[teds31Participant]

Hi Eve, Part of my charity work is teaching older people how to use computers and its very satisfying but non so far with Myeloma, perhaps a good thing:-D Ted

[teds31Participant]

Hi again all,
Nice to hear from you though as a new guy with nothing to show I dont want to hog the place. Thanks for the answers which all help me to understand this strange illness, to Eve I didnt know this illness was so exclusive that docs didnt know a lot about it and no I dont know anything about a specialist nurse, though I think OI remember when I was first diagnosed that some one said I could see them if I needed.Mavis I can see your point about weather to have treatment unless ofcourse there is no alterative.I think I am like you Julie I feel out on a limb nothing happening yet all sorts of questions and no answers, asking some one when am I going to die ,which is the same as saying how long have I got, feels defeatist and some docs think you are giving up which isnt true I just want to know what can the future hold. It isnt easy to talk to the family as I dont want to upset them. So here I am talking to you total strangers (though very nice ones:-) ) I think Ididnt appeciate how llittle I knew about it ,but Im learning. Thanks to all of you ,by the way am I the only man,or dont the others pour thier hearts out.;-) Ted.

[teds31Participant]

Hi Bridget, Thanks for the reply, I think I was just a little surprised that after being diagnosed over 5 years ago that non of the other doctors had realised that myeloma could be the cause of my infections which they were treating. I think all the doctors I have seen in that time have been open and frendly, I may have to be more aware in future and bring the myeloma into the conversation a bit earlier. Been for a chest CT scan today and go for the results in a couple of weeks, I am trying to get some idea what to do this coming winter if I have the same problems as last year. Nice to talk to you. Ted

[teds31Participant]

Hi and thanks every one,its nice that so many people have found time to reply, I just put the bare facts into the first note ,I am in fact 80 tomorrow, and I often hear the old saying hes had a good innings and I suppose I have but I just want to know whats ahead and this seems to be a place I might find advice. We (my wife and I) dont spend a lot of time worrying about Myeloma but when I was told about the immune system problem I wondered why I was never told or why I never asked, the other doctors didn't seem to cotton on to the connection and this makes me wonder if each department stands alone, do I have to tell my own doctor and every other that I have Myeloma every time I visit them.I thought they all had my complete records from way back perhaps I'm wrong.Anyway thanks again everyone and I'll keep popping in to see whats happening and if I need help.
Ted.

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