Hi Yvonne

Thank you and yes I miss him every day. He put up a very brave fight and he responded to every drug but not well enough to stay in remission for more than a couple of months. The best he got was 17 months after his SCT but quite a lot of that time was spent recovering from it. I know exactly how you feel, I saw it with Dave and I was…[Read more]

A picture of us taken about 3 years ago. I hope I’ve put the picture on ok, can’t tell until I post it.

Hi Yvonne

Dave was my soul mate for over 30 years, I’m lost without him. I’ve been reading this site since he was diagnosed in 2009, always hoping to find a cure. We had never heard of Myeloma either, it came as a great shock. Dave’s GP should have arranged an X-Ray with the back pain going on for 3 months and since this did not happen for him…[Read more]

Hi Yvonne

I do think you stand a far better chance of a better response to treatment if you are being monitored. I say this because a friend of Dave’s was diagnosed with MGUS by a routine blood test and
when the Myeloma became active he lived for over 10 years with the treatment. I just look at it that
we had 9 years worry free but maybe if…[Read more]

I think my husband had MGUS for at least 9 years. I noticed one day that he had lost height, he was at the time on painkillers for Spondylitis, also he used to get one cold after another. He never had blood tests done so I will never know. He started having trouble with his bladder 9 years later and was intermittently getting chest pains when…[Read more]

So sorry Rosie I also lost my wonderful husband to this terrible disease on the 15 September after a 5 year battle and I can’t believe he’s gone either, miss him so much x