HiDavid Thats the stuff we like to hear

God Bless
Susannah

Hi Bridget Its so good to hear from you, stay strong

Big Hugs
Suex

Dear Eve and Slim I am so sorry to read of you loss, life is such a b…ch

Love
Suex

Hi Tom Thanks for that, I am on facebook but dont go on there very often either, will give it a go

Love
Suex

Hi Debs I was really moved by your post and although I dont reply on here very often I do look in now and again. Michael my husband has never been on this sight, he to was very young when diagnosed and our girls not much older. Im the one who has gone to discussions groups etc, he has just taken his treatment,and tried to live as normal alife as…[Read more]

Dear Michelle My heart goes out to you and your family

God Bless You

Suex

Hi Tom and Eve I feel the same as you both. I dont blame the consultant, her hands are tied , but as far as the drug companies go its all down to the root of all evil, money, im sure they will say it isnt, its all to do with the safety etc of the patient, but I say if the patient is well enough to recieve the drug then it should be there choice to…[Read more]

Hi All Just wanted to let you know Michael has been turned down for his last hope of treatment, he didnt fit the criteria for Pomalidomide ,although you would think having MM is criteria enough. It makes me so angry, it feels like we have taken a huge step backwards with treatment (after having a huge fight on our hands to obtain Velcade a few…[Read more]

Hi Tina tried to send you an email but it wouldnt let me

love
Sue

Dear Bridget I wasnt going to post today until I read your post, what can I say im so sorry, I cant imagine how you are feeling, but I know one man who does. We also went to clinic today, we were told Michael does not fit the criteria for the Pomalidomide trial, so no more treatment.She did offer high does Dex but Michael could not get his head…[Read more]

Dear Tina Wish you lived nearer you are just the sort of person I could do with being around at the moment, my daughters are in bits, so its mum who is supporting them at the moment. Not all bad news had an operation last week they told me that it was early stages and hopefully have caught it before it has spread, this being the case I wont need…[Read more]

Dear Bridget Iwas so sorry when I read your post, ive been thinking of you alot recently. I suppose you are in limbo at the moment like Michael, Its not knowing whats next that gets to Michael he seems to cope with the rest.
God Bless
Suexx

Hello Tina So sorry i havent replied before but ive not been on the site for a couple of months. Not had a very good few months Michael came off the clinical trail back in November, hes not been very well since Christmas
had a couple of transfusions,his PPs have started to raise, but there is no offer of any more trials at the moment. He lost…[Read more]

Hi

Just wanted to say a big thank you for all your kind replys. We are both seeing things diffrently today, Michael looks and feels so well at the moment, so we have decided to look forward to a drug free Christmas, the first in 4 years. We wont be seeing his old consultant again until January so were going to have some family time.

Thank…[Read more]

Hi Bridget Your post is not boring at all,a bit long (only joking) Michael seems to be in the same boat as yourself, he has also had none stop treatment for the last 4 years and he has been on Thalidomide several times, so it could be over use. Hes back tomorrow to see if he can have his Bendamustine, will let you know how he goes on.

Take…[Read more]

Hi Tom Happy birthday to all of them

Suex

Hi Bridget and Tina, Michael hasnt had any treatment for a month his plateletts are still to low, we go back this Friday, we asked why they were still going down when he hasnt had any treatment apart from dex, she says it is such a powerful drug it stays in the system for weeks.

Regarding the Thalidomide Michael has felt much better since he…[Read more]

Hi Bridget Like Helen just wondered how thing were going

Love Suex