Hi Jackie sorry about your Mum and I hope the news gets better, keep looking on here and ask all the questions you like there are lots of people with good medical advice. You should also ask your Doc as much as you can it helps to keep you in the picture. Ted

Our hospital (Leeds) is just the same ,3hrs usually thats what we allow,we have bloods taken then 3hrs on average before seeing the Doc, I'm smoldering so dont have treatment and I can honestly say if he says OK come back in 3 months I'm happy.Ted

Great news ,all the best. Ted

I know just what you mean, keep up the good work. Ted

Sorry to hear your news Robin but there are a lot of people on this site that can help as I personally know, keep reading all the posts and the leaflets that are available on this site and ask questions, all the best to you both. Ted

Hi, I didnt understand the scales either ,but he did appear to be the "younger" of the team (if you know what I mean,we have all been there) but how he got from 200+ to 900+ I dont know, I wanted to ask other questions but this put me off and I just let it go and left. I will ask the questions next time as its only 8 weeks to my next…[Read more]

Thanks Terry, Alex and Babs, looks like we could start a whole new forum on Light Chains alone. Dont quite get all of the info but I will read through and get back if I need more help. When I had my last visit to hospital they told me the light chain amount as 238,which was very low from 928, and then he said "sorry we are using Siemens scale "…[Read more]

Hi I dont want to hijack this topic but perhaps someeone could help me. I have had smoldering MM for about 6 years and the last few visits to hospital they said my "light chains" were showing a upward trend and they asked me to attend every 8 weeks instead of every 3 months,they have been fairly low so far but now are at 928??? which they say is…[Read more]

Hi Paul, Sorry to hear your sad story ,I cant help much as I have smoldering MM which has no syptoms and no treatment at the moment, but some one will be along soon to help and give advice . Stay on this site and you will get help. Ted

Hi ,My name is Ted and I was diagnosed with MM (smoldering)about 5years ago, it sure is a big shock at first but you will come to terms with it as time goes on. Keep on this site and ignore all others ,you will find lots of help and some nice people. Ted

Hi Heather, I'm Ted and I have whats known as Smoldering Myeloma, no symptoms and no treatment as yet, I am really sorry that you both find your selves here on this site,but on the other hand you will get good advise here and also support.
I dont have any practical advice but some one will be along very shortly with some help, as there are…[Read more]

I would like to add my best wishes to the above, and thank every one on the site for there help and support. Ted

Like the coffin, I'm 6ft X 2.6ft, can I place an order.:-D
Dont understand all those numbers but they dont look too bad. Ted

Yes Helen just seen the weather forcaste not what you call good still there are worse places to be snowed in, and they usually have plenty of red in. Ted.

Thanks David and Tom, I will keep drinking, I will have to wait for the results Vicki 7 weeks to go, its the waiting thats hard,always tests and then the long wait for results, I've said on here before that I dont think about it much until it comes to a week or so before an appointment then I worry. Thanks every one as usual you come up trumps.A…[Read more]

Dont really know about that ,seen it discussed on here before ,I think they said about 3ltrs a day which seems an awful lot if that means water, will that include tea etc. If it meant beer I would give it a good try.:-D
I can understand that drinking plenty must be good for the kidneys ,though the clinic never mentioned it. Ted

What a happy team of stem cells, did you send them a card. Ted

Thanks Helen that explains it very well,I did mention in August that I hadn't had a urine test for a long time and he said they could get just as good a result from blood samples. Better pay more attension to my kidneys as I am already having bowel problems, too close for comfort. Ted

Thanks all ,always get a good responce on here, it seems from Jo,Vicki and Colin that it has to do with kidneys,I will ask when I go back, I'm certainly a long way from 31,000 and hope it keeps that way. Thanks for the support Tom always wwelcome. Ted.
Will let you all know how it goes (for the record 🙂 )