susannah.

  • Hi David Just wanted to add Michael and I used MIA 2 years ago he was on Velcade at the time we paid £30 and that included flying me home if there were any problems
    Regards
    Sue

    PS We only went as far as Southern Spain
    to see my brother

  • susannah replied to the topic Relapse official in the forum General 13 years, 10 months ago

    H Keith So sorry to hear of your relapse, just wanted to wish you all the very best for Monday. Ive always appreciated your kind words over the months,and now its my turn from Michael and myself good luck

    Regards
    Sue

  • Hi Joanna Im sorry to hear of your problems with Revlimid.My husband has had his dose reduced from 25mg to 10mg with no steriods and thats a bonus for both of us! and things do seem better. He was on Revlimid for a couple of cycles before it settled down any, apart from the rashes and tiredness he had a couple of nasty infections but fingers…[Read more]

  • Hi Jo my when my husband first went on Revlimid he to had a rather lumpy red rash on his face and neck, his consultant gave him a fungal treatment which helped. After a few weeks it did go. He started taking Revlimid agagin just a few weeks ago and the same thing has happened but not as severe.

    Regards
    Sue

  • Hi Amelie Sorry I havent replied before but I have only just managed to log on to the new site, says alot for my computor skills. My husband Michael has been on Revlimid for 13 months now, the worst side effect is the extreme tiredness. His pps were undetectable after a few months, and as he was feeling exhausted for most of the time his…[Read more]