Dear Dai

Thank you for your reply. Stephen had shingles a little while ago and was in great pain so I am sorry to hear that Bridget is suffering with it and having it effect your eyes must be horrendous. When Stephen was told by one of his chemo nurses that some people get it in their eyes he felt very lucky that it was only down one leg and…[Read more]

Dear Carol,

I too lost my dear husband of 34 yrs to Myeloma, 12 months ago. "Will this pain ever go?" I personally agree with David, the pain for somemone you have loved and lost never goes away. Whilst I am now able to talk about Patrick without immediately breaking out in tears the pain I feel seems to have found a place in me to hide…[Read more]

Hi Sue,

So good to hear from you I have been wondering how Michael was doing, I'm so sorry he has been unwell and in hospital – so very draining for you both.
You have no doubt been by Michael's side throughout all his treatments and procedures which from my own experience comforted me as I always wanted to be around if something were to go…[Read more]

Thanks and apologies

Thank you all for your good wishes and sorry for my bad language.

I very rarely use those words (never anything worse) but when angry enough well— you saw the sort of thing I burst out with and believe me I am so so angry. This illness is such a horrid insidious thing. It does bring out anger.

Thank you to the…[Read more]

Dear Gill,

So sorry to hear the Revlimid failed. Has Stephen been treated with bendamustine or Pomalidomide? Patrick survived almost another two years after the failure of Revlimid on these drugs and the consultant was amazed.

Like Mari, I feel you should do what makes you both happy if that means travelling to France then get going and…[Read more]

It sounds as though you are moving on Roz.

Good luck for the future

Gill x

I have not been on here for a while as we were away and Stephen (mm person ) was not very well.

I was concerned not to see Bridget on here.

I do hope you are feeling a little better Bridget. Do post if you can and I think I speak for all of us when I say we are thinking of you.

Much love Gill xxxx

Gosh such memories SCT, Prof. Schey, Davidson ward, limited allowable foods (a great many eggs hard boiled for 10 minutes, salad cream and a few other bits) Always a daily paper.

We are not too far from Kings (we live in Orpington Kent) but still a darned long walk from Denmark Hill station to Kings.

Good luck to everybody with SCTs coming…[Read more]

So nice to hear from you Min

I am pleased that you moved on but have missed you no end, especially missed someone to moan about regarding our 2 naughtie little Westies (I swear they get worse and Stephen spoils them more and more)

I hope your sight remains OK (I am very, very short sighted and know one day I will be told to stop driving etc…[Read more]

Hi

We have been in France for the last few weeks and Stephen (mm husband) was not very well but although we have internet access it is not always there (blinking French countryside!!)so I am only just catching up with the posts on here

Gail your post really hit home. Dexemethasone is the most evil drug in the world. It does a great deal of…[Read more]

Hi Dai,

Amatriptyline is a widely used drug and has many uses. I suffered very badly with muscle and nerve pain and was given amatriptyline many years ago as a muscle relaxant. Patrick used it in a low dose when he had trouble sleeping and it really helped.
Patrick was also on 185 mg of SR morphine a day backed up with Oramorph, I never…[Read more]

Hi Eve

Thanks for replying. I don't expect everybody to contribute I just thought I'd flag it up. Good luck with yor fundraising

Love from Gill x

Hi Teresa Thanks to you too.

In answer to your query LBC is the London Broadcasting Company (more commonly called London's Bigest Conversation) They started up in 1973 and I've been…[Read more]

Sorry to hear your bad news Mavis fingers crossed for CDT to kick the beastie into touch

Gill x

PS Stephen also has holes in his bones in fact he has what is known medically as a " pepper pot" scull the x ray of it was aweful having a very sick sense of humour he jokes that his scull would make a darned good hanging basket for geraniums

Hi Terry

My husband Stephen is the mm person here. I pull his leg constantly about feeling the cold. This South East London builder who wore T shirts all year round and moaned about everyone else wanting the heating on etc. now wears my Snuggie in the evening and cranks up the heating

I don't know why mm ers seem to feel the cold but it…[Read more]

Goodness Dai 10 months makes Stephen's 16 months a lifetime:-)

It is heartbreaking to find that things aren't holding back the mm. I love your positivity Dai a lesson we can all learn from

Stephen has learnt to never ever talk about "when I'm gone" I am not in denial but can cope with "well if I go first" any others out there as silly as…[Read more]

I don't know how I missed your post at the start a belated welcome from me
Gill x

I am so pleased that everything went well and you all had a chance to celebrate Derek's life as well as mourning his death

Kindest thoughts Gill xx