We have already had our flu jabs. We have had them every year since Stephen was diagnosed with mm (aged 53) I did not qualify for the jab automaticaly at that time as, although Stephen is my Toy Boy ;-), I was only 58 HOWEVER I qualified (found out after a bit of research)because I lived with Stephen who has a compromised immune system (I am not…[Read more]

Hi Min,

I too am going on holiday, my sister and I are going diving in the Red Sea. Although excited I have mixed emotions as I imagine similar to you I have not been away without my husband for he last 34 yrs.

Glad to feel you are feeling much better.

Tina X

Hi Sue,

Thought is was worth mentioning that when Patrick was on Bendamustine for just over nine months he suffered with a low platelet count therefore interesting to hear Michael is still on warfarin. Worth keeping an eye on.

Best Wishes
Tina X

Dear Sarah,

No need to apologise, I feel just the same. Pat was so energetic and full of life and charmed everyone he met, he was a good person – why him?

It must be so terribly difficult being in the hospital environment again, do you have someone with you?

I wish I could give you words of comfort and a big hug but I know we will get…[Read more]

Hi Everybody,

As most of you will know my hubbie Patrick lost his battle in May of this year.
As the last four years have been a battle with the B**** Myeloma it is sometimes hard to think what life was like before Patrick was diagnosed.
Yesterday I charged up one of his old mobile phones and looked through the saved video clips. The…[Read more]

Dear Julie,

Your lovely mum and I had many cyber conversations and she was sounded like a wonderful lady. I am so happy that she was with her loved ones at home when she was finally released from pain and suffering.

Take care
Tina X

You are not a burden Mari I am so sorry that Steve did not have better news but hold on in there the figures might change. When do you see the consultant again?

I am sure that we all have our cyber fingers crossed for you both.

Do keep in touch Good luck and love from Gill

Yuck Roz I hate kedgeree 🙁 But what a great word for the game

ERRONEOUS was my first try but, thinking it might be a bit too racy, I thought of ERSTWHILE.

I leave it to others to choose whether to be racy or not 🙂

I too believe that treatment is cost led to a point. Our health insurance would only fund Stephen on 3 lots of Zometa this time round as they had already paid for Velcade during the past year. Gill xxx

I am So Pleased to hear your news Dai. Long may it continue. Yes do make some plans that's what people do when the sword of Damacles (sp) has moved away for a while.

much love Gill xxx

PS you owe it to all of us on here to go and have some fun 🙂 xxx

PPS I think the Ether Elves are still about I have lost this thread (or the plot) twice now

Congratulations Nettie. What a brave lady you are. Well done xxx

Hi Terry

We must indeed be almost neighbours, as we live in the last road on the right at the bottom of Poverest Hill. We are about half way along where the semis are. (The one with the iron gates).

Stephen hasn?t attended Kings since his last SCT so it was not us you saw. Mind you I just love the idea that we have doppelgangers that are the…[Read more]

Hi David,

As we know both drugs are used in the main to treat high levels of calcium in the blood where the calcium leaches out of the bones. (hypercalcaemia)

Two thoughts on why you are having one and not the other:

Sodium Clodronate or brand names – Loron & Bonefos are thought to be less harmful to the kidneys than Zometa.

Zometa is…[Read more]

Gosh Eve. He is cute but for a moment I thought it was you 🙂

Hi Terry and Welcome

If you are attending Sidcup you cannot be very far away from us we live in Orpington. Stephen (husband with mm) was diagnosed in 2008 and has relapsed after his second SCT failed. He is under Prof Schey at Kings.

I am not very up on the success rate of all the different drugs, but I don't think velcade is a last resort.…[Read more]

Hi Etta and Welcome

It is my husband Stephen that has mm (diagnosed 2008) You will get a great deal of support and information on here, there are even silly games and jokes cracked sometimes.

Don't trawl the internet too closely would be my advice. Most of the information is out of date and can be quite scary. There are trained professionals…[Read more]

Hi Wendy,

I have been following this blog from the USA for over a year. It follows the trials and tribulations of Lonnie Nesseler who had a non related transplant – makes for very interesting reading.
If you read it just bear in mind that at the time of the transplant Lonnie was extremely weak and the transplant was his last chance of…[Read more]

I do hopr you had a great day Jo I think I must have missed your original post.

46 years! Fantastic. I am sure your right. Keep squabbling. I know it keeps us on our toes 🙂

Love from Gill xx