tmc

  • tmc replied to the topic New Need to talk in the forum Carers 11 years, 11 months ago

    Hi Helen
    I love the hair it is gorgeous I want it!
    Love Teresa.

  • tmc replied to the topic New Need to talk in the forum Carers 11 years, 11 months ago

    Hi Eve
    I love your saying about being strong. i have also been told we are only given the cross we can bear but I feel as if mine is dragging on the floor some days
    Going to the bottom of the garden to look at the birds is not an option any more just looking out of the window and we saw a very large hawk circling over this morning.
    I have no…[Read more]

  • Hi Andy
    so glad to hear your pp levels are going south and hope you are feeling good.
    Dont; get over tired on your trip and stay well
    Love Teresa

  • tmc replied to the topic New Need to talk in the forum Carers 11 years, 11 months ago

    Hi Andy
    I hope you are enjoying yourself in the Lake District and hopefully having good weather.
    You may be interested to know my son in law won gold for his Porter.
    You can see it on bellwoodsbrewery.com/retail if you want.
    Looking forward to reading about your trip and hoping you are staying well and not too tired out from all the…[Read more]

  • tmc replied to the topic New Need to talk in the forum Carers 11 years, 11 months ago

    Hi Helen
    Still waiting for a photo of you with blond hair.
    I am so sorry about your garden I hope you get it into some sort of shape before you go back to work. Is that soon?
    We have had really hot weather and everything is growing like crazy even eating stuff already.
    Peter is now in palliative care at home, but is hopeful that the drugs…[Read more]

  • tmc replied to the topic Keeping up appearances in the forum General 11 years, 11 months ago

    Hi Helen
    I am so looking forward to a new photo on here to show us your blonde "do"
    I bet you look great
    Luv Teresa

  • Dear Siobhan
    When my husband relapsed after 7 years with MM I came onto the forum and Bridgit was among others who helped me through this time.
    Bridgit also told me which pain meds to ask for, to help my husband.
    I am very sad for you and the family at the loss of your dear mom but comforted by the thought that she passed away quickly with you…[Read more]

  • tmc replied to the topic UPDATE ON MICHAEL in the forum General 11 years, 12 months ago

    Hi Sue,
    I know exactly what you mean my husband had had MM for years and I just don't know what to do when i don't have to be with him. I wander around trying things and not settling at anything it is so strange as if something is missing.
    I hope eventually you will be able to settle at something and relax do take care we have to be strong and…[Read more]

  • Hi
    Best wishes for Tuesday
    I hope Colin and Pete have had a better day today but each day different so just accept.
    My husband Peter also had pain in the sternum,/chest issues after his SCT and he has been seeing a cardiologist ever since. Just a regurgetation valve problem but they don't want the heart to swell so he is on heart meds and…[Read more]

  • tmc replied to the topic Keep Calm & Carry on in the forum Treatment 11 years, 12 months ago

    Hi Dai
    Glad the email arrived.
    Sorry to here about your spiking temp but you seem very calm and take it in your stride.
    How on earth can you drink soooo much I think I would be sick if I drank that much.
    You must tell me any tricks to get in down so that I can make sure Peter has plenty to drink in this hot weather,
    Love Teresa

  • tmc replied to the topic I'm back. in the forum General 11 years, 12 months ago

    Hi Andy
    So sorry to hear you were prodded twice for the Bone marrow bi opsie what a pain for you. Hope the procedure didn't cause too much discomfort.
    When Peter had his first BMB it was done in the sternum! now thank gooddness it's in the hip.
    Having really low white blood counts can cause all sorts of problems I am so glad you are just…[Read more]

  • Hi Ann
    Yes Dex affects everyone differently I just wish I had known at the begining of our MM journey what i know now.
    The weekly Dex didn't agree with Peter he took too long to recover from it so the 4 days on off are better for him. He also gets very energized and red in the face and very assertive boardering on rude then can't remember…[Read more]

  • tmc replied to the topic SCT Underway in the forum Treatment 11 years, 12 months ago

    Hi Eve
    I am sure you and Slim will make it to NZ again after the effects of the SCT kick in and make him feel so good and push him into remmission.
    We are fine thanks Peter has been put on an arm of the pomalidomide trial to try and slow the MM from spiraling out of control at an alarming rate and methadone has been added to his mix of pain…[Read more]

  • tmc replied to the topic I'm back. in the forum General 11 years, 12 months ago

    Hi Andy
    So glad to read you are out and about even with the BMB results hanging over you. Are you really tired or can you manage to keep up with your company on nights out?
    Hope you enjoyed your comic and he gave you some good laughs.
    Peter's brother and wife from Sydney are arriving on Sunday so that will buck him up and we are hoping that the…[Read more]

  • tmc replied to the topic Latest blood test in the forum Treatment 11 years, 12 months ago

    Hi Andy
    was thinking about you on Tuesday as you were having your BMB.
    Peter had his on Thursday17th last week and Wednesday 23rd this week they have put him on new pain killers and high dose dex one arm of a polamalidomide trial
    anything to keep this MM from spiraling out of control.
    Hope you have good results and they soon have your levels…[Read more]

  • tmc replied to the topic Keep Calm & Carry on in the forum Treatment 11 years, 12 months ago

    Hi Dai
    email sent last night hope it arrived??
    Love Teresa

  • tmc replied to the topic DT PACE in the forum Treatment 11 years, 12 months ago

    Hi Paul
    so sorry to hear you are feeling low it's not a nice feeling but things will look up soon I am sure.
    Good luck with the DT pace.
    Love Teresa.

  • tmc replied to the topic Keep Calm & Carry on in the forum Treatment 11 years, 12 months ago

    Hi Dai
    You always seem to know so much and are really interested in upcoming trials and treatments. I was wondering if I could send you an email I have received from Toronto and District MM it's their newsletter #88 and you may find it interesting if you haven't already seen it.
    They mention Velcade's cousin Carfilzomib which is waiting FDA…[Read more]

  • Hi Ann
    How are things?
    Just read that Pete takes cd every Sat all in one go. As you say everyone's dose is different even though it's the same med. My husband takes his CD for 4 days then a rest for 4 days then starts up again.Only 10 pills at a time though. So I guess they try and treat the individual not just a common treatment for all, so…[Read more]

  • tmc replied to the topic SCT Underway in the forum Treatment 11 years, 12 months ago

    Hi Eve
    Thinking about you and Slim and wishing you the very best.
    My husband was in isolation for a month when he had his SCT and it can be very tiring, stressful, worrying, so do take extra care of yourself.
    The lady in the next isolation room slept in the room with her husband as she didn't trust anyone. I guess we all have to do what we…[Read more]

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