PatriciaWilburn

  • tishwish replied to the topic Travel Insurance in the forum General 12 years, 3 months ago

    Hi
    We have just returned from a trip to Dubai and we used World First Insurance. We also could not beleive the quote we got….to cover Peter's myeloma and a disc condition i have we paid £214 and this was for a yearly policy. We will be travelling again in May back to Dubai. I would reccommend that everyone gives them a call xx

    Trish

  • Last week Peter had a final check up in readiness for our holiday and yippee we got the ok to go so we are off to visit our son and his wife in Dubai for 16 days. Just the packing to do then we are ready. 17 months ago when we got Peter's diagnosis our world fell apart and i could never envisage that we would be going away on holiday together…[Read more]

  • tishwish replied to the topic Good News! in the forum General 12 years, 5 months ago

    Hello Mavis
    That is fantastic news for you, hope it lasts a very long time. 🙂

    Love Trish

  • Hello Gill

    So very sorry for your loss of Stephen. Words are few but thoughts are deep, my deepest sympathy to yourself and your family. Stephen's suffering is over and he is at rest xx

    Love Trish x

  • tishwish replied to the topic Vaccinations in the forum General 12 years, 7 months ago

    Hello everyone

    Peter has seen the consultant today and we asked about re vaccination. The consultant said that he would be re vaccinated for everthing that he needs in about a year from now. He said that if they were done now they would not take because Peter's immune system is still not running properly, being only 9 months from his SCT.Peter…[Read more]

  • Hi Gill

    My husband Peter was diagnosed in May 2011 and was suffering very badly from hypercalceamia and was immediatley put onto Zometa infusion, he has continued throughout his treatment having them every month apart from the time immediatley following his SCT. He has been told that he will continue with them for the next year. We have never…[Read more]

  • tishwish replied to the topic Stem cell transplant in the forum Carers 12 years, 7 months ago

    Hi Cathy

    My husband Peter had his sct on 1st Dec last year and right from the beginning he was sick which got steadily worse on a daily basis. He was given various anti sickness meds but he found the injections to have the best effect. he also suffered with horrendous diahorrea and did have to wear in continence nappies. He also lost his…[Read more]

  • tishwish replied to the topic Teeth. in the forum Side-effects 12 years, 7 months ago

    Hi sandra

    My husband Peter had to have some dental work done and he was already on Zometa infusions. It was felt that he really needed to have 2 extractions done and he was referred by his consultant to the dental hospital at Hull Royal. The reply from them was that under no conditions would they do the work or allow his dentist to do work.…[Read more]

  • tishwish replied to the topic Travel insurance in the forum General 12 years, 7 months ago

    Hi Louise

    We normally travel to the Caribbean every November but my husband was diagnosed with MM last year. We have decided that we are going to visit our son in Dubai and began the insurance srabble. I contacted 8 different companies for quotes etc and i also asked them if he would be able to get cover for the Caribbean another time, the…[Read more]

  • tishwish replied to the topic Insurance in the forum General 12 years, 8 months ago

    Thank you to everyone for your replies. Peter has now been given permission to travel to Dubai in November, we have a confirmation letter in our hands. We have got insurance with World First Travel, £207, this also includes myself being covered for a disc problem too, got to say we are delighted with the price. Flights will be booked tomorrow and…[Read more]

  • tishwish replied to the topic Vaccinations in the forum General 12 years, 8 months ago

    Hi everyone
    Thanks David Liz Helen and Tom, we are going to ask consultant when we next see her. It does seem very confusing cos Peter's doc defo said that he would need to be re vaccinated…but hey i guess they know what they are doing, when and how etc.:-S
    Our grandson 2 and half got the pox when Peter had his SCT and he had to keep away…[Read more]

  • tishwish started the topic Vaccinations. in the forum General 12 years, 8 months ago

    Hi

    My husband Peter had his SCT on 1st Dec 2011 and was told at that time that he would need to be re vaccinated for some childhood illnesses , tetanus etc. 6 months down the line Peter is working a little in the cattery which we run as a business and in the garden. We have asked about the vaccinations and been told that it is too early. I am…[Read more]

  • tishwish replied to the topic Plasma cell leukeamia in the forum General 12 years, 9 months ago

    dear Angie

    So very sorry to hear about the loss of your mum. I hope in time that you will be able to remember and be comforted about all the lovely memories that your mum has given to you all. Our deepest sympathy to you all at this very sad and difficult time

    Lots of love
    Trish and Peter xx

  • tishwish replied to the topic Plasma cell leukeamia in the forum General 12 years, 9 months ago

    Hello

    Just a few words to let you know that you and all your family, especially your mum are in my thoughts and prayers.

    Love from Trishxx

  • tishwish replied to the topic Good News X Two in the forum General 12 years, 9 months ago

    HI Tom and Elaine

    That is brilliant news for both of you, have a good celebration:-)

    Love Trish

  • Hello Judd

    So sorry that you have had to join us on here but as previous folk have said its a good place for information and you will soon feel that you are amongst friends. It sounds like you had a horrendous time previous to getting diagnosed. My husband was in a similar situation with the severe excrutiating pain, trips to the doctors…[Read more]

  • Hi Michelle

    So sorry to hear about your loss, all our thoughts are with you all at this very sad time.

    Love Trish xx

  • tishwish replied to the topic Hello to All in the forum Newcomers 12 years, 10 months ago

    Hi

    My husband was given Caphosol by the hospital routinely, no questions asked. We can also get any drugs from our own GP with no questions asked at all. It is a very good mouthwash

    Trish xx

  • tishwish replied to the topic Newbie in the forum Newcomers 12 years, 11 months ago

    Hi
    This too could be my story, my husband was diagnosed May 31st 2011 after being ill for 5 months with lots of severe back pain, he ended up having to crawl around because he couldn't walk.He had to have verboplasty on 3 vertebreas, I had to give up my work to care for him and also to run our business, we have a cattery. Peter became extremely…[Read more]

  • Hi
    My husband was diagnosed on 31st May last year ( my birthday ) after been ill for 5 months. He first became ill in January with severe back pain, after many visits to the doctors with the pain and other problems, chest infections, pnuemonia, pleurisy, but he was always told that he had a muscle spasm, he was finally sent for an xray. This…[Read more]

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