[susannahParticipant]

Thats brilliant news David, enjoy your trip.

Sue x

[susannahParticipant]

Hi Min This is one of the things that really worries me with Michaels trial as his consultant told us this is one of the side effects they know about. Please to know Peter is out of hospital , whats his next stepin his treatment

Sue

[susannahParticipant]

Hi Tina Lets hope so , she has been so supportive to so many people on this sight for a long time.

Sue

[susannahParticipant]

Hi All David your post brought a smile to my face thank you, enjoy your holiday, Tina and Roz thank you for your replys they have helped alot. Michael has decide to give the trial ago, but we do have a few more questions we need to ask first.
I wondered if anyone had heard from Gaye as I know she is on Pomalidomide

Thanks again for your support
Sue

[susannahParticipant]

Hi Min so sorry to hear Peter is having a bad time in hospital, i remember when Michael was in you try and hold things together for there sake, but then you have to go home and hope they are being well cared for.I to agree about the dogs Ihave Lucy a chocolate Lab and we walk miles together Im sure people think im mad because im talking to her all the time

Take Care
Sue

[susannahParticipant]

Thank you all for replying, thanks Min the consultant did mention Melphalan
but you know what its like they seem to through so much at you, and I dont know about the rest of you, but sometimes you just dont take it in. Its been a tough few days and we both had a cry this morning ( something Michael never does) we know theres not many options left, but hes been through so much over the past 4 years no break in treatment, and strange it may be he seems so well at the moment, and this trial will probably change that. Anyway time to dust myself down tomorrows another day onwards and upwards

Love
Sue

[susannahParticipant]

Hi Keith Its good to here Velcade has done the job for you and youre on track for a second SCT

Good Luck and Best Wishes
Sue x

[susannahParticipant]

Hi Michelle I havent posted for a while but i do read posts most days. Sorry to hear of your mums setback, but its good shes back on Revlimid. My husbands just be taken off after 18months we see his consultant Friday to see what next? I will be interested to know what your mum has next

Take Care
Sue x

[susannahParticipant]

Hi Bridget Thanks x

Sue

[susannahParticipant]

Hi Colpot My husband has been on Revlimid for 19 months, and we thought he was doing well. Sadly it stopped working a month ago and now he has been taken off it. Thinking positive he has been refered back to Prof Russell at Nottingham city, from our local hospital, to see what next, We go this Friday so fingers crossed. Fingers crossed for you, hope it works for another 41 courses

Love
Sue

[susannahParticipant]

Hi Tina Patrick is at peace now from this b illness. You are so brave offering support to others, but im sure after reading Patricks posts that is what he would have wanted

Love
Suex

[susannahParticipant]

Dear Gaye Im so sorry to hear you are not to well,i do miss reading your posts. You have always been so supportive over the years, i only wish you lived near by and i could pop in and support you

Take care
love
Sue

[susannahParticipant]

Dear Susan Sorry to hear about Kevin, my husband Michael and i followed his posts on the old sight, he was such a brave man

God Bless You
Sue

[susannahParticipant]

Dear Tina I was so sorry to here about Patrick, you must feel totally empty and lost, i really cant imagine what you are going through my heart goes out to you . Cherish the good times Tina even MM cant take them away

Thinking of you
All my love
Susannah (Sue)

Would have posted sooner but could not access the sightx

[susannahParticipant]

Hi Lorraine Just wanted to let you know, my husbands on Revlimid and has been for been for the last 18months, last August or there abouts he became so exhausted that he had a treatment holiday for 3 months, it did him the world of good and has tolerated it much better since,

Take care
Sue x

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