I will be with you both tomorrow and I hope it is a wonderful celebration of Slim’s life. Don’t forget a straight back, determination and a pocket full of tissues.

When Stephen died my daughter flew over from the States. She was devastated that she did not arrive before Stephen died, but she said she was there to support me. Bless her she sorted…[Read more]

Dear Eve

I am truly sorry to hear of Slim’s death. Stephen died nearly 2 years ago. Sometimes it seems like a lifetime away and sometimes it feels as though it was yesterday.

Like you and Slim there was nothing left unsaid between us, and as for regrets? I have none. (as long as you don’t count the fact that he got this bastard disease).

For a…[Read more]

Dear Eve,
Although I haven’t posted for a while I have been following both Slim’s and your journey with MM.I felt his time was close and truly dreaded the pain that will be with you now.
I am thinking of you and although I know you have the strength to cope I hope you have family and friends to help you through.

Tina XX

My husband had 2 SCTs in 2010/2011 we were told that the cost of each was £30,000 We were fortunate enough to have private health care and the bills we received were for food etc in the hospital.

I am still not sure who paid the cost of the SCTs but I think they were on the NHS.

If they have stopped funding transplants on the NHS I would sign…[Read more]

My husband died in September 2012 aged 57. He had had mm for 4 years but the end came very suddenly. The pain will never go completely lesj, but you learn to cope with it. I miss Stephen all the time, but have learnt how to cope.

PS great news about your daughter. I don’t suppose you will have time to post with your visitors are with you. So post nice long message after they have gone xxxx

Eve I had chicken pox aged 28 I was delirious and could see spiders climbing up the walls. The pain was unbelievable. When my kids had it as children they were absolutely fine

My daughter was terribly ill when she caught measles and was close to being hospitalised but we were told not to have her vaccinated because she suffered from febrile…[Read more]

Hi Eve and Slim I don’t log on very often and I was sorry to hear that Slim had been so unwell, but things seem to have improved a great deal since you changed hospitals.

None of us are oblivious to just how life threatening mm is, and I think the quality of life is paramount.

As you know Stephen died in 2012 aged 57. Up until a few weeks…[Read more]

Hi Sarah

I don’t post very often but still have a look now and again to see how people are getting on.

It is a very hard decision you are faced with especially as you have years of work ahead of you. My husband was diagnosed in 2008 just after his 53rd birthday I was 5 years older (I always said he was my toy boy but my daughter told me he…[Read more]

Hi Charlie and Mary,

If you are referring to the area of Buckinghamshire I can certainly recommend it. My husband had very good treatment in both High Wycombe and Stoke Mandeville Hospitals. There never appeared to be an issue with trying new treatments or spending money on treatment.

Hoipe this helps

Best Wishes

Tina

I don’t come on here very often now but I know that Corsodyl toothpaste and mouthwash really helped Stephen

Hi Tom so sorry to hear your news but there seems to be a great many new drugs coming on the scene to keep mm in control.

I know that everybody on here has their fingers crossed that your medics find the right one for you to kick the blasted disease into touch for a long time.

Much Love Gill xxx

Hi Dai,

Unfortunately low platelet and neuts are the biggest drawback of Bendamustine treatment. Hope you get your neuts up and you can continue with treatment soon.

Best Wishes
Tina X

Thankyou Ellen for breaking this expected but nonetheless very sad news.

Dear Sue,

Please accept my heartfelt condolences. I am so glad that you have your family and friends around you to offer love and support. Keith sounded like a wonderful man, he gave an awful lot of advice and comfort to many of us on the forum and we are so grateful…[Read more]

Thankyou Ellen for passing on such sad information. I remember Keith from the old site giving so much comfort and information to us all. Keith I am sure you knew your time was limited and hope you are comfortable and can leave this world in peace.
Sue I wish you both much strength and my very best wishes, my thoughts are with you.

God Bless

Tina X

Good luck and Good health to you all.

But please remember how long you lived is not so important as how well you lived, how much you and those around you enjoyed your life and the legacy you left behind

Stephen died last September, young, needed and missed by all who loved him.

Please don't feel as though it is all doom and gloom Eve but…[Read more]