tmc replied to the topic Hello to All in the forum Newcomers 12 years, 11 months ago
Hi Jacqui
Thinking about you as you go through your stem cell transplant.
Love Teresa.
tmc replied to the topic A Postcard from New Zealand in the forum Off topic 12 years, 11 months ago
Hi Helen
Lovely to hear from you.
What a great birthday. Happy birthday and many more to come.
Looking forward to all your vacation news if you want to share.
Love Teresa.
tmc replied to the topic Very Trying Times in the forum Carers 12 years, 11 months ago
Hi Gail
Just wondering what was happening with you and Howard?
Hope all is well and you are solving some of the problems?
Love Teresa
tmc replied to the topic Keep Calm & Carry on in the forum Treatment 12 years, 11 months ago
Hi Dai
I am so happy for you and Janet. This MM sure puts us through the emotional wringer. Hope you can relax and unwind a bit now after such a nerve wrecking time.
So re charge the batteries and I look forward to hearing your news.
Big sigh of relief for Janet
LOve Teresa.
tmc replied to the topic moving on in the forum End of Life and Grief 12 years, 11 months ago
Hi Min
so glad to hear about your babysitting job. I would also need a complete rest after that lot, or possibly a stay on a funny farm.
It really helps when the sun shines lifts the spirits.
I do hope your eyes are ok. Have you been for any more reiki treatments?
Good luck with the solo vacation Iwish you could come and stay with me I could…[Read more]
tmc replied to the topic What a day in the forum Off topic 12 years, 11 months ago
Hi Dai and Scott
Haven't a clue what you two are talking about but isn't it great to talk about everyday life and not mention the dreaded (MM)
It's a great weekend here sun shining a bit too hot for me plus 28 maybe plant a few veg and flowers and ask someone what you guys are talking about. Used to shop in the Kings Road Chelsea but I don't…[Read more]
tmc replied to the topic Revlimid Failed in the forum Treatment 12 years, 11 months ago
Hi Gill
Thinking about you,
Have you been given any more options
We sometimes sit on the endge og the bed and shout and scream and cry and swear a navvy would be proud of the words we have come up with, anything to ease the pain and frustration of MM.
Love Teresa.
tmc replied to the topic I'm back. in the forum General 12 years, 11 months ago
Hi Andy
Only a month to go before the vacation I am looking forward to you having a little break.
I wonder if you have had your bone marrow and pp levels done yet? We went for bone marrow bi opsie on Thursday, not the most pleseant procedure but I guess it tells them stuff they need to know.
I certainly hope you get good news and all is stable…[Read more]
tmc replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 12 years, 11 months ago
Hi Ann,
I do hope very soon you will have Peter's pain under control or at least manageable. It can sometimes take a while to get the corect dose.We also(same as Vikki) went to a palliative care pain doc 7 years ago so the name isn't as bad as it sounds but the oncologist doesn't always have the answer to pain control so a specialist is a good…[Read more]
tmc replied to the topic I'm back. in the forum General 12 years, 11 months ago
Hi Andy
Are you in the Lake District??
I hope you are ok as I haven't seen you on here unless I have just missed you??
Love Teresa.
tmc replied to the topic Rev Failure Mk II? in the forum Treatment 12 years, 11 months ago
Hi Dai,
I replied to Gill's post about failed Rev so will not repeat myself.
I must admit I admire your courage and determination and ability to take on the NHS if you have too.
My son will have his first child (a boy)in Oct and my husband has put his bloody mindedness hat on and will be there to see him.
I sometimes wonder if mind really does…[Read more]
tmc replied to the topic Revlimid Failed in the forum Treatment 12 years, 11 months ago
Hi Gill
My husband was diagnosed at age 57 and now at age 63 he will not see the year out.
He has relapsed three times now, SCT didn't work Velcade didn't work, Revlimid put him into remmission for 4 years and now has stopped working.
His MM is spreading to other bones and radiation and pain meds are keeping his pain in control. He is going on…[Read more]
tmc replied to the topic My husband has just been told he has got myeloma!! in the forum Newcomers 12 years, 11 months ago
Hi Ann and Peter
I hope your body scan went well and nothing new was found.
Sorry your vacation was cancelled but there will be better days ahead and more holidays for you both.
It's hard to go with the flow and try and let the old life vanish and this new MM life rule.
It does get easier as we adjust to it all.
Take care Love…[Read more]
tmc replied to the topic starting treatment in the forum Treatment 12 years, 11 months ago
Hi Jean,
My husband has MM and we have had almost 8 years of it. Just recently his ribs started to hurt and he had 5 days of radiation. It really made the difference he has almost no pain there now. So I hope the same happens for Frank. You both have a busy time ahead of you, I hope all goes well and you can overcome this blip and move onwards.…[Read more]
tmc replied to the topic Personality change in the forum Carers 12 years, 11 months ago
Hi Gail,
You may already be at your daughter's having a little rest I do hope so.
My daughter wasn't as easy going as I am and on several occassions had words with her dad when he was having his dex days. He didn't remember it and she was upset and so was I. We all decided to just go with what ever even if it meant going outside and screaming or…[Read more]
tmc replied to the topic Better Days To Come in the forum Carers 12 years, 11 months ago
Hi Eve,
My heart goes out to you and I wish I could give you a big hug and smile and cry alongside you.
To lose your little Matty and a friend and now have the worry of Slim in hospital for his SCT seems to much to bear.
As you know I care for my husband and there's always a calm before the storm I think your storm is passing now and with…[Read more]
tmc replied to the topic moving on in the forum End of Life and Grief 12 years, 11 months ago
Hi Min
They offer Reiki and yoga and loads of other free classes at the local cancer hospital here. I have tried yoga and it helped. I woulkd love to try reiki but think I will wait until I am in desperate need for it.
My husband is almost at the end now after 8 years with MM. I was so interested in your comments and will try very hard to think…[Read more]
tmc replied to the topic Personality change in the forum Carers 12 years, 11 months ago
Hi Gail
How are you getting along?
Are things calming a little yet or is everything still too new and complicated to think about?
So many issues to deal with in such a short time it is so overwhelming.
Hope to hear from you when you feel like it
Love Teresa.
tmc replied to the topic New Need to talk in the forum Carers 12 years, 11 months ago
Hi Helen
Thanks for the compliment but thehair at the back near the neck is still very dark for some unknown reason.
To lose it would absolutly terrify me and most of the neighbours. I can not imagine how you or so many others can come to terms with hair lose due to radiation/chemo just terrible.
When my mum was ill and I went over to visit…[Read more]
tmc replied to the topic New Need to talk in the forum Carers 12 years, 11 months ago
Hi Andy
I guess you are just coming to the end of your dex days so maybe feeling a bit more human now.
I am looking forward to photo of hairy you.Even though you were a lot younger. but isn't it great to be getting old.
Glad to hear you have planned a trip and hope nothing prevents you from going.
I am off on Mothers day this Sunday for…[Read more]