[susie45Participant]

Hi Kazza, just seen your post…

I was diagnosed last September and after 4 cycles of chemo my pp was down to 4 and was told I was a suitable candidate for sct. I was petrified and said that I couldn’t go through with it. My anxiety was really high. I had had a bad start to the chemo the steroids didn’t agree with me and made me over anxious and also quite poorly.

Anyway for my families sake I went for the referral at a London hospital as my local one didn’t do sct. I agreed to go through with it— harvesting started on 17 May sct on 17 July and here I am 8 weeks post sct on and so glad I went through with it as hopefully it will give me a few years in remission. I am 63 so similar to your mum. To tell you the truth it is not as bad as you think it will be. I saw the consultant yesterday for my 1st check up and he told me that after the sct I didn’t recover as well as most people and quite frankly I din’t think I was too bad. I certainly wouldn’t hesitate to have another one now! The best thing I ever did was joining this forum as I was at home worrying and thinking that I wasn’t recovering quickly enough and as soon as people who had actually been through it told me I was fine it put my mind at rest and because I wasn’t worrying I’m sure I started to recover!

I know everyone is different with myeloma but no-one could have been more petrified than me… I was actually visibly shaking at my first sct consultation. But I did it and am really glad.

Hope this will help you and your mum!

Thinking of you!

Susie x

[susie45Participant]

Hi Adrian

I had my SCT in London. One big tip I would give is that you stay in hospital until you feel you are ready to come out. I left too early and that’s why I had a lot of trouble.

I am really improving now , can stand and walk about for longer if only my taste buds would get back to normal I would be pleased!!!!

Keep me updated and good luck!

Susie

[susie45Participant]

Hi Adrian,

Well done you!

Believe you me the end is in sight! It was 7 weeks ago that I had my transplant done and really it has gone so quickly. I have improved greatly from when I first posted on the forum. I think that speaking to people who had actually gone through it helped me tremendously! If I sit up in bed or on a chair I feel totally normal its only when I get up that I realise that I’m still poorly (its only the tiredness but even that is improving).

Which hospital are you in?

Keep me updated with your progress when you feel well enough !

Susie

[susie45Participant]

Hi Adrian,

How did it go on Tuesday? How are you feeling?

 

Susie

[susie45Participant]

Hi Adrian,

I too had a picc line in my arm but only for  the stem cell transplant and the weeks following. I didn’t feel it go in and I was surprised when they said it was done .As for afterwards I forgot it was there. Taking it out was no trouble either.

I know how nervous you must feel I was exactly the same about everything!

Best of luck for Tuesday!

Susie

[susie45Participant]

Hi Kevin.

Thanks for your reply, as I said to Greg I think I am trying to run before I can walk! I just thought that I would be a bit more mobile at this stage and able to stand up for more than two minutes without feeling so weak!

I will certainly take notice from what you have said and let nature take its course.

Many thanks and take care,

Susie

[susie45Participant]

Hi Greg, thanks for replying so quickly. It is good to hear your views, maybe I am trying to run before I can walk…..I will certainly not beat myself up about not being able to do things any more! Many thanks and wishing you continued good health!

Best wishes,

Susie

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