dear Susannah

I hope you and your family have the best weekend that you could have. Scarborough and Whitby are beautiful places.
Several years ago our local doctor died suddenly and his wife could not bear to take down the cards, her answer was to take one card away each day until they had all been taken down.

Love Trish xx

Hello Eve
Can you remeber what the programme was called or which tv channel it was on?
What is the reason you have to inform them for?
Will look through our back post too for said info.Think i will need to inform also cos Peter has SCT too

Love Trish xx

Hello
My husband Peter is the one with MM. He was diagnosed May 2011 and had CTD followed by a SCT in 1st December 2011. His pp came down to 6 and stayed there until October 2012 when it started to rise and month on month has continued to rise. A bone marrow biopsy was done and we got final confirmation last Wed that Peter has relapsed. The…[Read more]

Hi Tom

Peter said thank you for your good wishes. Will keep you posted of his journey

Love Trish and Peter

Hello everyone

Peter has started the Velcade treatment today…………paperwork signed sealed and delivered. First injection given in the tummy and came home with steroids, anti biotics and allopurinol, 12 tablets taken when we got home. Peter is now sleeping. Back to the hospital on Monday for 2nd injection. We now fully understand the 21…[Read more]

Hi John

Will post as soon as we have an answer.I have spoken to world First this evening and they are sending me a claim form.
Peter is devastated that he wont be able to travel, we were all booked to visit our son and his wife in Dubai and meet our newly born twin grandchildren who are due in April.

Trish xx

Hi John

We are about the start the process of making a claim on our World First insurance. My husband Peter has just been re diagnosed with his Myeloma and treatment has to start immediatly (today)and the consultant will not allow him to travel.

Will keep you posted
Trish

Thanks Vicki for updating……i dont mind at all. You have done it better than i would have done.
Indian and wine were very good

Love mum xxx

Hi Lorry

My husband Peter uses a TENS machine and he has had good results from it. When he was first diagnosed he had severe bone damage and his mobility was severely hampered. The local Macmillan nurse was visiting us and she suggested that the physiotherapist came to try and help him. Very gentle exercises were done and also the use of the…[Read more]

Dear Sue
So very sorry for your loss. Micheal is now free from pain

Love Trish xx

Hi Nikki
Sorry about your own health issues, i know how you will have been and probably still are feeling because i had mental health issues in 2000. I had good support both medically and family and i won my battle. 12 years on it has never returned.
So sorry about Sam too, again we know how you will be feeling because my husband peter has also…[Read more]

Hi
My husband Peter had Melphalan pre stem cell transplant. It was a very high dose and he had severe side effects with it. He has now relapsed after 13months and he is having a bone marrow biiopsy on Thursday. Consultant has said that he will be treated with Velcade and steriods. Good luck

Love Trish xx

Hello everyone

Many thanks for your replies. We have done a bit of research and are awaiting a visit from Macmillan nurse to talk it through with us. Bone marrow biopsy is on Thurs and results a week after.

Many thanks
Trish xx

Hello everyone.

Thank you for the replies to has helped us. We are compiling a list of questions to ask the consultant about velcade. We have got info from the myeloma uk website and read it too. Its the wait that seems the worst for us. Will let you know more when we can.
Many thanks
Trish xx

My husband Peter, his latest readings show an increase in pp's from 6.5 to 11. Peter had SCT on 1st Dec 2011 and has recently had his 1st year anniversary. Peter's pp after sct was 6 and has wavered around that mark for the past year. The latest reading was from blood tests on 31st October and we saw the consultant last Wed, she was not unduly…[Read more]

Hi Tom

Thanks for your lovely reply.Not wanting to wish time away but i am hoping May gets here really quickly and we can meet the neww babies, they will be our 3rd and 4th grandchildren. We have Hamish who is 3 and Jake who is 16 months, our little treasures
Love Trish x

Hi
That is fantastic news for you Val. Like Sue my husband cannot get any maintenance treatment either. He also has bone pain and takes painkillers every day………..in fact he has been on painkillers since his diagnosis. Hope you had a lovely christmas and New Year and good luck for the future

Love Trish xx

Hi everyone

Just an update on our holiday. we had a fabulous time staying with our son and his wife in Dubai. Peter did get a slight cold but we didnt need to see a doctor and he recovered in a couple of days. We had a lazy time and did a few more bits at the weekend when Ian and Sam were home from work. It was just lovely lazing by the pool…[Read more]