[suewiParticipant]

Hi Michele,
Thank you for your reply, I coloured my hair with the Garnier Olia, covered all the grey, I no longer feel and look like a frump, next time I colour I will use a lighter shade, did turn out a little darker than my wig, but still looks better than the grey. Just one question did you have the SCT?, I decided not to go ahead, I was so ill with the treatment, didn't think I would get through the SCT, then I keep thinking did I do the right thing, I feel great at the moment having finished my treatment in April, no pain at all my para protein gone up a little to 6.4, but was told unless it went up to 11 they would do nothing, I would have thought 11 pretty low, do you or anyone else know what they class as high. Any help would be appreciated.

take care everyone and good luck

Susan
x

[suewiParticipant]

Good morning Mavis
Thank you for your reply, coloured my hair last night, covered all the grey, my thoughts to what the hell, had it not been a success I could always put my wig on again.
Take care
Susan
x

[suewiParticipant]

Hi Badger
Thank you for your reply, will give the olia a try, can always cover up with my wig if all goes pear shaped.
just seen were your treatment is almost over, good luck and hope all goes well.
susan
x

[suewiParticipant]

Hi Scot
I thought I would give them a try started last week, no side effects, mine are capules it said take 3 per day with meals, I am taking 2 per day they curcuminX4000tm.
Good Luck
Susan

[suewiParticipant]

Sorry Wendy hit the post button before I signed off
Take Care
Regards
Susan

[suewiParticipant]

Thank you Wendy for your reply, I am 65 I finished my treatment in April and at the moment taking nothing, which worries me slightly, I have thought and thought about the SCT (am I doing the right thing refusing it), but honestly I was so ill for 5 months with CDT, I was more or less housebound, and honesly thought I would never survive the SCT, can't understand why I am taking nothing at all now, my protein levels have gone up a little, but was told this could be a blip.
Hope all goes well for you

[suewiParticipant]

Hi Carol, I was diagnosed November 2012, aged 64 had 5 months of CDT, but felt so ill all the time, I decided not to go ahead with SCT it does bother me but I felt I just couldn't go through all that again, I have never ever felt so ill, I know everyone is different. Finished my treatment In April and a at the moment I feel great, so I am going to leave well alone. Hope your treatment goes well and good luck
Susan

[suewiParticipant]

Thank you Badger, sorry to hear about your kidneys, when were you diagnosed with myeloma?. Hope all goes well for you.

[suewiParticipant]

Hi Tim

just been reading your post, were you on the dex and thalomide, if so did you have any side affects, I am on the cdt trial with dex and thal. most of the time I feel light headed and my legs are very weak and wobbly, feel like I have no control at all, would be interested to know if you had any of those symptoms.

Take care

susan

[suewiParticipant]

Hi Christine
Just read your posting, what were Chris's symptoms regarding legs, I am on thalomide and my legs are very weak and wobbly find it difficult to walk, I have no spinal cord comprssion and no pain just this horrible feeling in my legs.

Hope all goes well
take care

susan

[suewiParticipant]

Hi Tim
just been reading you reply, so gld you are doing so well, I am on my 3rd cycle and my blood hs come right down, the next step for me is the SCT, but am terrified of this and thinking of not going ahead, as I feel so well I have no pain at all, just very weak and wobbly legs, which I think could be the thalomide, what was the SCT like was you ill for a long time.

Hope things continue to go well for you.

Susan

[suewiParticipant]

Hi Wendy,
Just been lookin at the forum, May I ask you what side affects you had with the thalmomide, I am on this nd my legs are very weak and wobbly, taking me all my time to walk apart from that I fell just fine, no pain at all. are you going to have the SCT, I am thinking of opting out of the SCT, parlty because I feel so well. Hope treatment goes well for you.
Take care
suan

[suewiParticipant]

Hi Mavis
What was the problem with your legs pls, well before I started treatment my legs were very weak and wobbly, just feel like I am going to fall over, not much control at all, but for this I would be fine, no pain at all.

Susan

[suewiParticipant]

Hi Susan
I am having problems with my legs, very weak and wobblyI feel like I am going to fall over some days it take me all my time to walk about, but for this I feel fine, anyone else experiencing this pls.

Hope all goes well for you

susan

[suewiParticipant]

Hi Charlie
I like you just been diagnosed, was very confused I am on the trial CDT my 3rd cycle, I am now waiting to see about the stem cell transplant, but cant make my mind up will have to speak to the experts. Hope everything goes alright for you.

susan

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