Hi all, thanks for your messages – it has been a difficult time, especially with the funeral last week.

Sharon, don't worry unduly over this, i'm sure you've looked into everything thoroughly and are aware of the side effects everyone has mentioned – I think we were very unfortunate that while my dad was admitted, the study lead was absent for…[Read more]

The possibility of myeloma of the fluid surrounding the brain was something we only found out about a few days prior to death – the man in charge of the trial had been on holiday for a week, and when he returned my father had deteriorated significantly, only able to say odd random words, no real eye movement (but lots of arm and leg movements) -…[Read more]

My dad was diagnosed with multiple myeloma in January, and following a biopsy, was offered the chance to be on the Myeloma XI trial at one of South Yorkshire's leading hospitals. It was sold to him as if it was the only real option, and that it would add as much as 10 years onto life expectancy. As my dad wanted to be with us as long as possible…[Read more]