Dear Gaye

Thank you so much for your reply I needed somebody to make me put my sensible hat back on. It just comes as such a shock when you seem to have got some "normal" life back to be told by mm "fooled you there didn't I?"

One more bottle of champagne left and that is staying in the garage until Christmas day. If we get mum in law to…[Read more]

Hi Pual

It is my husband who has mm and he is the grand old age of 55 Although He has been through all the first line treatment chemo SCT etc I am probably not the best person to talk to as we are of a different age. I do know that there is an under 50 site on here and I am sure that you will get a great deal of support and information from…[Read more]

So pleased that your biopsy was pain free. I know that I have seen my big "Bob the builder Oh it is only a 4 inch gash in my hand/foot whatever put a plaster on it and stop fussing" husband clench his teeth, hands and curl his toes when having a bmb.

The wretched tool they use looks like a giant corkscrew and I remember somebody on here posting…[Read more]

Hi Roz

I am a late bird too. I am sorry that your visit did not turn out as you hoped. I have my fingers crossed that Michael will be made more comfortable and less agitated over the next few days.

Let's all raise a glass (or coffee cup) to hope Gill

Hang on in there David. You are, at least, half way
Love from Gill xxxx

Hi Arlene

My husband was 53 when diagnosed in 2008. He had a SCT in the summer of 2009 and has been very well since his transplant and is in total remission. He is due to see his oncologist in a week or so and I always panic beforehand but other than that we get on with our lives.

He has damage to his spine that was caused by mm before the…[Read more]

Hi Lynn

I am sorry that the news was not good for John and you I hope he feels a little bit brighter today. Do keep us posted on his progress

Gillx

It must be awful to have to battle through it and put up with the cold but it certainly looks gorgeous

Gill

Hi Roz

I hope they arrange a meeting very soon, and that the best thing for Michael can be sorted out.

It must be frustrating for you but if Michael's calcium levels are back on track let's hope he becomes less confused.

I have my fingers crossed that the weather does not stop you getting to the hospital and want to let you know that we…[Read more]

Hi Sandie

I am glad that others have said about the biopsy as I am the wife of an mm person and so have no real idea, but I can say that I have seen Stephen's toes curl when he has to have them (he does not have sedation) so I think it is a good idea for your mum to be a bit woozy.

She sounds as though she is coping very well with having mm,…[Read more]

That seems to be good news Bridget and I wish you the very best of luck. Stephen cannot be operated on because there is too much damage and so still relies on MST gabapentin and parecetamol. He has, by determination practicaly cut out the oromorph.

I do hope it goes well for you although the thought of further surgery must be daunting. Keep us…[Read more]

Hi Roz

I hope Michael is a little better. Stephen didn't have a vicar or anyone visit but he has only been in for SCT and was in isolation. It is probably common practice for the clergy to visit the open wards.

Love from Gill xx

Hi

Stephen was very itchy when he was on CDT and he used the stuff he uses for his eczema Sudocrem. I am always loathe to advise anyone to use something but this can be used on babies for nappy rash so should be gentle enough and may do some good.
Gill

Hi Donna

I do hope that your dad get's more help from now on. Let us all know how it goes

Gill

Hi Min

I am sorry that Peter has broken a bone and hope he mends quickly. Please write "all the best from Gill on the discussion group xx" from me

love from Gill

To settle your cells and get then get them working try playing them pachelbel's canon. I cannot think of a more soothing and uplifting piece of music. It is easily found on you tube.

love from Gill

PS you are not aloud to like Elvis [b]AND[/b] Cliff it was a rule from the 50s/60s it is either or. You have to make your mind up 🙂

I was…[Read more]

Hi David

I am glad that all is going well for you and hope it continues. I got very frustrated trying to read your updates as I could not find them, then realised that you were attaching them to your original post which is a very good idea as it makes them easier to follow for everybody (except a moron like me!!)

Do post when you can…[Read more]

Hi Norman,

My husband Patrick goes through fazes when he has monthly infusions of Zoledronic Acid (Zometa)mainly when he becomes hypercalcaemic (too much calcium in his blood). I am happy to say he has not suffered any side effects to date.
I believe the side effect Liz is referring to is caused by long term use which may cause a degredation…[Read more]