[suewiParticipant]

Hi Mavis

thank you very for your reply, it has helped me, I am 64, don't think I will go through with the SCT, unless it is absoultly necessary, I am now on my 3rd cycle of teatment and feel fine. did the thalomode affect your legs my legs are very wobbly, I was on 2 tablets for 3 weeks, then they increased to 4, I couldn't cope with the 4 could hardly walk, my legs and feet were swollen, so they took it down to 2 again
Hope you continue to improve, and good luck
regards susan

[suewiParticipant]

Hi Peter
Thank you for taking the time to reply, it just scares me thinking about the sct reding all the side affects, but I supose in the end it is worth it, it is just such a long recovry, and when you not use to be ill its a blow, will keep in contact with, and thank you once more

Susan

[suewiParticipant]

[i]Hi Tom
Thank you for your reply, I will be going into Mancheter Royal if I do decide to have the SCT but reding about it scares me to death with all the side affects there will be. at the moment I am on my 3rd cycle of tratment, my doctor says my blood has come down a lot and would be arranging for me to see the doctor at MRI,were you on thalamide if so how did you cope with it they put my dose up to 4 per night, but could not handle it made my legs very weak, they were weak before but far worse so I am on 2 per night now legs still very strange, in fact I m walking with a tick at the moment. I will speak to you again.
thank you for taking the time to reply.

Susan[/i]

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