tom replied to the topic achy legs in the forum Newcomers 14 years, 3 months ago
Hi Jo
Yep my little legs are doing ten to the dozen when I go out on bike, and yep My Young Bride and I are doing great, just starting to put a Kitchen in at home 😎 half the old one ripped out, and three wall units put up tonight 😀 Young bride now filling them up with?? it will take me ages to find things ha ha.
How are you doing then Jo…[Read more]
tom replied to the topic achy legs in the forum Newcomers 14 years, 3 months ago
Hi Carol B
I am about 18 months post sct and is my energy levels pre transplant? No they aren't but they are pretty good, not sure if I could go back to my old job (physical work)but just bought a bike to try and lift my levels up (never give up) so will let you know but only been on it three times as yet:-D
Hope you still do well…[Read more]
tom replied to the topic achy legs in the forum Newcomers 14 years, 3 months ago
Hi Ozzy
Well I also went back to work Light duties after 6 months post stem cell transplant, yep i was tired but no probs with the legs, but have to admit I still get tired but am sure I will have to cope with it 🙂
I would see the Dr re your discomfort and am sure some one else will pop in and might have an answr for you
Good…[Read more]
tom replied to the topic Only Found out 3 days ago I got Myeloma in the forum Newcomers 14 years, 3 months ago
Hi Ivan
Sorry am late in replying but a warm welcome to this great band of folk, but sorry you had to join 🙁
Good Luck on your treatment I also (in feb 2009) started my treatment CDT and that was starting with about 50 pills a day 🙁 but i done it with the stem cell harvest and the stem cell transplan in december 2009 and her I am back at…[Read more]
tom replied to the topic Elderly dad in the process of being diagnosed in the forum Newcomers 14 years, 4 months ago
Hi Pam
Am sorry your Dad is having problems and might have MM.
Your Dad will be treated for his illness whith his other ailments in mind, bearing in mind your Dads Pain there is loads of pain relief that can be given to help its just finding the one that works best with little side effects.
Love and Hugs sent to you all.
Tom "Onwards…[Read more]
tom replied to the topic Gill Newly Diagnosed in the forum Newcomers 14 years, 4 months ago
Hi Gillian aka Gill C 😀
Good Luck with it all and you seem to be doing ok with it as for the sickness I was on antisickness tabs for months after my SCT, and the bowels am pleased its a distant memory 😎 yep Control never in your life I dare not go far from a loo after anything to eat or drink as it didn't stop long, Lord knows how I got…[Read more]
tom replied to the topic RE: Starting a discussion… in the forum Newcomers 14 years, 4 months ago
Hi Helen
Pleased you are finding the info Good for you all:-D and its great to hear about others that are raising money for the dreaded MM:-(
As for the Stem Cell transplant:: oh what can I say?? well to be honest I feel that is has been well worth the off days that I had during my "Recovery" and to be fair it was (cept the growth…[Read more]
tom replied to the topic Newly diagnosed in the forum Newcomers 14 years, 4 months ago
Hi All
Just to let you know I only eat Cucumbers in our Cyber greenhouse, I cant stand the things ha ha.
But the Red wine now thats another story oh and the Vodka I was given a bottle of Vodka with lime, just tasting it tonight and its very nice and refreshing (and i aint in my Cyber greenhouse)
Hope you all have a great Week End :-D…[Read more]
tom replied to the topic dad just diagnosed at 48 in the forum Newcomers 14 years, 4 months ago
Hi christin
Looks like your Dad's team are doing a great Job for your Dad 🙂 as for your Dad not being able to concentrate I was same after some of my first lot of treatment and when i told my Nurse that "The Brain's Gone" she laughed and told me I had Chemo Brain see this Link…[Read more]
tom replied to the topic RE: Starting a discussion… in the forum Newcomers 14 years, 4 months ago
Hi Sarah and Mum
Sorry you had to join but am pleased you found us, we have great people on here that can and will help you and your Mum through all this MM stuff, sorry am not in sam area, am in Scunthorpe North Lincs.
Good Luck with your Mum's treatment and I hope all goes well.
