Hi Ron
It is my husband with mm he has not had a transfusion as yet but has been throught to CDT route (this is his second lot) I am sure many others will give you more info than I can. Good luck Gill

I am so sorry that you have a difficult time with this doctor. Heavens you have enough to go through without that as well.

I hope you find a way to approach this particular person (they are only people underneath their training) and explain that he is a bumptious, unpleasant human being that should take a few inter-personal skill…[Read more]

DearRoz

I am so sorry to hear about Michael. Please accept my apologies for not being in touch sooner but we have had problems with the internet and have been off line for a while.

I do hope you manage to get through all the things you have to. Thank goodness you have family to help.

Love from Gill xx

Hi David

The first time we went away after Stephen's diagnosis we went with MIA. No problem at all but then we discovered that we were already covered for health insurance on an insurance policy we already held as long as we let them know that we are going and that Stephen is not currently on treatment (RT Chemo etc) they don't include…[Read more]

Hello Amelie,

Patrick had an accident in the garden and hurt his back. He went to the local Gp two weeks later as his back was not any better had a blood test and was told by the doctor of his suspicions – the GP was right – confirmed a week later by a biopsy.

Regards
Tina

Dear Roz,

What a seriously strong and brave woman you are, I am sure Michael was truly proud of you. I can only imagine the pain you are going through right now, my kindest thoughts are with you.
Love Tina XX

My computer played it on macromedia flash player I think this was built in to my computer when it was new. If you google it you can download it.

Gill

Welcome back Bridget. The silence has been deafening:-)

I am sorry that you have been poorly and that you have had bad news what a heartbreaking bummer. Stephen is in the middle of further RT for his spine and his pain has eased a little after his first zap so we are hoping the other 3 Zaps will help even more I do hope the same for you

Love…[Read more]

Thank you so much Debs for your offer to let me know who to write to I will be in touch. As for hate mail how could anybody be nasty to someone so pleasant and, obviously by your photo, so pretty.

Good idea Min I am in the middle of filling out an online form to Watchdog.

On a general note the advice to contact our MacMillan nurse. What does…[Read more]

Hi David

I am glad you are OK you maybe feeling like S**t but you will be amazed at how it starts to turn around. I really wish that I had kept a diary when Stephen went through all this first time round. Just a sentance every day would have been a good indicator of improvement.

I cannot help over whether you should have a booster. I suppose…[Read more]

Hi Sharon
Fingers crossed that it is a blip as David puts it. We were told recently by Stephen's specialist that allos are being used more and more here in England (following the USA I think)as the drugs for GVHD are so much better now

I hope that there is someone on here that has experience of an allo and can give you some information

Good…[Read more]

Oh Donna

There is so little I can say, I am so sorry.

My daughter is called Donna.

I don't know if you are aware that the name Donna means lady.

I just bet that you were one very special lady in your dad's life.

Wishing you strength and comfort in the weeks to come

Love from Gill xxx

Hi Kay

Welcome to the site that is very elite, very supportive, very friendly and helpful and a place where everybody wishes they did not have to be.

Very good luck with your treatment let us all know how you are getting on.

Kind regards Gill

I think I forgot to say Welcome Home. I hope you are feeling OK and managing to eat. Don't forget the teaplate trick:-)

Tiny amounts of food are manageble and you will soon be doing an Oliver Twist and asking for more.

Good Luck from Gill xx

Good news indeed Georgina. I hope she continues to improve

Kind regards Gill xx