Hello Eva
Thank you for your reply. We are now even more confused with the spots/rash. They appeared again at the end of cycle 2, exactly same as at end of cycle 1. Phone call to hospital and doctor said not to go to hospital unless Peter became unwell. The spots cause Peter no trouble, no itching, scratching or pain.
Peter was at clinic on…[Read more]

Hello Eve and Slim

Sorry to hear about the relapse, i know how you will be feeling, my husband Peter has recently relapsed. Peter only got about 11 months remission from his SCT and on that basis doctor said that 2nd SCT was notmviable. Therefore Peter's treatment is Velcade. Good luck with your journey together.

Love Trish xx

Hi David

Sorry to hear that you too are a relapsed patient. Wishing you well on your Velcade journey. Peter has started cycle 2 today after been of it for 3 weeks due to suspected chicken pox (blood test show it to be a no but even the doctor today, 4th different doctor, still feels it was chicken pox !!! Chest infection, cough and a virus.…[Read more]

Hi

The insurance claim rolls on and on. Had several letters from the insurance underwriters asking for more information, all sought out and given. The main stumbling block seems to be that the airline tickets we purchased were non refundable………….so the airline wont refund. Well thats ok because we are claiming on our travel…[Read more]

Hi

Specialist nurse rang this morning to tell Peter that he has no antibodies to chicken pox so that confirms that Peter's spots are not chicken pox or shingles. Nurse stated that Peter must avoid chicken pox at all costs now as he is going through the Velcade treatment.

Doctor's appt for 5th April to discuss further and hopefully restart…[Read more]

Hello everyone

Well the chicken pox saga rolls on……Peter has been to hospital this morning and we have seen a different doctor who beleives that Peter does not have Chicken Pox, however he said that the spots are very like them. He thinks it could be a reaction to some of the drugs Peter is taking or even the Velcade. A blood test was taken…[Read more]

Hi sarah

Doctor confirmed this morning that if you have had chicken pox previously you can then get shingles. Hope Henry misses them.

Love Trish xx

Hi

Well the claim forms have been completed and photocopied and posted off….so we await the next stage.

The hospital doctor was fantastic with the info he had to give also writing an additional A4 page of added extras, he said that he was often asked for extra info so decided that he would send it straight away.
Only problem we had was…[Read more]

Hello Nikki

My husband had his stems collected on 26th October 2011 and he was given them back on 1st December 2011. Peter came out of hospital on 20th Dec.

Good luck
Love Trish xx

Hello Deborah

Peter has some neuropathy from his thalidomide treatment, the doctor is keeping close eye on whether it gets worse on Velcade, so far we have had no probs.
Chicken Pox and chest infection and a virus is now the order of the day so Peter is feeling very poorly.

Love Trish xx

Hello Megan

Thank you for your reply. Not much improvement yet today, sickness has kicked in now too!!!! Restless night for the pair of us.
How long do they delay the next cycle for.. is it the length of a cycle or start as soon as Peter is well?
The doctor did indicate yesterday that cycle 2 which should start Friday will be held back.
I…[Read more]

Hello Pat

Well we have got through the night with nothing more than one minute Peter was freezing cold and the next minute boiling hot as if he was on fire, temp 36.7, so dont know whats going on. Sleepless from 3.30am for both of us.
The doctor yesterday was very reluctant to give any pills of any sort. We are waiting to see if 2nd cycle…[Read more]

Brilliant news Peter:-)

Love Trish xx

Hi Ozzy

Peter is due to start 2nd cycle on Friday. Doctor was reluctant to give anti biotics and anti virals today. He seemed to want to keep him off the drugs. Peter has had no sied effects during the four injections but the tiredness has kicked in big time this last week. We are back at hospital on Friday and hopefully will see one of our…[Read more]

Hello everyone

Thank you Eve for the advice not to rub the tummy, Peter has only 1 bruise from 1 injection and 3 large red blotches from the other 3 jabs. He has had no 4 today so thats the 1st cycle done. Steroids tomorrow and then 10 days free from those, so hopefully he will be able to get back into a proper sleep pattern.

Love Trish xx

Hi John

The claim form has arrived………….10 A4 pages in total!!!!!!!
We have read it and then re read it, not sure we fully understand some of the questions so going to give them a call on Monday. However what we do understand is that the main evidence will be obtained from the consultant and hopefully his info will then confirm lots of…[Read more]

hello everyone

Peter has now had his 3rd velcade injection in 1st cycle, he also had his zometa yesterday. He is taking the dex slightly different than before, 10 tablets on injection day and 10 tablets next day followed by a break of 3 or 4 days. So far so good, although he is feeling a little tired. The dex days are causing sleeping problems.…[Read more]