Tina replied to the topic Velcade induced Neuropathy in the forum Side-effects 13 years, 2 months ago
Hi Debs,
Good luck tomorrow!
Tina X
Tina replied to the topic Alternative to Aredia? in the forum Treatment 13 years, 2 months ago
Hi Amelie
Just a word of caution, my husband used Zometa on many occasions but after he had kidney failure (and recovered somewhat) his consultant was hesitant to return to it due. This is not because it caused the kidney failure but that we were told that it would put more strain on the kidneys.
Tina
Gill replied to the topic I LOVE in the forum Off topic 13 years, 2 months ago
I LOVE the fact that I put up this idea.
C'mon you lot let's not stop xxx
Gill replied to the topic That subject no one wants to talk about in the forum Carers 13 years, 2 months ago
Sarah
Your story of Francecsa waving to her (in our home) Pop broke my heart too
Gill xxxx
Gill replied to the topic That subject no one wants to talk about in the forum Carers 13 years, 2 months ago
Sarah
Your story of Francecsa waving to her (in our home) Pop broke my heart too
Gill xxxx
Gill started the topic 9/11. in the forum Off topic 13 years, 2 months ago
I am sure that we have all watched or read about the 10th anniversary of the thousands of deaths that happened on 9/11.
I was still working then. I worked in a project for homeless people. We took them off the streets and gave them a safe bed, tried to help them into work and the ability to get food and whatever else they needed.
I watched…[Read more]
Gill started the topic Fingers Crossed For Me Please. in the forum Off topic 13 years, 2 months ago
Nothing whatsoever to do with mm but if you read this before 9.45am please cross your fingers that I don't make a complete idiot of myself.
I am going back to French classes. Stephen and I both did them for a while and Stephen dropped out fairly quickly (His excuse was South East London Buiilder struggles with English. My reply was, and still…[Read more]
Gill replied to the topic That subject no one wants to talk about in the forum Carers 13 years, 2 months ago
Love the idea of "Always Look on the Bright Side of Life" at your Dad in Law's funeral Bridget. Stephen wants nothing and the only way I can deal with it is to say "If you went first" He wants his ashes smuggled into France and sprinkled on the little patch of land that we own over the road from our house.
Come on Min keep posting. We all need…[Read more]
Gill replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 2 months ago
Firstly message to Bridget How much "happy juice" had you had before thinking that Terrapin included ARY?:-) 🙂
Secondly, many of you seem to be cheating asking your other halves 😉
Pay attention now I could put terrapin as my word as we have been left with ATE, but I will not. I will struggle and come back in a minute.
:-/ :-/ :-/…[Read more]
Gill replied to the topic Help…Is there anything on here about grieving? in the forum Off topic 13 years, 2 months ago
Dear Dear Min
I think Peter has shown you a sign. You signed your last post Minx He knows how naughty you are:-)
Love you quote "God only takes the best. Greedy bas****"
Do keep visiting this site. You may get some solace from it but my selfishness knows that you will give advice and comfort to others. I am so selfish that I (obviously)…[Read more]
Gill replied to the topic Help…Is there anything on here about grieving? in the forum Off topic 13 years, 2 months ago
Hi Roz
Please try and push for a bereavement councelor I had a friend at work who did this on a voluntary basis. From what I could make out she was trained to allow people to be really angry and let their feelings out and move on with their grief.
I can remember being so angry with my dad when he left me (died) and then feeling so guilty…[Read more]
Gill replied to the topic I LOVE in the forum Off topic 13 years, 2 months ago
I am sure that I spelt frivalous wrong but I am determined not to look in my wonderful new dictionary. I'll just keep on sniffing it:-)
Am I not a bit too old to get an addiction:-S sniffing stuff cannot be good for you:-)
Gill replied to the topic surgery resulting from MM in the forum Newcomers 13 years, 2 months ago
Dear Sylvia
Unfortunately Gaye died
All the best Gill
Gill started the topic I LOVE. in the forum Off topic 13 years, 2 months ago
You can put up a whole list if you like. A bit of fun because I am on a high. Daughter and whole bunch were here for the day mm? go hide yourself.
We dined out at the "eat all you can for 7.99" chinese. We spoke of lots of controversial subjects and loads of rubbish ones.
Their Staffodshire Bull Terrier was petrified of our 2 West Highland…[Read more]
Gill replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 2 months ago
NECESSITY for all to find something to do with
ITY
PS EVE Photo needed It is like playing Cluedo in here you are the illusive Mrs Black
PPS Nothing to do with this but Stephen and I were trying hard to remember all the characters from Cluedo and trying to guess the year it was made (watching some inane game show)I was only a year out…[Read more]
Gill replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 13 years, 2 months ago
BLIMEY
You are hot off the press Eve
MEY next
Gill replied to the topic That subject no one wants to talk about in the forum Carers 13 years, 2 months ago
Dear Min
I am so pleased that Peter's service went well (silly thing to say but I hope you know what I mean).
Please don't be silent on this site. I, for one, feel that I have made friends on here and if you drop out it will be like a friend not being there with a friendly word.
Much love Gill xxxx
Gill replied to the topic High dose chemo or not with renal failure. Any advice? in the forum Treatment 13 years, 2 months ago
Hi Ali
I know that I have looked at a number of American sites and it seems that they carry out far more Allos than here. They do seem very successful if they are a strong match. (Stephen is an only child so no chance there)
He is on his second auto. As far as I can understand (and believe me, although not stupid, I do find it hard to get my…[Read more]
Gill replied to the topic Neatropaenic Sepsis in the forum Side-effects 13 years, 2 months ago
Dear Min
I thought long and hard before posting the link. I would have hated to have caused you more pain on top of what you are going through.
It was Stephen (after I showed him the video clip)that said I should post it and he believed that you, Min (even if you had had no idea about NS beforehand) would be glad to make sure that others are…[Read more]
Tina replied to the topic Neatropaenic Sepsis in the forum Side-effects 13 years, 2 months ago
Hi Gill,
I think you are right to highlight neutropenic sepsis as I believe I am correct in thinking that it is a condition most myeloma sufferers will find themselves in at some point due to a low neutrophil count.
Patrick managed to overcome at least three episodes due to quick action in recognising symptoms and getting him in to hospital…[Read more]