tom replied to the topic Revlimid Failed in the forum Treatment 12 years, 6 months ago
Na then Tery
I love the way you cope with it all I also feel that its a head as well as a body challenge kepp them both strong and you are on to a winner.
Keep strong and well
Tom "Onwards and Upwards"
Ps great photo. I must take my young Bride to Scotland one day soon x
tom replied to the topic Hello to All in the forum Newcomers 12 years, 6 months ago
And A Good Morning to you also jacqui, what great news to read today well done Girl and long may it continue 😀
I know itsa a little bit of a rough crossing but the more folk that say its worth the trip the more will take that trip with more ease and less uncertainty.
As for your low levels of energy mine came back to an acceptable level…[Read more]
tom replied to the topic DT PACE in the forum Treatment 12 years, 6 months ago
Hi Paul
Pleased your doing better M8
The thing that helped me when I was weak when walking was a "Shooting Stick" ? I was lent it by a Neighbor when he seen how bad i was walking it has a seat on it I just carried the scick and when needed popped open the seat and had a rest it was great, so if you can find one get it works a treat.
Good…[Read more]
tom replied to the topic Hello, I' m new here! in the forum Newcomers 12 years, 6 months ago
Hello Jane
A warm welcome is extended to you and I wish you good luck for your ongoing trip with MM.
I also was on CDT as my first Line of treatment then had SCT and Zometa Infusion every four weeks for my Bones.
Hope to hear more from you soon
Love
Tom "Onwards and Upwards" xx
tom replied to the topic SCT Underway in the forum Treatment 12 years, 6 months ago
A Warm Welcome Home Slim 😀 gosh now then when I got home I at first found it scarey being out of hospital and not having a Nurse with me But I got over that pretty fast.
And Good Luck in your road to recovery Slim, If I remember correctly I was about a good two months before I felt the "Gosh Am Better" feeling and that was one great great…[Read more]
tom replied to the topic Them Bones, them bones, them dry bones… in the forum Treatment 12 years, 6 months ago
Dear Happy Chappy 🙂
If your Consultant is Happy and you are Happy and more important if Janet is Happy then am Happy.
Its good to feel comftarble with your Dr and feel he/she is listening to you and your problem
Keep up the good work Dai
Tom "Onwards and Upwards"
tom replied to the topic Kevs relapsed! in the forum General 12 years, 6 months ago
Hi Liz and Kev
Well am sorry to read about Kev's results, I hope and am sure they will soon sort it out and Kev is back to strenth, am sure you will but I have to say it so "Stay strong" and Fit hope its a short blip in the road of MM
Love
Tom "Onwards and Upwards" xx
tom replied to the topic My Loss in the forum End of Life and Grief 12 years, 6 months ago
Dear Carol
I am so sorry for your loss its hard for me to imagine what you are going through at the moment and am sure you will enjoy life again just a new way with new challenges.
Hugs for you
Tom xx
tom replied to the topic Velcade Experiences in the forum Side-effects 12 years, 6 months ago
Hi Deborah
I cant add to this one am afraid just wanted to welcome you and your Mum into the group but some one will pop in and sort out your Q.
All the best in the road to remission for your Mum
Tom "Onwards and Upwards" xx
tom replied to the topic Pancytopenic? in the forum General 12 years, 6 months ago
Hi Keith
Well this is another new one for me? aint a clue what it is nor what causes it?
Hope its soon sorted out Keith I bet your well fed up with all this stuff. Keep strong and fight the begger like I know you will
Tom "Onwards and Upwards"
tom replied to the topic Sue Marshall's Transplant in the forum Treatment 12 years, 6 months ago
Hi Eva and Sue
Just for info I had my transplant the day after my Melphalan.
I was told to eat as much as i could before and after the SCT as I would not want to eat after it. I also suffered a lot from the wretching wanting to be sick but wasn't sick but the anti sickness pills help a great deal. I also could not drink enough water so asked…[Read more]
tom replied to the topic Keep Calm & Carry on in the forum Treatment 12 years, 6 months ago
Hi Dai
Its a bugger all this tem up and down but am same as you throw some more water down my neck and a few citemols and soon brings my temp back to normal 😀
Good Luck for the "Normal" before Monday 😎
Keep Kool and keep Calm
Tom "Onwards and Upwards"
tom replied to the topic SCT Underway in the forum Treatment 12 years, 6 months ago
Hi Eve and Slim
Oh dont do shopping lol hate it with a passion.
I was told to buy "Tight" Clothes as you dont have to Iron them Lol.
Slim will soon get better but it wont be next week I was a while before I knew I was better but stick with it and dont expect it too soon.
Love
Tom "Onwards and Upwards" xx
tom replied to the topic DT PACE in the forum Treatment 12 years, 6 months ago
Hi Paul
Sorry its not worked out SO FAR am sure we will have more bridges added as time goes on, stick with it and stay strong
and fingers crossed 🙂
Tom "Onwards and Upwards"
tom replied to the topic UPDATE ON MICHAEL in the forum General 12 years, 6 months ago
aww Sue I am sure its hard for you folk that are erm on the side lines and having to leave us MM folk alone to all the treatment, its a sad thing but it has to be done anm afraid.
You Time is somthing you want to do but cant because you wory too much about Michael.
Hope all is soon sorted out
Love and Hugs to you Both
Tom "Onwards…[Read more]
tom replied to the topic SCT Underway in the forum Treatment 12 years, 6 months ago
Hi Eve and Slim
Am sure Eliz will cope re the washing machine as my Young Bride has coped for over 36 years with a mere Male not able to use a washing machine? I fix it when its broke (if poss) and drag it out and take to the skip if i cant fix it so all I ask is the Young Bride is able to use it lol, and to be fair am same with…[Read more]
tom replied to the topic SCT Underway in the forum Treatment 12 years, 6 months ago
Hi Eve and Slim
Well Eve this post made me Lol (its just like having a baby lol)
And as for the water good lord I did struglle to drink the amount they wanted me to and the drip for me was far better, yep it was a struggle to unplug wrap cable up and find a FAST way to the loo (failed many a time but hey ho it gave my nurses a laugh to see…[Read more]
tom replied to the topic Keep Calm & Carry on in the forum Treatment 12 years, 6 months ago
Now aint I said that before The "You can do it Dai, if anyone can then its you" and am as pleased as punch that you have proved me correct, way to go Dai Onwards and Bloomin Upwards, am sure you have more of the "Whatever it takes" in you than I have and I aint gonna let it take me without the Fight.
Keep strong Dai and keep fit 😎
(shed a…[Read more]
tom replied to the topic Bence Jones protein in the forum General 12 years, 6 months ago
Hi Graham
Sorry you are not getting on well with your Dr 🙁 but i think that MM might scare them (i know tel me about it lol)
But I am blessed with a Consultant that told me I dont need to go to the Dr for MM if I feel I have a problem I just have to phone the Ward up for advice or help, and that is what I have done.
Good Luck on your…[Read more]
tom replied to the topic Race for Life completed and photos attached in the forum General 12 years, 6 months ago
Hi Sarah and Henry
Well done on doing the race for life, I remember my young Bride (Elaine)doing it the year after she had her op for breast cancer and the year i was told I had MM it was a very emotional time seeing the Number on her back with the words "I race for My Husband and Myself" gosh i can feel tears as I write this bugger…[Read more]