barbaramoore

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Viewing 5 posts - 1 through 5 (of 5 total)
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  • #84927

    solo
    Participant

    Hi Ted, not to worry its all very confusing i dont understand it myself .Take care Barbara x

    #84922

    solo
    Participant

    Hi Ted , is your bence jones still monitored by watching papaprotein levels if so is yours very high?

    #84920

    solo
    Participant

    Hi Bridget,sorry to hear about all the problems you have had,has it affected your mobility?Every one has been through such alot.Have you had stem cell treatment?I am told my pp is quite high and although i havent got the same amount of energy i havent had any major problems.
    Hi to everyone you all sound to nice to have such an unpleasant illness take care luv Barbara x

    #84918

    solo
    Participant

    Hi Mavis,thankyou for your reply.im sorry to hear about your tumour i hope things are much better for you now.I didnt realise so many things could develope from mm,i am very lucky so far.I went to my g.p with fatigue and was diagnosed from there.My paraprotein is 41 but stable.I have a positive attitude and am always busy.I am trying to find out what i can about mm. I wish everyone all the best and hope you all stay well x

    #84912

    solo
    Participant

    Hi Ted,I am new to this sight and was diagnosed with myeloma a year and a half ago and have not yet had any treatment.It is nice to find someone else in a similar position as i too feel a bit of a fraud and understand where you are coming from.Although my specalist doesnt think treatment point will light years away i dont have much have much idea of what may be ahead.Life seems to be based around twelve weekly appointments!.Although in the main i stay bright and cheerful ,carrying on with life as normal,it is a strange position to be in.I find i cant do as much as i could and get tired easily.Knowing there are other people out there in a similer position is helpful,it was good to read your email and hope you are keeping well .x

Viewing 5 posts - 1 through 5 (of 5 total)