tom replied to the topic Hello everyone in the forum Newcomers 13 years, 5 months ago
Hi Ali and Mum
A warm welcome to [u][b]YOUR[/b][/u] group, its your group now so please use it, if you want advise or if you want to moan, have a winge or just shout and (nearly) Cuss about this darn MM :'-(
As for me I am 56 and had my SCT in December 2009 so this is the place to ask and ask away.
Sending you and Mom strength to travel…[Read more]
tom replied to the topic Joint pain in the forum Side-effects 13 years, 5 months ago
Hi Kay
I know what you mean that "The Body Kicks" when you have done too much 🙁 as ytou know am back at work (light dutie's) 5 days 6/2 every day, am just about done by the friday so 4 days sounds good as we have had a couple of 4 day weeks and that was great 🙂 money still comming in and not as weary 🙁 but hey ho its a job and its money…[Read more]
tom replied to the topic Bridget in the forum Treatment 13 years, 5 months ago
Hi Mavis
Well I will try and find you on F/B
Words of wisdom? from me erm erm lol OK I know its scary so a few tips DONT accept any friends req that you dont know who they are 😀 NEVER EVER click on a link that they ask you to click unless its your friend and you know that its due or they have told you about and Have fun.
From One…[Read more]
tom replied to the topic Bridget in the forum Treatment 13 years, 5 months ago
Lol Dai you might get me a bad name with the drink Lol, but its nearly true Lol
No drink in hand (at the moment) Tom "Onwards and Uowards" x
tom replied to the topic Keeping up appearances in the forum General 13 years, 5 months ago
And your Hairdresser has done a great Job you did and still do look very pretty 😀
As for the dry skin I still have that every now and then 🙁 bath in oillatem or wot ever its called the have to get young bride (elaine) to put the cream on me 🙂 so its good 🙂
Love
Tom "Onwards and Upwards" xx
tom replied to the topic Hi Ho…. Hi Ho… It's off to work we go… in the forum General 13 years, 5 months ago
Hi Helen
Re the "Blue Badge" am sure all people that have A terminal Cancer get it.
Trust me am fit (ish) and got it when I was fit (ish) just took a few weeks longer as I didn't have a Mac Nurse so it was a letter to my own GP who then told them that No he aint lying he has MM and walla Blue badge got 😀
So off you go and fill in the…[Read more]
tom replied to the topic Bridget in the forum Treatment 13 years, 5 months ago
you know you can never miss the boat Lynda 😎 no soone said than done 🙂 xx
tom replied to the topic Another delay in the forum Treatment 13 years, 5 months ago
Hi Tina
Yes its a long haul I know and it seems to take ages BUT you will get it done soon so keep fit and keep strong
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic Bridget in the forum Treatment 13 years, 5 months ago
Hi You all yes I will send your Best wishes on to Bridget as you know there is "Strenth In Numbers" 😀
Hi Tom Thanks for that, I am on facebook but dont go on there very often either, will give it a go
Love
Suex
I would be grateful if you would pass on my very best wishes to Bridget. John
Hi – this is Eva. I don't go on Facebook but…[Read more]
Debs replied to the topic Blood results in the forum General 13 years, 5 months ago
Hi Jean
Like others have said, try not to worry too much. But they are totally right that Frank should just be careful who he is around over the next week or so, especially if he wants to go to Spain! He needs to be as fit as possible if he is going to insist on going. I'd also ask his consultant what he thinks. I'm off to Beijing in August but…[Read more]
tom replied to the topic Hi Ho…. Hi Ho… It's off to work we go… in the forum General 13 years, 5 months ago
Hi Helen its a mine field and it should be made simple for those of us that have a Terminal Illness 🙁 I mean how bad do you have to be to get good Money of the state, money that we have paid in :-S
Good Luck with it all 😎
Love
Tom "Onwards and Upwards" xx
tom replied to the topic Bridget in the forum Treatment 13 years, 5 months ago
Hi Sue
Yes Bridget has been fighting a chest Infection and does not feel like getting on computer as often, I leave Bridget messages on Face Book and when she feels up to it I get an answer 😎
I will send one and tell her you were asking about her. failing that come on over to face book we have a few from here on it 😀
Love Tom…[Read more]
tom replied to the topic Blood results in the forum General 13 years, 5 months ago
Hi Jean
Sorry to hear Frank's blood's are not right :-/ as for me I aint a clue to be honest just wanted to wish you and Frank well.
Love
Tom "Onwards and Upwards" xxx
Debs replied to the topic Newcomer… in the forum Newcomers 13 years, 5 months ago
Hi there Tony
Nice to hear from you. I am on the Myeloma XI trial too..I got picked for revlimid and had 4 cycles of this before I plateaud and moved onto velcade for 4 cycles. Between the 2 they brought my pp levels from 50 down to 8 and I had my SCT in July last year. 9 months on and doing fairly well bar a few more coughs and colds than…[Read more]
tom replied to the topic Another newcomer in the forum Newcomers 13 years, 6 months ago
Hi Susie
Thats Good News for you then, the four month check is good.
Keep strong and well.
Great Job 😀
Love Tom "Onwards and Upwards" xxx
tom replied to the topic coughs, colds and the like in the forum Side-effects 13 years, 6 months ago
Hi Wendy
Yep when you get MM you are never the same but you look like your Immune system is fighting it so thats good, as for me mine has been a cough and chest infections by the bucket load :-S but I fight it so am happy 😎
Hope your soon better Wenday
Love
Tom "OInwards and Upwards" xx
tom replied to the topic Pesky Paraproteins in the forum Treatment 13 years, 6 months ago
Hi Lynn and pete
Ye its a bugger when the MM tells us what to do or not to do :-/ am sure Pete's "Bring it On" tude is going to stand you both in good stead 😎 I hope the iccl beggers are soon moved and SCT is sooner than you think 😀
Love and Hugs
Tom "Onwards and Upwards" (hope it made you smile again 😎 ) xxx
tom replied to the topic Another newcomer in the forum Newcomers 13 years, 6 months ago
Hi Susie
Ye its a daunting thing this MM, but I said that now i have it I will do my best to keep it at bay untill they find [u][b]"The Cure"[/b][/u] and am sure they will 😀 take one day at a time and to be honest I found it better tocry in the shower that way no one seen my tears8-) as am sure you will shed some BUT we have some great folk…[Read more]
tom replied to the topic Choices… in the forum Treatment 13 years, 6 months ago
Hi Dai
Well you have had some good thinking out loud time my Friend as for my treatment I think it was a great shock and i told him "You dont want me to decide what treatment I want are you?" when he gave me lots of leaflets/books :-/ where i was told that he and his team would decide the best road for me so I followed his lead and have to say…[Read more]
tom replied to the topic Hi all, Old man here! in the forum Newcomers 13 years, 6 months ago
Hi Jorge
A warm welcome to you.
As for a Carer? my young bride say's she has been my carer long before I got MM Lol, as for you returning to your Native Ireland for your "Final Days" am sure it will be years before that happens 😎
Keep fit and stay strong
Tom "Onwards and Upwards"