[shirleyParticipant]

Rachel,please accept our condolences,such sad news of Paul,stay strong & please don't hesitate to come here and have a cry,scream and let of steam,thoughts are with you and your family,take care Shirls & Stephen x x x

[shirleyParticipant]

Hi Jane, i must confess i was terriable, i'd sleep til 2-4 in the afternoon,get up have tea,a bath fresh pyjammy's,then back to bed,i started to become quite depressed,like you i have the most fantastic and most patient husband in the world,and i wasn't being fair to him,he gave his work up to become my full time carer,and all i did was sleep. But everything has changed now as we finally got a us a puppy,well he's a year old Chihauhau in the name of Yogi,he's been the best nedicine anyone could wish for,he's so adorable. Speak to your doctor he may be able to help you. Good luck and take care x Shirls x x

[shirleyParticipant]

Hi Faith,i'm on my second growth with my hair,like you found it dry and brittle,i just use normal shampoo for dry and brittle hair,but before i use the hairdryer i put a very small drop of serum on my hand and massage it through my hair,it stops it frizzing,don;t look dry at all,just soft and shiney,hope you have found something and good look. 🙂

[shirleyParticipant]

Hi Myra,first of all you shouldn't have to put up with any pain,nobody has to. I was in a very similer situation,i had a verterbre procedure done,and i don't regret it one little bit. Whatever you decide i hope you make the right choice for you,take care Shirls x x

[shirleyParticipant]

Hi Ian, its been awhile since i've been on here and had a proper read on other peoples post, i'm so sorry you mini allo failed,you must.ve been in alot of pain with your neck,lets hope now that you've had your operation you'll be back on that road to recovery. I also like to apologise for not replying to your e:mail,i deleted it by accident,sorry,. Hope your recovery continues nicely, and that your not in to much pain. Take care Shirls 🙂

[shirleyParticipant]

Dear Siobhan,me and my husband Stephen are so very very sorry to hear about your mum, please accept our sincere condolences,although we never met and i do wish i could meet some of you fellow sufferers,she always had something inspirational to say,she was a lovely lady,may your precious memories of her always be cherished, and Bridget may you rest in peace with no more pain x x God Bless Shirley & Stephen x x x x x

[shirleyParticipant]

Liz i'm so sorry.i called your husband Micheal and not Kev,i do apologise,so very sorry,Shirls 🙂 🙂

[shirleyParticipant]

Hi Liz,very sorry to hear of Micheals relapse,glad they managed to treat him so quickly too. Lets hope its not to long before he's back on that road to recovery once the new meds kick in,both stay strong and take care Shirls x x

[shirleyParticipant]

Hi Michelle,so very sorry to hear about your mum,our sincere condolences are sent to you and your family,take care Shirley & Stephen x x x

[shirleyParticipant]

Hi Carole,i'm on face book quite often,my name is Shirley Sparnon from Plymouth,hope to see you on there soon, ttfn Shirls x

[shirleyParticipant]

Hi Tony, hello & welcome to our site,you have enrolled yourself to the best support group for myeloma,but please remember we are all at differant stages of this disease,i was diagnosed 3yrs ago with 1gg kappa,at the moment i'm in remission and doing ok,i do hope you find this website useful,gonna blow me own trumpet but we are a great group,were funny,witty,serious and sometimes very sad,but everybody on here are always here for you.I do hope all goes well for you,take care Shirls, 🙂 🙂

[shirleyParticipant]

Hi Ian,hows you today,i've just read your thread to Penny,can i ask you, are you suffering with this GVHD,if how has it affected you. I've been quite poorly with mine,had a couple of stays in hospital,i stared of with cold sore on my lips,ulcers and blisters in my mouth & tongue,then it affected my eyes,but its badly affected my breathing,i've now have 1 damage lung,so i can't over exert myself on jobs around the house,i can't walk very far,so i now have a wheel chair,i have liquid oxygen tanks around the house to help me breath easier,other than that i'm feeling great,i'm coming up to my 1st yr in remission,. I do hope your coping better with GVHD than me,and i hope i haven't scared Penny. Just remember Penny we are all differant in stages of our treatment,this is my experience that i'm going through,i wish you well,as i said before ask me anything you like,ok best wishes Shirls 🙂

[shirleyParticipant]

Hi Penny,like to say Eve is spot on,i did have an allogenic transplant just over a year,i was diagnosed in August 09,had my 1st transplant(autogenic)in January 10,and then that summer they decided for me to have a allogenic,so they tested my brothers & sisters,and we found one match.The sct is much easier because you know what to expect.Recovery has been very slow,without frightning you,while in recovery you might experience GVH,have your doctors warn you about that,i'm going through now still have been since August,its been a rough ride,and has damage my lungs,apart from my lungs i'm feeling loads better,i hope i can be of some help,don't be afraid to ask me anything ok best wishes Shirley,(from Plymouth):) 🙂

[shirleyParticipant]

Hi Chris,my congratulations to you & Lena on your forthcoming marriage,. Good to hear your doing well and that your pp's are coming down,and hopefully you get to have SCT,take care and best wishes Shirls 🙂

[shirleyParticipant]

Hi Glenn,Sounds like your doing really well,and lovely news to hear that your tumour has gone,i had the same thing,but i never had a klapaplasty,i had a vertreplasty,best thing i ever had done,with the klapaplasty i think they insert balloons,to raise it up,where as what i had done,was sightly differant,with me the cemented my T11 & T12,i had back ache for months,soon as i had this done i felt millions times better. I do hope that all goes well on your road to recovery,keep us all in touch with your progress,best wishes Shirls:):) P.S: Feel free to ask us anything,we got a lovely group going here,and everyone willing to help,take care 🙂

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