Hi Keith
Great news (though sorry to hear about the itching!). I'm doing well thanks, unfortunately I have to go back every month due to being on the Revlimid maintenance arm of my trial. But I think I am lucky to be offered it so I shouldn't complain!
Feel like this week has been a breakthrough as I haven't had a sleep all week (apart from the…[Read more]

HI Sarah,

Sorry to hear about Henry….rubbish news and I'm not surprised that it is hard for you at the moment. Life does get easier once you have had time for the news to sink in, and you learn coping mechanisms.

I had my SCT in July..I am 36. I have to say that I think one month post transplant is optimistic, but it really does vary…[Read more]

Hi there.

Helen, still in the Myeloma XI trial and doing well. The hair is growing…seems to be sprouting all over the place now! May even need a hair cut soon…lol!

Keith, as David says, it may be different consultant to consultant, but mine said that I didn't class as complete remission because my pp wasn't zero. Apparently you need to…[Read more]

Hi Roz

Sorry about your problem re Holiday's 🙁 is their no groups that you could join that help people with disability's to go on holiday,

Hope you can find a way as we all need a break from our own homes now and again

Love and Hugs ((())))

Tom xxxxx

Hi Sarah and Henry

Sory you had to join this Band of folk, but you have done the correct thingthe folk on here are a great help with words of comfort, advice and of course the well used "Cyber Hug"

I had 5 cycles of CTD leading up to my Transplant in Dec 2009.

The SCT was Ok, Not a walk in the park but OK, I found all the treatment Pain…[Read more]

Hi Gina

I am Pleased your Mum is in better spirits now and also pleased you have unlimited visiting to your Mum.

Good Luck for Monday and hope all moves go smooth.

Love and Hugs to you all (((()))

Tom xxx

Morning Glyn and Hubby

Gosh Glyn you were late in bed or an early riser looking at the time you posted 😀

Thanks for the Info on Hubby's route so far, he was lucky the Dr spotted it early as for the ups and down when in treatment think we all have that:-( always wondered why something they give you to make you better makes you Ill:-S but…[Read more]

Hi Jo

Sorry to see your on the BIG Anti B's 🙁 but we know they will kick its A S S) (now lets see if i got away with that one Lol)

You will soon be better and forget all about the Anti B's

We are doing great just got a iccle cold of Baby Max 🙁 just hope i dont get his conjunctivitis :-/ but looking good so far (no pun intended He…[Read more]

I know the Marsden is finally giving it subcutaneously but also that if you are on a trial it ISN'T available. Hopefully one day even that will change as there's no way I'd have velcade again unless it wAs subcut. The pn has been too uncomfortable.

Gina
So sorry to hear that. Must be so hard for you and your family.
I hope you have some time ahead to unite as a family
Debs x

Hi Glynis

A warm welcome to the site to you and your good Husband. I wish you a good journey on this MM trip to remission (and it gets their)

Love and Huhs (())))

Tom "Onwards and Upwards" xxxx

Dear Gina

Am so sorry your Mum has been found with the chest and lung tumors, much Love and Hugs sent to you all (()))

Tom xxx

Hi Kay,
Well it is actually my 100 day today…I think!! Happy Bday to me!
I too get achy bones….feels like I've just done loads of exercise and is mainly in my calves. I think it is the PN personally as it gets better with the morphine….well not better, just more bearable.
I am now on gabopentin and nortryptalin. It helps the PN loads and…[Read more]

Hi Ted am plesed you had a great time with the family, am not sure what you need to ask ur Doc but good Luck

Tom "Onwards and Upwards"

Well it is faster on this one he he.8-)

And one that needs to be kept going He he

How are you doing Ted? hope all is well with you and your Grandkids 😎

Tom "Onwards and Upwards" 😀

Ye Ted I would ask Why I should stop the Longest thread On Myeloma Uk, am sure we should keep that one going strong?
Well am off to add to it now Lol

Tom "Onwards and Upwards" and wanting to keep the longest thread going 😀

Hi Jenny

Am sure you will sail through the SCT, wont lie to you though its not a walk in the park (but pretty close) we are all different in our response to the different treatments for the MM, But as I had a SCT in Dec 2009 and am now still in remission I would go through it all again if need be:-)

Am Pleased you have good family support…[Read more]

Good thoughts on your next visit Ted 😀

I know how you feel am same everytime I give bloods and am in remission 😎

As for the thread Ted have never counted the posts but am sure it could be a winner He he

Tom "Onwards and Upwards" 😀

91 posts Ted am sure its the winner He he

Hi Min
And you enjoy yourself on your Holls have a good time with Tony, and am sure your computer thing :-S work well when you are on your Holls.

Have a good Time
Love and Hugs ((()))

Tom "Onwards and Upwards" xxx