Hi Bridget,honestly you made me laff with you good sense of humour,and please scream,shout and curse all you want,. Sorry too that this is bad news for you,lets hope its just a small blip and that they treat you well,for now keeeeep currrrsing,take care Shirls x x x

Hi Amelie,after reading some sad post on here today,its lovely to see posititve post,. Big well done to you for making John.s dream come true,and well done John for seeing it through,take care Shirls 🙂 🙂

To Min and family,my sincere condolences to you all,take great care Min,love and best wishes Shirley x x x x

Hi Chelle sorry to hear your husband is poorly and so young too,i was 43 when i got diagnosed with MM,that was 2yrs ago now. I've not experienced what your husband is growing through,so i hope for both your sakes that this is just a small wee blip,and that he starts to feel better again,keep us all posted with his progress,and don't give up,best…[Read more]

Hi Gina sorry to hear that the medication is making your mum poorly,i'm ann MM patient but i've never taken Velcade yet so i don't know what to expect,but i do hope it won't be long before they reach a new decision on what to give her next and that she's starting to feel well again,take care for now best wishes Shirls x x

May you rest in peace Gaye,my sincere sympathys to your family and friends,. Trully inspirational lady who always gave sound advise. Gaye you'll be sorely missed,god bless, Shirley x x x x x

Hi hello Gaye,i must firstly agree with everybody who has answered your post in saying what a trully,lovely and brave lady you are,i was diagnosed 2yrs yesterday with this god forsaken disease,and i too would be tired after a long gruelling 8yrs of needles,bloods medication,hospital appointments,.Its a very hard decision to make and you are so…[Read more]

Hi Jet,i've had 2 sct,my first one was autograph,and boy was i poorly,i was in hospital for 3weeks,and man was i poorly,lost my appetite,had s&d quite bad,i slept alot,towards the end of my 3weeks i just wanted to be left alone,i cried,because i felt i couldn't take anymore,my poor husband went home quite flat,but when he turned up the next day i…[Read more]

Hi Gina,hope you ok,and hey you come on here and rant and rave as much as you want,i've got mm,so i cam sympathise with you and your mum in the pain she has,must be a very worring time for you all,like Jo & Bridget suggested change your consaultant if you are not happy with the way your mum is being treated,your entitled to,. In order for her to…[Read more]

Hi Amelie,did John have an auto or allo graph,if he had a donar then he may experience this,i had an allo using my sisters cells,and doing really well,but my hospital wanted Graft verses Host disease,and boy is it kicking in or what,i have very dry skin on my face/ears/chest and a very sore mouth,i've had very bad blood blisters on the roof/sides…[Read more]

Hi Helen,when i had my stem cells collected i had to stay in hospital over nite because they couldn't stop the bleeding when they removed the tubes. I can honestly say i didn't feel as bad as you,tired maybe but that soon wears off,if you are still feeling the way you are now on Monday then i would say contact your consualtant,maybe another reason…[Read more]

Hi Dai,i do hope your feeling alot better,like the others i thought you wewre on holiday too,still you were in the right place at the right time,glad to hear your home again,you just take thing easy. Best wishes Shirls 🙂

Hi Myra,lovely to hear from you,its been a slow 6months since the allo,and i'm doing really well,my only problem is just my mouth,but thats starting to clear up lovely now,and i thankyou for your concern. I nearly made it to the last support meeting but Dr Hamon wanted to see me, glad that this gvh is working it will delay my mm coming back…[Read more]

Totally agree Debs,just go with the flow,i used to eat alot of jelly sweets,needed sugar badly to begin with,didn't realise how much weight i put on until i saw a birthday photo of myself,(URGH),and i do have the occasional glass of wine,me and my hubby like to have a drink or 2,we don't smoke,we are now careful with our diets,so i don't feel bad…[Read more]

Hi Gill,i can surely sympathise with you,when i was on steriods i put loads of weight on,had a proper moon face too hahah. Once you stop taking them your weight will start to drop to,since i got diagnosed 2yrs ago i've lost nearly 3stone. At the moment i'm back on steriods to clear my mouth as i've graft verses host disease,so i've been pretty…[Read more]

Hi Jo,all my head injurys and bruises have cleared up lovely now thanks,still get the odd twinge in the back,but doing good,i had a check up yesterday,and they finally gave me some steroid cream for my lips,thank god,i was starting to get quite tearful with it all,but i'm picking up lovely again,hope all is well with you and enjoying this…[Read more]

Hi Scott,i'm in remission now and getting this gvh will delay the mm coming back so quickly,i know it will come back eventuallly but not so quickly,i promised my husband that he'll get a good few years of me nagging him hahahaah. I do hope what ever treatment they do for you next works. I was diagnosed 2yrs ago next month,and i've been pretty…[Read more]

Hi Angelina,i'm so pleased your going ahead with the memory book. Your daughters will love & cherish it in years to come,.. I'm from a large family with lots of brothers and sisters and loads of neices and nephews,i never had children of my own but i know in my heart that if i did i would love for them to have this book,. My husband is ex…[Read more]