Hi Mandy

Many hanks for your  reply, helped a lot, just bothered if they put me on Thalidomide, was terrible on that when I as on the CDT, unless they can put me on a smaller dosage.  Hope everything goes well for you. Will let you know how I go on, thank you gin for your help.

Sue

Hi Linda

I was diagnosed in August 2012 I was put on CDT for 6 cycles, I did not go through with the SCT, I had 14months remission, then PP started to rise, I am now on the same as you VCD, my 5th week of first cycle, I have an injection once per week for a month then 2 weeks off. The nurse comes to my house to give me the injection. At the…[Read more]

Hi Susie

I agree with you regarding SCT, I am 66 and decided against it was diagnosed in 2012, was so ill with the treatment CDT first time, I to believe in quality rather than quantity, I am now on my 2nd line of treatment, VCD after relapsing after 18 months, so far no side affects, keeping fingers crossed.  I say why be ill for around 4-6 m…[Read more]

I made a donation for comp, my name doesn’t appear to be on list.

Hi Megan

Thank you for your reply, just thought I hadn’t seen him on here for a while.

Sue

Hi Sharon

Sorry forgot to mention Velcade  injection once per week.

Sue

Hi Shaon

Do you mind me asking what dose of cycloph. and dex were you on, and what dose are you on now, jus interested, have  just started on cycle 1 day 3 I am on  cyclophosphamide 30mg and dex 2mg, no effects so far but early days.

Before I relapsed the first treatment was thalidomide 100mg  cyclop.500mg and dex 400mg made me feel gh…[Read more]

Hi Dorothy

Just been reading your post, on the VCD, I am starting that treatment today, I am worried sick of the side effects, are they as bad as what they say.  I went through the CDT 18 months ago and was really ill, so I am terrified once again, I decided not to have the SCT because I was so ill with the treatment, I felt I could not  have c…[Read more]

Hi Jan

Thank you for your reply.

Sue48

Hi Jean & Helen

Thank you very much for your help, I have emailed the myeloma Nurse, very kind of you to reply.

Many thanks

Sue48

Hi All

I am starting Velcade , Cyclophosphamide and dex  (VCD)on  Wednesday, does anyone on  VCD also inject with Fragmin, my Doctor says I don’t need that, but looking around most people seem to be on fragmin, also are the side effects on VCD as bad as what you read, I will be on weekly velcade , am  dreading it, any help would be very much ap…[Read more]

Hi David

just been reading your post, you say you are on velcade, are you also on cyclophosphamide and dex, VCD , by reading on this site not many people who have relapsed seem to be on all 3, I start treatment net week, but the only thing that I am concerned about is the Chclophosphamide, your reply would be appreciated.

Sue48

Hi Anthony

Are you on the VCD   Velcade/Cyclophosphamide.dex or just Velcade, I know I keep going on about side effects, but reading some comments they sound horrendous , like I said the CDT was bad enough, ill for most of the time.

Sue48

Just seen Doctor today, I have been put on Velcade/Cyclophosphamide and Dex is anyone else on cyclophosphamide,as well as velcade and dex. I thought I would just  be on Velcade and Dex, start next week, can’t say I am looking forward to it., How long is the treatment for, I was having to take that much in, by the time I got home my mind had gone b…[Read more]

Thank you Ian for your help, I will read the guide.

Sue