I suffered from cramp when I started on beta blockers . My cardiologist recommended I take Co Enzyme Q10 200mg at night
When Stephen started getting cramp because of his mm we checked with his oncologist and Stephen was told it was OK to use them.

They are a natural food supplement not a drug and take a couple of days to kick in. Min…[Read more]

Dear Sue

Has anybody suggested that Michael go in to your local hospice for some respite care? It can be a chance for you to re-charge your batteries and catch up with some much needed sleep, knowing that Michael is being looked after 24/7.

Our local hospice was marvelous. They had Stephen's pain under control straight away and they are very…[Read more]

Dear Sue,

As Tom says you must call 999. I usually called the consultant on the Haem Ward at Stoke Mandeville where Patrick stayed plenty of times and they always told me to bring him in straight away. But the night he developed chest pains, the day before he died, I called 999 They wanted to take him to the local A & E but I was having none…[Read more]

Oh Sue,

I can only describe this period you are going through as the very worst feeling in the world, I so want to give you a big hug and make it all go away.
At the very least Michael's pain is controlled a little better now, I hope he is not too distressed and you are able to talk to him about your fears as well as he is about his own, this…[Read more]

Shanks fer dat. I followed all instructions please wake me when overhang? hang something? recedes into just a thumping head and an unquenchable thirst. Oh thats better more cuervo to quench my thirst xxxxxxxxxxx

PS I think the quote is "Here's Looking at You Kid" Come on film buffs Casablanca?????? Gill xxx

My house is at 36 Bridge Road BR5 2BH Telephone 01689 821467 Any body is welcome unless they have evil ideas In which case my Guard Dogs will see you off 2 soppy little Westies (but don't tell anyone. Let's pretend they are killer huge dogs rather than both under 12 inches high and want you to love them to death

Stephen MADE me promise…[Read more]

Dear Helen

Don't ever feel "mean" posting good news. My Darling Stephen died in September. He was one of the unlucky ones.

It is great to hear of people doing well, and makes the possibility of seeing this horrid illness kicked into touch for everybody seem a little closer.

Good luck and good health Love from Gill xx

Thank you

This site is a life line to so many and a place to grieve. Thanks to all the team

Gill

No magic wand from here I am afraid. What did help Stephen a little was keeping extremities extremely warm (excuse silly choice of words)

Feet soed in warm water,loose bedsocks etc.

I wish you both well Gill xx

Hi Sue,
Thought I'd answer your question re: driveras eve is on the other side of the world. A driver is a small portable pump which can deliver a variety of meds at regular intervals for symptom control. This could be morphine or any other med required.
Patrick had one fitted when he slipped into a coma. Morphine was given at intervals to…[Read more]

Dear Susan,

So lovely to hear from you. How am I getting on? apparently much the same as you. Patrick's passing seems just like yesterday, I relive all of our conversations and his anguish and confusion during his last week with me almost every day.
When people ask me how I am I really do not know how to answer. Like you I try to keep busy…[Read more]

I have calmed down now but just wondering how they got on here Will we have a cure next? Snake oil methinks;-)

Gill xx

PS to Tom go into general and look for the post headed passports

Thanks for your thoughts Jean.

David I forgot that the site has moderators. I know that when I first joined I read that we are pretty much left to monitor ourselves and people generally only use "indoor language" with an occasional asterisk thown in.

But I was fuming when I saw this advert this morning

Love from Gill xx

Hi Sue

The first thing Stephen was told when he became ill was that pain management is the highest priority. Do get on to Michael's medical team and ask them to re-assess his pain control drugs.

It cannot change much for you or Michael but I am sure that you know everybody on here is routing for you both.

Love from Gill xx

Dear Sue,

I know exactly how you must be feeling and I truy wish I could say or do something to make the pain go away. Michael is the love of your life and the very thought of not being able to enjoy the future together is absolutely devastating. You must roll with all your thoughts and feelings don'tever feel guilty for even the strongest…[Read more]