[strictlymyelomaParticipant]

hello debs
so far to date i can say that i have had no serious side effect from the CRD to my knowledge
i have had what i presume is the normal effects of MM, tiredness, pain moving around the torso,inistialy nights are worse with the pain causing lack of sleep and brain not working sometimes or maybe thats just senility
took a while for the pain control to be sorted after seeing various medical people but generaly sorted although still get breakthrough pain now and then sometimes it is 2 forward 1 back, good news is that there are lots of good people fellow sufferers and carers who have helped on this discussion board, even if they dont reply just look at the interest shown by the number of hits on questions
norman

[strictlymyelomaParticipant]

hello debs (1st time of talking)
also on trial CRD combination besides all the anti this and that
(need a backpack for meds)
Diagnosed this year approx just over a month ago asked if wanted to do trial
Revlmid (informed by med team normally issued after first relapse) trial is to see if issuing this drug earlier has any benificial effects
am lucky so far certainly no serious side effect apart from possible increase in indigestion (so on anti Acid)
also appear to have a lot of phlegm buildup causing a bit of pain across chest (although this may not have any link to MM)according to consultant this will not affect any later combination of drug at later stages
dont if this helps you hope so
best of luck
Norman

[strictlymyelomaParticipant]

Good Morning Bridget, i realy am slack in talking to people
Access to your pre existing X-Rays,CT and or MRI scans can be got from the hospital you had them done in, in my expeirience (ok so my spelling is not the best)it does cost money and that cost varies from each medical unit.
Contact your hospital X-Ray department, you will need you will need your hospital No and and approx dates when you had them done
if you had them all done at one hospital hopefully you will find that all pictures are on the one computer CD/DVDs
all the above should accessable nowdays
norman

[strictlymyelomaParticipant]

Thank you Bridget.
Do you mind me asking how long ago you were diagnosed and whether you have ever taken oxycodone – if so, was it better or worse than the MST you are on now?
It's nice to know I have someone who understands.

Jackie x

[strictlymyelomaParticipant]

well done stuart i managed to follow the flow very clearly
norman

[strictlymyelomaParticipant]

Hello Brocho
hope all is well with you
please see my reply to minimouse as the same thoughts and feeling go to yourself also
norman

[strictlymyelomaParticipant]

hello minimouse (do you prefer min or minimouse?)
thankyou for the quick response it is good to know that there are people out there that are willing to aid and abet with problems
i saw my specialist nurse at worthing hospital today and she immedeiately took on my concerns and problems with pain control so now under a new regeime of pain control completly different from first
now on liquid Oxycodone 3 times a day as required and a slow release tab oxycodone hydrocloride + paracetomol
now have to bide my time and see if it works
get rid of the pain and the lives of my wife and girls can get back to some normality i.e. get back to my ballroom dancing and as retired the washing up, washing, ironing, hoovering etc iv'e never been so busy
one question can i send this message to more than one person at a time or do i need to to redo in reply to Brocho?

[strictlymyelomaParticipant]

just joined the forum. one heading might be to have a heading titled 'newcomers' as im finding it hard where to start. Where questions could be asked such as how do i put a photograph on my profile.
Also a heading could be 'symptoms', as i cant find any information on the internet relating to the pains i am suffering
P.S. Just found out how to place a pic on

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