 😎

    Love
    Tom "Onwards and Upwards"…

  • tom replied to the topic Day one of CTD in the forum Treatment 13 years, 5 months ago

    Hi Tina

    Good Luck on the CDT I started my CDT in Feb 2009 and had 5 cycles then onto my SCT in December 2009 😀

    Now My CDT well I was tired and week lost weight and taste buds were not working 🙁 think I had to go on sick on my end of my 3rd cycle (just too tired) so I will tell you listen to your body when you feel tired sleep and when…[Read more]

  • Debs replied to the topic Over-large profile images in the forum General 13 years, 5 months ago

    I use safari and see big and small pictures. My picture is ok though if that is what you mean by safari users being unaffected.

    Debs

  • Hi Ann,

    Welcome to the site and I hope that it gives you (and maybe Pete!) all the support that you need. It was definitely my lifeline when I first got diagnosed and everyone here is just so welcoming.

    Take care and good luck
    Debs x

  • Debs replied to the topic another newbie in the forum Newcomers 13 years, 5 months ago

    Hi Trish,

    I had my SCT last summer, and my paraprotein came down to 2. My bone marrow (another indicator of remission) was undetectable – well the abnormalities were!!

    They class me as having had a Very Good Partial Response. Because my pp isn't zero, they can't class it as total remission. But in reality, I am in a sort of remission as I am…[Read more]

  • Hi Ron and Christine

    Sorry to read Christine is not too well 🙁

    As For me I had CDT for 5 cycles (28 day cycles) then onto stem cell transplant, I also had Zometa for about 2 years post SCT

    What treatment is booked for Christine now?? the CDT has finished? as for the Kidneys am not sure if the can heal themselves??

    Love

    Tom…[Read more]

  • Hi Gillian

    As for me after SCT I had the same as Eva and to be fair I dont like to go too far from the loo after eating 🙁 no pain though am pleased to say.

    Good luck

    Love Tom "Onwards and Upwards" xxx

  • Your More than welcome Ann, and I think we all know how you and Pete feel at this moment, and I had gone onto some other sites before finding the good ones 🙂 so it was scary but a relief when I found these good folk 🙂 dont forget ask away 🙂

    Love
    Tom "Onwards and upwards" xx

  • Hi Ann

    A warm welcome to the forum.

    Use these threads as your sounding board and ask manything you feel you need to know nothing is too sill a question so if you feel it ask it.
    David is correct MM is an Individual Illness.

    What Hospital will Hubby be having his treatment as I find it good if you know someone else is or had treatment in…[Read more]

  • tom replied to the topic another newbie in the forum Newcomers 13 years, 5 months ago

    Hi Trish and peter

    Your welcome, I also had Zometa every four weeks for two years post SCT. struggle to find a vien near the end though Lol.

    All the best

    Tom "Onwards and Upwards" xx

  • tom replied to the topic another newbie in the forum Newcomers 13 years, 5 months ago

    Hi Trish

    Well I had same in 2009 and I am in remission (well thats what am told) and have been since before my SCT it was the CDT that put me into remission.

    Good Luck on Hubby's treatment and recovery.

    Tom "Onwards and Upwards" xx

  • tom replied to the topic Question about mm. in the forum General 13 years, 5 months ago

    Hi Stan

    Sorry to hear about your Partner is going through a rough patch.

    I think its all been said above just want to say welcome and Good Luck to you Both and soon get a reason for the pain.

    Tom "Onwards and Upwards"

  • tom replied to the topic Facebook in the forum General 13 years, 5 months ago

    and I am on Tom Lappin and photo of my young bride and I 🙂 xxxx

  • tom replied to the topic hi in the forum Newcomers 13 years, 5 months ago

    Hi charlielouise?s

    A warm Welcome to the site. and am sorry you had to join, but we have some great folk on here to help and give advice.so any thing you need to know just ask and more so if you feel you need to vent your stress or anger at times here is the best place 😀

    Good Luck on the MM road.

    Love to you Both

    Tom "Onwards and…[Read more]

  • tom replied to the topic Newcomer… in the forum Newcomers 13 years, 5 months ago

    Your welcome Jean and am sure you know we all have fingers and iccle toes crossed for you and Frank for wednesday 😎

    Love Tom "Onwards and Upwards" xxx

  • tom replied to the topic Keeping up appearances in the forum General 13 years, 5 months ago

    Your more than Welcome Helen, and am sure I dont know what you mean?? lol

    And Eve you dont need to get your hair done it looks great as it is (and saves money lol)

    Week end nearly over 🙁 I hope you all had a great time 😀

    Love
    Tom "Onwards and Upwards" xx

  • tom replied to the topic Bridget in the forum Treatment 13 years, 5 months ago

    Mavis I cant find you?? see if you can find me am down as Tom Lappin hope to contact soon 🙂 xxxx

  • tom replied to the topic Newcomer… in the forum Newcomers 13 years, 5 months ago

    Hello Jean

    I also had two spells in Hospital in early days with infection's and here i am SCT in Dec 209 and sat here healthy (if not wealthy Lol) and doing great.

    The best place for us when not on top of the MM is Hospital as we get stronger drugs that work faster than the take home ones ?

    Hope Frank is soon Better.

    Love and Hugs…[Read more]

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