Hi All

I have thought about what I posted and have realised that I am not actually "rude" (at least I don't think so) but maybe have become too honest.

When asked by the server in a multiple eatery where we had breakfasted during a long journey (the one where a chef is tiny) "how is your meal, everything OK?" Instead of my usual reply of…[Read more]

So pleased you managed to get a decent quote I hope you have a great time.

Just to add for info that it is also worth looking at MIA and we found that we were insured by our general health insurance for travel. So do check any insurances you already have

Bon voyage Gill

I have only just caught up with your post of Amy. I have fond memories of listening to very talented tribute bands on various holidays. They always seemed to be having a fun time as well as entertaining the holiday makers. She sounds really good and I hope she is having a great time.

Fingers crossed that you get over to see her soon.

Love…[Read more]

Hi Sue

My mm husband, Stephen, came out from hospital over 2 weeks ago after receiving his 2nd SCT. He has not been very well since but we are plodding on.

Trying to get him on a Bendamustine clinical trial was mentioned after Stephen relapsed following his first SCT and his consultant was not aware that he had further stem cells…[Read more]

Dear Joanna,

Very sorry to hear Bendamustine did not work for you. It's interesting to see how treatments differ so much across the board. Patrick was not using either thalidomide or dex during his Bendamustine treatment, probably why he didn't suffer with side effects – and maybe why the treatment worked for him for 9 months, who knows?
The…[Read more]

Hi Sarah

Sorry to hear that Gordon's second SCT has not done the trick. Stephen is seeing his specialist on Friday to find out if his second SCT has helped.

He is feeling quite unwell at the moment so I am worried that the news will not be good. I hope Gordon's new drugs help and wish you both luck
Gill xx

Sorry Dai

I got the gist of your post wrong and thought you wanted an exact outcome of the procedure (I shouldn't post so late at night:-/

I hope all is going well Love from Gill xx

"I just would have liked someone to have sat down with me and to have explained what might or could happen during the treatment and what, if anything, we could do to either improve the conditions if and/or when they arose… its not to much to ask… surely?"

I think that this b***tard cancer is so unusual and so individual that there is nobody…[Read more]

I too was hoping for posts from Jet. I think she was going through the mill about now. Fingers crossed for her Gill

Hi from one Gill to another. My husband has mm and I learnt very early to read posts and advice on here and not trawl the internet.

Gill xxx

I am so pleased that it all went well. Here's hoping it gets better and better. If finger crossing does work then let's hope everybody that reads these posts crosses their fingers for a second or two:-)

Love Gill xx

Try this fun for miss steaks

I tried to paste it here but the site blocked it I casnnot see why

http://www.greaterthings.com/Humor/Spelling_Chequer.htm

Dear Angelina

I just wanted you to know that I have my fingers crossed that John is home on Sunday and I'm hoping that he will be home far more permanently soon

Gill XX

Hi Min

I am so glad I am not the only wierdo in the UK. I hate tennis too.

I know how you feel about getting angry. I have felt, at times, completely fuming and bewildered as to how Stephen could get so ill. Almost like "Stephen what did you do???"

Stephen is 2 weeks post 2nd SCT, and not yet very strong. To be honest he has been hard…[Read more]

I am pleased that you are doing so well. Stephen still has PN in his feet but I believe that this side affect does go eventualy.

Gill xx

I am so pleased that you are doing so well. Enjoy your holiday and let us all know how it was on your return

Gillxx

Dear Min

I am so sorry that I have not picked up on your postings before. Being busy with Stephen being home I have not really looked at the site. I am pleased that Peter seems to be on the mend and hope that he is home on Monday and feeling much better.

Love from Gillxx

Hi All,

I was so worried about Gaye I contacted Barts Hospital to see If I could get the heads up. Gaye was not an in patient and there was no record of anything untoward happening to a person of that name in the past weeks. I hope this means that Gaye is still hanging in there and is just too tired to come on line.

Tina