[tishwishParticipant]

Hi Debs

Think i am getting my head around the figures and remission and partial remission. I do agree that we have to accept Peter's 6 as been very good. When i remember how ill he was in January 2011 he has had a very good recovery.
We did ask about revlimid too but Peter is not eligable for it.
You take care and good luck

Trish xx

[tishwishParticipant]

Hi Helen

Thanks, have had a quick look at website of World First. Peter's levels have come down from 80 to 6, which means then he is in partial remission. I was quite confused because the consultant told us that he would never go into remission and then seeing reports on here about people in remisssion. I understand it now.
We do ask and keep a log of all his blood levels

Thanks Trish xx

[tishwishParticipant]

Hi Helen.
Thanks for the info i will have a look at the list. Have they covered you for the myeloma and anything connected with it
We werent even sure if we wolud be able to travel further that Europe, the consultant would prefer us to stay Europe but we are desperate to visit our son and his wife.
Have a fab trip to New Zealand

Thanks Trisha

[tishwishParticipant]

Hi Tom

Thanks for your info. Peter has been told that he will never go into remission, but his blood levels are good. He is having Zometa every 4 weeks and will be on that for the next 18months or so. He is still on Co- trimoxazole and lansoprazole

Trish

[tishwishParticipant]

Hi Was just wondering what first defence is and where you get it from.
Thanks Trish xx

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