Hi Tim

just been reading your post, were you on the dex and thalomide, if so did you have any side affects, I am on the cdt trial with dex and thal. most of the time I feel light headed and my legs are very weak and wobbly, feel like I have no control at all, would be interested to know if you had any of those symptoms.

Take care

susan

Hi Christine
Just read your posting, what were Chris's symptoms regarding legs, I am on thalomide and my legs are very weak and wobbly find it difficult to walk, I have no spinal cord comprssion and no pain just this horrible feeling in my legs.

Hope all goes well
take care

susan

Hi Tim
just been reading you reply, so gld you are doing so well, I am on my 3rd cycle and my blood hs come right down, the next step for me is the SCT, but am terrified of this and thinking of not going ahead, as I feel so well I have no pain at all, just very weak and wobbly legs, which I think could be the thalomide, what was the SCT like was…[Read more]

Hi Wendy,
Just been lookin at the forum, May I ask you what side affects you had with the thalmomide, I am on this nd my legs are very weak and wobbly, taking me all my time to walk apart from that I fell just fine, no pain at all. are you going to have the SCT, I am thinking of opting out of the SCT, parlty because I feel so well. Hope…[Read more]

Hi Mavis
What was the problem with your legs pls, well before I started treatment my legs were very weak and wobbly, just feel like I am going to fall over, not much control at all, but for this I would be fine, no pain at all.

Susan

Hi Susan
I am having problems with my legs, very weak and wobblyI feel like I am going to fall over some days it take me all my time to walk about, but for this I feel fine, anyone else experiencing this pls.

Hope all goes well for you

susan

Hi Charlie
I like you just been diagnosed, was very confused I am on the trial CDT my 3rd cycle, I am now waiting to see about the stem cell transplant, but cant make my mind up will have to speak to the experts. Hope everything goes alright for you.

susan

Hi Mavis

thank you very for your reply, it has helped me, I am 64, don't think I will go through with the SCT, unless it is absoultly necessary, I am now on my 3rd cycle of teatment and feel fine. did the thalomode affect your legs my legs are very wobbly, I was on 2 tablets for 3 weeks, then they increased to 4, I couldn't cope with the 4…[Read more]

Hi Peter
Thank you for taking the time to reply, it just scares me thinking about the sct reding all the side affects, but I supose in the end it is worth it, it is just such a long recovry, and when you not use to be ill its a blow, will keep in contact with, and thank you once more

Susan

[i]Hi Tom
Thank you for your reply, I will be going into Mancheter Royal if I do decide to have the SCT but reding about it scares me to death with all the side affects there will be. at the moment I am on my 3rd cycle of tratment, my doctor says my blood has come down a lot and would be arranging for me to see the doctor at MRI,were you on…[Read more]