Tom "Onwards and Upwards" xx
tom replied to the topic Newly diagnosed in the forum Newcomers 14 years, 4 months ago
Hi Eve and Jo
Well the Cucumbers are allegedly good for Cancer sufferers, and a few of us here have sat in a "Cyber" greenhouse drinking Red wine and eating cucumbers8-) Hope that clears that one up and you now know am normal (yep normal even in a Cyber greenhouse ha ha)
Love from One cucumered
Tom "Onwards and Upwards" xxx
tom replied to the topic Just diagnosed in the forum Newcomers 14 years, 4 months ago
Hi Peggy
A warm welcome to our ever growing band of MM'ers
Yep I was same but I didn't put them both together for some months after I started treatment.
Am sure you will get the help you need as and when for you and your Daughter, if not shout out loud.
Good Luck on the treatment you start and have a good day for your Birhtday (well…[Read more]
tom replied to the topic Newly diagnosed in the forum Newcomers 14 years, 4 months ago
Hi Gill
First dont listen to Eve "re the drink" as its done me the world of good over the last 40 years lol.
But seriously a warm welcome to the site but sorry you had to join.
I was Diagnosed in Jan 2009 and had CDT then Stem cell harvest leading to a Stem cell transplant in december 2009, and am still in remission and doing good:-D still…[Read more]
tom replied to the topic Gill Newly Diagnosed in the forum Newcomers 14 years, 4 months ago
Hi Jo
The young bride is doing great, and as for keeping me in check (just looked behind me to see she aint their;-) ) well she has a hard job doing that Lol.
Take a look at the photo and see how much I spoil the young bride (tom looks over his shoulder to make sure she cant see)
Hope your Doing Ok Jo xxxxx
tom replied to the topic Need some help with questions please in the forum Newcomers 14 years, 4 months ago
Hi Joanne
Am pleased your Father in law is now on the treatment regime, and the advice I can give is for the pending treatment is Rest and take one day at a time:-D
Your Father in law will have his off days/weeks? but you will know it wont be "Him" it will be the drugs:-/ and not forgetting you and mother in law need your rest…[Read more]
tom replied to the topic Gill Newly Diagnosed in the forum Newcomers 14 years, 4 months ago
Hi Gill
Well what a great lot of replie's you have 😀 and am sure I cant add anymore to this great advise you already have.
BUT am a Mere Male and you know we have to have our penny's worth 😀
First am sorry you had to join this great site, but also to let you know its also the best, its a roller coaster but to make it short, I am now…[Read more]
tom replied to the topic Starting a discussion… in the forum Newcomers 14 years, 4 months ago
Hi Helen
Am Pleased your Mum is getting better, and am sure the Zometa will cause no more problem:-D
As for me well roughly I was diagnosed in Jan 2009 went on CDT, then had stem cell harvest and leading up to a Stem Cell Transplant in December 2009, went back to work In May 2010 on light duties, and thats where I stand now, and the only…[Read more]
tom replied to the topic Starting a discussion… in the forum Newcomers 14 years, 4 months ago
Hi Helen and Mum
Sorry you are here 🙁 but its best place 😀
I am on Zometa and the first time I had it I had flue like symptoms for a few days (aches and pains in bone structure) but it only was that first time, I now go every four weeks for my infusion and so far tomorrow (thurs) will be my 13th and all is going great.
Good Luck to…[Read more]
tom replied to the topic Need some help with questions please in the forum Newcomers 14 years, 4 months ago
Hi Joanne
I also am sorry you have had to joint this site, but trust me its the best place for help/advice and folk to listen to us when we need a rant.
As Kay says its an individual illness and not one thing suits another.
Take the pen and Paper and make notes its not going to be easy to remember everything, also ask the Consultant to send…[Read more]
tom replied to the topic dad just diagnosed at 48 in the forum Newcomers 14 years, 4 months ago
Hi Christin
Yep I know all about takin three rather than one step:-D but as time went on I knew (nearly as much as Elaine) that I had to take it Easy so am sure your Dad will also get it Lol.
Love from a mere male 😎
Tom "Onwards and Upwards" xxx