Hi Ian

Wow I heard what you have had and its amazing, I hope you are doing well, are you still in hospital?, how did you fracture your neck?. gosh I dare not sneez now.

Hope your soon better and please dont sneeze

Tom "Onwards and Upwards" x

No No No lol I dont want to prick my self Lol I (at the moment) dont need to BUT could I stick a needle into my Tum ??? am sure I could If I had to but if the option of a Nurse doing it for me first came up :-S am off with that option Lol 😎 Good Luck to all those that do it themselves 😀

Tom "Onwards and Upwards"

Hi Helen and John

May I ask you if the SCT was a success ? as since mine in December 2009 I only had Zometa infussion's? Is John having any of the bone strengthening drugs? as that could cause Jaw Problems?. but dont stop taking any treatment that is helping stop the MM.
all of us are different in our treatment and side effects.
Hope all…[Read more]

And I hope you had a good sleep Dai its a begger I know, been done it that sort of thing, but I used sleepy pills not every nite just now and then to help me catch a bit of shut eye 😀

And Eve You my dear are not Just the Carer you ARE THE carer 😀 without people like you and all the others that have partners and Family looking after us our…[Read more]

Hi Keith

Lets Hope you will be taking them for years and years Good Luck with it all Keith and heres to minimum side effects 😎

Tom "Onwards and Upwards"

Do you know Eve if i could blush I would Lol

Well am pleased they didn't Chuck HIM out, yes I was under Castle Hill in Hull for my SCT and went every week to have bloods and check up then on my 10th day (or near as danm it) I had another BMB But hey Ho still in Remission since 2009 😀 and after all I went through it was well worth it 8-)…[Read more]

Grumpy old man Bless him Lol

Its a good job it was only a discharge note he made the mistake on the next patiant might be having his left leg removed just think of the mistake in that one? :-0
I do hope they didn't throw Slim out because the needed his Bed?

I know you will take care of Slim and wont let him do too much yet and dont forget…[Read more]

Hi Jean and Frank

Sorry I cant add to any of this only to send you both a CyBer (HUG). I know its scary when they tell you to come off something and have to wait for a few days before something else is sorted they might give Frank a reduced dose?

Keep strong they will soon find something that "Fits" Frank's set up.

Love and Hugs Sent…[Read more]

Hi Eve and Slim
Am pleased it was caught fast enough the sooner the better 😀 and am afraid to tell you you will have more of these down the line 🙁 but if you are all on top of it as soon as it "Feels just not right" then am sure it wont last long, jump on the bugger as soon as 😎 and tell Slim its our sense of humour that helps us cope I…[Read more]

Hi Karen

Welcome to the group and i am sorry you had to join.

I hope you are soon seen I know its a worry we can do without.
I was fortunate enough to be seen pretty fast and started my treatmen within two months, and i hope this helps "I am now in remission and drug free" 😀

Good Luck in your road to remission

Love
Tom "Onwards…[Read more]

Hi Wendy

Yes I still drink at least three Litre a day.
I put mine in 500 mil Bottles and fill up from the tap, we have a water filter in the tap pull forward for normal cold and push back and it comes through the filter and I put three bottles in fridge and are refilled when empty its better to count?? but I drink more than the three ltr, I…[Read more]

Hi Sue
I am pleased you found out am sure its all too much to take in at the moment and a worry when we read things that differ from our Dr advice.

Hope all goes well

Tom "Onwards and Upwards" xx

Hi Ann and Peter

Yes I lost it but it comes back after treatment has stoped 🙂

Tom "Onwards and Upwards" xxx

Hello Jeant
Just wanted to say Welcome and sorry I cant add to this but am sure some one wil pop along soon to answer it.

Good Luck to your Husband on his new treatment.

Love Tom"Onwards and Upwards" xx

Hi Sue

I would phone the Nurse up on here and ask or phone the Hospital where your partner is being treated.

Sorry I cant be of more use in your Q

Tom xx

Hi Jen

Welcome to the forum but also sorry you had to join:-( well I cant add anything to what has already been said apart from take one day at a time and go with the flow watch out for raised temp and infection's (gosh av said a lot) and get your Dad to rest when he feels tired.

Good Luck to you and your Dad in the MM Journey.

Tom…[Read more]

Hey Keith well what to say?? you know I feeel for us all when it fails such a darned illness this bloomin MM but am sure you are strong enough to fight it off and get back into remission 🙂

Get yourself off on your Holls and if you can push the MM into the background for a time.

Tom "Onwards and Upwards"

Hi Andy well I am sorry the SCT hasn#t worked for you, this MM is a devil to work out everybody differant with the outcome to the treatment?.

I hope the new treatment works for you with no or little side effects.
Keep strong and well plus dont let the drought wet you hair 🙂

Tom "Onwards and Upwards"

Hi Eve and Slim

Yes its a bugger these infections, I have lost count of how many I have had.
As for the nurse even my grandchildren know the rule Blow Wipe and wash 🙂 and she should know better.

Good Luck and hope the biotics kick in sooner than later

Love and Hugs to you both

Tom "Onwards and Upwards" xx

Well Thats great news dai, Its bad driving on moterways these days without the rain. I bet your both as proud as punch with each other for doing it together.

Good Luck on your next trip and I dont think the next one will be too far away.

Love to you Both

Tom "Onwards and Upwards"