[suehinton2018Participant]

My husband is about to start cycle 3 or IRD. Some tingling in fingers and breathlessness but mainly the effect the combo has on his bloods is our concern. His light chains were in the thousands when he started. So he was already neutropenic. They have crashed them! Got taken off for 3 weeks to settle him. Lots of blood transfusions and we are now doing GCSF injections daily. So he feels good for a day or 2 after blood transfusion then he slowly goes down hill again and starts to look jaundiced and they give him more. Very tired sleeps at least once a day for 30 mins to hour. Can’t walk far too tired. I’m a teacher and I’m now expected to go back to work on the 8th March not sure I can. Really don’t know what to do. Not sure he or well enough to leave and scared I will bring Covid home.
Know how you all feel ladies xx sue

[suehinton2018Participant]

Hi all
We have been on our journey for 2 years now. My husband Dave was diagnosed then with stage 3 active myeloma just 6 months after we married.
It has been a roller coast ever since.
In March during lockdown he had his STC which did not work. Levels climbed straight away, on to DVD after 3 cycles levels still climbing!
We have now stated IRD, just half way through 2nd cycle.
He is not well, looks grey, breathless, no energy but won’t tell our family or friends. Only I see the true situation and it is more than I can bear. I’m trying to teach from home after having taken unpaid leave and it is really hard. I feel I can’t talk to anyone. I don’t want to burden any of our friends especially as he wants to be positive all the time! Lockdow n isn’t helping.
We have 6 adult kids 4 are his they know very little of the true scenario. They are aware he is in the treatment but don’t know how far along our journey we could be. My 2 kids know a little more but again I don’t want to burden them with the truth to support me when they can’t be open with Dave about it! Any suggestions??? Any hope??

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