Well Done Debs and her Gang 😀 it was a great amount 😎 and now is the time for a rest as you Family say.

Love
Tom "Onwards and Upwards" xxx

Hi Keith,
No mine was an auto too, but Gareth Morgan was the one who said he thought it was GVHD….apparently you can get it a bit with auto's too?

Debs x

Hi everyone

I just wanted to say thank you to those of you who supported this event. I met a couple of you at the sale which was really lovely! The day was heaving which was amazing.

Anyway, I wanted to let you know that we have made at least £1700 from the event – it made all the hard work well worth it…..now I am under strict…[Read more]

Hi David and Welcome

Great to have you on here…I always think it is really good when we have the 'good news' stories on the site….I did ask for a discussion category for this but it hasn't happened sadly.

Glad to hear that you are doing well post SCT and I hope that your remission is long lasting

Take care
Debs x

Hi That Brave Bridget 😀

First of all I thought I had replied to this thread a couple of days ago :-S Lord knows where its gone?? so if you find a strange reply from me on ANOTHER thread Just Tut he he 😀 .

Bridget you are so Brave 😎 when i was having to have My GCSV inj I said I could not do it:-( so this big Hairy A S S Docker took…[Read more]

Hi Sarah and Henry

Hope all is going well ? for you Both, as for the urine infection I used to get that when I was on my CDT 🙁 but it was soon cleared up and I think it was because I didn't drink enough Water we need at least 3 Ltr a day :-0 and i found that hard work to start with :-S especially on my Off days :-/

Good Luck

Love…[Read more]

Hey Ted

Am sure like me you knew that was gonna be the outcome 😀 but a well done from me, roll on old age hehe and he aint realy 14 ha ha 😎
Keep up the good work Ted

From another "Onwards and Upwards" Guy 😎

Na then David

Great to have you on Board and a warm welcome from iccle ole me 😀

You are a little in front of me I was diagnosed Jan 2009 transplant dec 09 and as they say the rest is History, well as I am hanging on to your tail coat just you keep on that running "Onwards and Upwards" and dont let me catch you cos I can Run (well used to…[Read more]

Hi Gina

I hope all goes well with getting the stuff for your Mum so she can be at home.
And great advice Eve thats worth a thought hope all runs smooth for your forthcoming wedding Gina am sure your new hubby to be knows he has a good un in you:-D

Love and Many Hugs sent to you all (((((((((((())))))))))

Tom xxxxx

Hi Jo
Sorry you have been poorly 🙁 BUT you also know how to make a young man "Blush" or is it cos my Commie is too close to the heater 🙂 and as for the Next to you am sure you wont need me nor anyone else for many a year to come 😀 al keep on keeping you all cheered up if you keep on keeping fit 🙂 love and Bigger Hugs ((((())))

Tom…[Read more]

Hi Roz

I know you are correct it will be (well it dunt help) this time of the year Dark mornings and dark nights 🙁 aint good and the thought of another bereavement isn't too good either 🙁 Min is correct the loved one has passed away but am sure is still listening to you talk 😀 cant answer back but am sure they listen 😀

The Pills am…[Read more]

Oh Eve My you know how to make a man blush. "Tom walks away blushing":-) well I would if I knew how to Ha ha.
Yes Eve it has worked for me but I used to ask Q when I was on treatment but as am in Remission I have nothing to ask:-D and My Dr and I are very happy with that 😎

As most of you know I "worry about not worrying" he he Na my Dr's…[Read more]

Sorry Sarah,
Got that totally wrong!
It is http://debsjourneywithmyeloma.wordpress.com/

Hope that works for you!
Debs x

Hi Sarah,
Yes you are normally able to get a blue badge….answer the questions thinking about his WORST days…..it has been a godsend for me, especially when I was on velcade and post SCT when every few steps makes a difference. It also saves you quite a lot on parking as it is free in a lot of places – makes up for all the petrol spent on…[Read more]

Aww bless and Hugs ((())) Roz, I dont knnow how you feel I can only offer a cyber hug and an ear to listen.

I haven't looked at Holidays for disabled people so to be fair not sure how they work.
I can send you Cyber hugs and My prayers to help you through your difficult time ((())).

Take Care Roz
Love and Hugs ((()))

Tom xxxx

Hi Dai and everyone else

Many Thanks dai for taking this difficlt job on, as you know me I have said that am Happy if the Dr is happy and am realy trying to change that Veiw:-S

As Eve says we are in 3 catagries and I am "The ones who go in to treatment with doctors know best." type of guy its worked for me but I know what you all say I…[Read more]

Hi Dai,
I don't seem to be having any side effects from the revlimid so far – maybe because it is without the dex and cyclo? It is supposedly proven to prolong life and extend remission though, so as long as it doesn't deteriorate my quality of life, I'm happy to go with it and see what happens?!
Hmmm, Pen-y-Ghent…maybe not (did the Yorkshire…[Read more]

Hi Tina,
Glad to hear you had a lovely time, even if it was hard at times. But good on you for taking up a new sport…next time try not to break a toe hey?!
See you soon
Debs x

Hi Tina
Well done on that Windsurf, and always next time for the Scuba diving, am sure Patrick was Looking over you when you were Winsurfing and gung hoing over your new found hobby, take care of the toe and welcome home.

Hugs ((()))

Tom xxx

Hi Sarah

You are more than welcome and am sure what with the treatment getting better they are thinking of downgrading it from Terminal to severe so am happy with that 😎

I see you ask about work? well Henry I was told that I had to stay off work till my (think) my 100 day check up, then I was told I should stay off work (mine is heavy…[Read more]