[struthParticipant]

Thanks for responding. I’m not too concerned just annoyed that this MGUS could have been diagnosed two years ago but at least it appears to be moderate. My brother has smoldering mm and has for about three years. Hopefully my MGUS stays as just that. 😊

[struthParticipant]

Little update. I’m still waiting for my appointment with my haemotologist in two weeks but I’ve just seen the results of my urine test which read: Paraprotein detected – kappa free light chain 0.01 g/l.
Interestingly I went back and saw that my urine test from February 2022 also had the same results except the Kappa flc was <0.01 g/l. This test was ordered by my GP and I’m not sure that my haemotologist got a copy at the time.
Question – does that seem to mean that I’ve had MGUS since at least February 2022.

[struthParticipant]

That’s what I was thinking but good to get someone else’s thoughts. Thanjs

[struthParticipant]

Thanks for taking the time to comment Jane. I appreciate your advice about over googling. I’m fairly comfortable with the information I have. My only confusion is about MGUSdiagnosis. My GP referred me to haemotoligist early 2022 after high protein and anaemia. After regular follow up for 12 months she was satisfied that not MGUS etc. After being referred back this month and monoclonal banding now indicated she has give. Me a brochure on myeloma (highlighting the MGUS section) and another he brouchure on joining th3 Myelome & Related Disease Registry – I’m in Australia. I guess my question here is ….. if my skeletal scan is clear and I have no other CRAB markers is the presence of monoclonal banding leaving me a diagnosis of MGUS. Thanks Ruth

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