Hi Ted, not to worry its all very confusing i dont understand it myself .Take care Barbara x

Hi Ted , is your bence jones still monitored by watching papaprotein levels if so is yours very high?

Hi Bridget,sorry to hear about all the problems you have had,has it affected your mobility?Every one has been through such alot.Have you had stem cell treatment?I am told my pp is quite high and although i havent got the same amount of energy i havent had any major problems.
Hi to everyone you all sound to nice to have such an unpleasant illness…[Read more]

Hi Mavis,thankyou for your reply.im sorry to hear about your tumour i hope things are much better for you now.I didnt realise so many things could develope from mm,i am very lucky so far.I went to my g.p with fatigue and was diagnosed from there.My paraprotein is 41 but stable.I have a positive attitude and am always busy.I am trying to find out…[Read more]

Hi Ted,I am new to this sight and was diagnosed with myeloma a year and a half ago and have not yet had any treatment.It is nice to find someone else in a similar position as i too feel a bit of a fraud and understand where you are coming from.Although my specalist doesnt think treatment point will light years away i dont have much have much idea…[Read more]