Hi there
I have just come across your post and felt I needed to reply.
My husband has recently been diagnosed with MM and stage 3 AL Amyloidosis (mainly in the heart).
As you well know, it an awful journey. We too have a younger daughter and the future is very frightening.
You may already be aware of the forum on the NAC website? You just have to register and you can share various experiences. Here is the link.
http://www.amyloidosis.org.uk/forum/
Stay positive x
