[tishwishParticipant]

Hi Lorry

My husband Peter uses a TENS machine and he has had good results from it. When he was first diagnosed he had severe bone damage and his mobility was severely hampered. The local Macmillan nurse was visiting us and she suggested that the physiotherapist came to try and help him. Very gentle exercises were done and also the use of the tens machine.

Trish

[tishwishParticipant]

Dear Sue
So very sorry for your loss. Micheal is now free from pain

Love Trish xx

[tishwishParticipant]

Hi Nikki
Sorry about your own health issues, i know how you will have been and probably still are feeling because i had mental health issues in 2000. I had good support both medically and family and i won my battle. 12 years on it has never returned.
So sorry about Sam too, again we know how you will be feeling because my husband peter has also relapsed after only 13 months after SCT. His bone marrow biopsy is tomorrow and we get the results next Wed, we expect that Peter's treamment will be Velcade too.
So we are both on the same journey together.

Good luck
Love Trish xx

[tishwishParticipant]

Hi
My husband Peter had Melphalan pre stem cell transplant. It was a very high dose and he had severe side effects with it. He has now relapsed after 13months and he is having a bone marrow biiopsy on Thursday. Consultant has said that he will be treated with Velcade and steriods. Good luck

Love Trish xx

[tishwishParticipant]

Hello everyone

Many thanks for your replies. We have done a bit of research and are awaiting a visit from Macmillan nurse to talk it through with us. Bone marrow biopsy is on Thurs and results a week after.

Many thanks
Trish xx

[tishwishParticipant]

Hello everyone.

Thank you for the replies to has helped us. We are compiling a list of questions to ask the consultant about velcade. We have got info from the myeloma uk website and read it too. Its the wait that seems the worst for us. Will let you know more when we can.
Many thanks
Trish xx

[tishwishParticipant]

My husband Peter, his latest readings show an increase in pp's from 6.5 to 11. Peter had SCT on 1st Dec 2011 and has recently had his 1st year anniversary. Peter's pp after sct was 6 and has wavered around that mark for the past year. The latest reading was from blood tests on 31st October and we saw the consultant last Wed, she was not unduly concerned but did say that it was a reasonable jump in a month. We are back at clinic again for another check up on 6th February. Peter is feeling rather tired and has had an increase in pain although he is never pain free due to severe bone damage. He does not worry about what may happen…….i do enough worrying for both of us. I am really hoping and praying that things are ok for quite a while longer yet

Trish xx

[tishwishParticipant]

Hi Tom

Thanks for your lovely reply.Not wanting to wish time away but i am hoping May gets here really quickly and we can meet the neww babies, they will be our 3rd and 4th grandchildren. We have Hamish who is 3 and Jake who is 16 months, our little treasures
Love Trish x

[tishwishParticipant]

Hi
That is fantastic news for you Val. Like Sue my husband cannot get any maintenance treatment either. He also has bone pain and takes painkillers every day………..in fact he has been on painkillers since his diagnosis. Hope you had a lovely christmas and New Year and good luck for the future

Love Trish xx

[tishwishParticipant]

Hi everyone

Just an update on our holiday. we had a fabulous time staying with our son and his wife in Dubai. Peter did get a slight cold but we didnt need to see a doctor and he recovered in a couple of days. We had a lazy time and did a few more bits at the weekend when Ian and Sam were home from work. It was just lovely lazing by the pool and chilling out. The sun was a welcome sight after leaving a very wet and rain sodden England. We went up to the viewing deck on Burj Kalifa, amazing views. We had a special champagne brunch for our 40th wedding anniversary, a present to us from Ian and Sam, that was amazing, i have never seen so much food and drink in one place before……it was very nice. We also went on a river trip. 19 months ago when Peter was diagnosed with Myeloma i never believed that i would be going on holiday again with Peter, we were both overwhelmed. We are going back to Dubai again in May to meet our twin grandchildren who are due to be born in April. Exciting times for us xx

Love Trish

[tishwishParticipant]

Hi
We have just returned from a trip to Dubai and we used World First Insurance. We also could not beleive the quote we got….to cover Peter's myeloma and a disc condition i have we paid £214 and this was for a yearly policy. We will be travelling again in May back to Dubai. I would reccommend that everyone gives them a call xx

Trish

[tishwishParticipant]

Hello Mavis
That is fantastic news for you, hope it lasts a very long time. 🙂

Love Trish

[tishwishParticipant]

Hello Gill

So very sorry for your loss of Stephen. Words are few but thoughts are deep, my deepest sympathy to yourself and your family. Stephen's suffering is over and he is at rest xx

Love Trish x

[tishwishParticipant]

Hello everyone

Peter has seen the consultant today and we asked about re vaccination. The consultant said that he would be re vaccinated for everthing that he needs in about a year from now. He said that if they were done now they would not take because Peter's immune system is still not running properly, being only 9 months from his SCT.Peter is treated at Queens Centre,Castle Hill, Cottingham

Love Trish x

[tishwishParticipant]

Hi Gill

My husband Peter was diagnosed in May 2011 and was suffering very badly from hypercalceamia and was immediatley put onto Zometa infusion, he has continued throughout his treatment having them every month apart from the time immediatley following his SCT. He has been told that he will continue with them for the next year. We have never paid a penny for them but i have heard that if you are going from private to NHs then it is difficult to get it free.
Good luck

Love Trish xx

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