Hi Cathy
My husband Peter had his sct on 1st Dec last year and right from the beginning he was sick which got steadily worse on a daily basis. He was given various anti sickness meds but he found the injections to have the best effect. he also suffered with horrendous diahorrea and did have to wear in continence nappies. He also lost his appetite and couldnt even keep water down. The docs decided that it was best that he was kept on saline solutions and these lasted for 16 days. He came home on day 18 in time for xmas at home. It is a horrid time but it does pass and once home they soon start to improve, although in Peter's case it was about 4 months. Hope your husband will soon feel over the worst.
Love Trish xx
Hi sandra
My husband Peter had to have some dental work done and he was already on Zometa infusions. It was felt that he really needed to have 2 extractions done and he was referred by his consultant to the dental hospital at Hull Royal. The reply from them was that under no conditions would they do the work or allow his dentist to do work. Peter went on to have gold crowns fitted as this was felt to be the best option.The gums do not heal if you are on Zometa.
Hope all goes well with your dental work
Love Trish x
Hi Louise
We normally travel to the Caribbean every November but my husband was diagnosed with MM last year. We have decided that we are going to visit our son in Dubai and began the insurance srabble. I contacted 8 different companies for quotes etc and i also asked them if he would be able to get cover for the Caribbean another time, the answer from all of them was that they would give a general insurance cover but no cover for MM would be available, that included America and Canada too. We have got insurance with World First for Dubai, we had to answer endless questions about Peter's MM and his treatment, we also had to get a "Fit to travel" letter from his consultant.
Good luck
Love Trish xx
Thank you to everyone for your replies. Peter has now been given permission to travel to Dubai in November, we have a confirmation letter in our hands. We have got insurance with World First Travel, £207, this also includes myself being covered for a disc problem too, got to say we are delighted with the price. Flights will be booked tomorrow and we will be off to visit our son and his wife for approx 18 days in November.
Trish xx
Hi everyone
Thanks David Liz Helen and Tom, we are going to ask consultant when we next see her. It does seem very confusing cos Peter's doc defo said that he would need to be re vaccinated…but hey i guess they know what they are doing, when and how etc.:-S
Our grandson 2 and half got the pox when Peter had his SCT and he had to keep away from grandad for 8 weeks in total, it was rather scary thinking that Peter could have got them and the doc was very concerned at that time.:-(
Tom i would just go with the flow and get your 10 years worth and more for the pnuemonia jab:-)
Thanks
Trish
dear Angie
So very sorry to hear about the loss of your mum. I hope in time that you will be able to remember and be comforted about all the lovely memories that your mum has given to you all. Our deepest sympathy to you all at this very sad and difficult time
Lots of love
Trish and Peter xx
Hello
Just a few words to let you know that you and all your family, especially your mum are in my thoughts and prayers.
Love from Trishxx
HI Tom and Elaine
That is brilliant news for both of you, have a good celebration:-)
Love Trish
Hello Judd
So sorry that you have had to join us on here but as previous folk have said its a good place for information and you will soon feel that you are amongst friends. It sounds like you had a horrendous time previous to getting diagnosed. My husband was in a similar situation with the severe excrutiating pain, trips to the doctors constantly for 3 months. He did have 3 crushed vertebrea, which have been cemented. He was diagnosed on 31st May last year and has had a full course of CDT and a stem cell transplant in December.The consultant said his main aim as well as treating the cancer was to try and keep him out of a wheelchair, so far so good. He is doing very well but he still has terrible pain in his back and is on painkillers and tens machine. Take it one day at a time and we are all here to share your journey with you.
Best wishes
Trish xx
Hi Michelle
So sorry to hear about your loss, all our thoughts are with you all at this very sad time.
Love Trish xx
Hi
My husband was given Caphosol by the hospital routinely, no questions asked. We can also get any drugs from our own GP with no questions asked at all. It is a very good mouthwash
Trish xx
Hi
This too could be my story, my husband was diagnosed May 31st 2011 after being ill for 5 months with lots of severe back pain, he ended up having to crawl around because he couldn't walk.He had to have verboplasty on 3 vertebreas, I had to give up my work to care for him and also to run our business, we have a cattery. Peter became extremely confused with chemo brain, his taste buds continually changed, his moods and emotions were up and down and he also lost 4 inches in height.I agree with Eve,as a family we will never get back the husband, dad and grandad we had before Myeloma struck, but we are grateful for every day we have together. I had a great circle of friends and family around me, but we were also given a fantastic macmillan nurse to help and support us and still does to this day. Peter had CDT and a stem cell transplant in December 2011 and he continues to make a good recovery.Take time out for yourself, i know its not easy to do but i had a day a week to myself to do whatever i wanted to do.
Take care
Pat xx
Hi
My husband was diagnosed on 31st May last year ( my birthday ) after been ill for 5 months. He first became ill in January with severe back pain, after many visits to the doctors with the pain and other problems, chest infections, pnuemonia, pleurisy, but he was always told that he had a muscle spasm, he was finally sent for an xray. This showed he had a crushed vertebrea, the doctor then referred him to a consultant neurologist. He was not happy with the xray and said it was inconclusive but he put him into a back brace, which he then wore for the next 4 months.Am mri was done and again this showed an inconclusive result and the consultant said that he would admit him to hospital for investigations and if the vertebrea was crushed he would have a procedure called a verboplasty. Peter entered hospital on the 23rd May to have surgery the next day, this was cancelled each day until it finally happened on the Thursday and Peter had 3 crushed verebrea's cemented. Immediately the doctor was concerned with the softness of Peter's bones in his spinal area. Unbe-known to us they were already exploring the myeloma, as it had shown up in a blood test whcih was taken on his admission day to hospital.We were finally given the myeloma diagnosis on Monday 31st May. No blood test had ever been taken by his own GP.Peter then became extremely ill on the Tuesday, his body was suffering terribly from a calcium overdose, from the bone degrading, this also affected his kidneys and put him into renal failure.This was a very difficult time for us as a family, Peter didnt even recognise his own daughter and son.
The next day a consultant haematologist from the Oncology unit came and spoke to us about the disease and his treatment for myeloma started immediatly and Peter was then transferred to a specialist hospital.He has now been through a CDT course and a SCT and is making a good recovery.
Trish xxx
Thanks everyone for the responses and information given. We will certainly be checking some of the insurance companies out and hopefully we will be able to get away to see our son and his wife
Thanks Trish xx
Hi Peter
That does sound very good, its certainly one that i will check out too.
Trish xx