Hi Vicki and Eve.
I also use an iPad, the mini version in my case, and I find it a lot easier to post now 😉 mind you I was using an iPhone previously 😀

Hi Helen.
The sun does lift the spirits and I think the last trip we had to Greece gave me a real boost and I'm sure it gave me a new outlook to life.

Hi Jill.
I take my Revlamid at…[Read more]

Hi.
Sorry I can't help with your concerns over doxorubicin in your mothers PAD regime. I can't recall anyone posting a problem with it either. The difference between liposomial Dox and ordinary Dox is that in liposomial Dox it is wrapped in a fatty covering to allow it to stay in the bloodstream longer and hence have more exposure to the myeloma…[Read more]

Hi Richard.
Sorry I can't help with your HGV medical question. Since I've been on treatment for MM I have been reluctant to drive firstly because of my back it made it very uncomfortable and I doubted my ability to brake hard in an emergency. Then when my back improved so I was confident I could drive I found that I couldn't concentrate for very…[Read more]

Hi Rebecca.
I was told when I was diagnosed in Oct 2011 aged 51 that due my age, classed as young 😀 , and due to being fit, I ran marathons, I was lucky because they could attack my MM aggressively and get me to SCT quickly. Well here I am 18 months later after having everything but the kitchen sink thrown at my MM with my PP's still hovering…[Read more]

Hi Dai.
Keith is married to a lovely woman. They're always together when I see them at the hospital for treatment or at the support group. I don't know if they have children.
Regarding his posts we've all been there when we are feeling a bit under the weather and can't be bothered posting. I myself don't post much now not because I'm not well it…[Read more]

Hi Tina.
I was at the day case unit Friday, Keith and I go to North Tees, and I asked about him. Of course they couldn't tell me anything about his condition but they let me know he was on the ward. As you may know he has been in and out of hospital since new year and regularly at the day case unt. I've recently gone from weekly visits to monthly…[Read more]

Hi Rebecca.

I'm 38 and was diagnosed at 35 but haven't heard that one before. I think that it is individual and is probably more to do with your genes than your age as to what impact it has on your body. But I don't know for definite. Have you tried asking the Myeloma Infoline?

I'm not sure if you're asking for you or someone else, or…[Read more]

Oh and as to cost – I read over the weekend that Revlamid is $425 a pill :-0 obviously that's in America.

Every day is a gift ( and expensive )
Andy

Hi David
First of all I only see one consultant and she has been my consultant since I was diagnosed. Obviously if I have an emergency whilst she is unavailable due to holidays or at another clinic I see another doctor but my consultant is the one that treats my myeloma. I have been referred on to Prof. Jackson at Newcastle due to my myeloma…[Read more]

Hi Eve & Slim
Sorry to read your news. I did see you'd posted it in another tread before. It's such a shame that Slim didn't get a decent remission out of the SCT especially after the fight he had to go through to get to SCT in the first place. As you say you did cram a lot into the 6 months whilst Slim was free of MM. Hopefully his next course…[Read more]

Hi Dai.
I'm at the day case unit Friday – hopefully I'll bump into Keith there and we'll have a catch up. The last time I saw him was the 8th March and he was just starting on melphalan.
As to your neutrophils mine haven't been over 1.1 for nearly a year now. My readings have hovered between 8 and 1.1 for the last 4 or 5 months but did go as low…[Read more]

Just to say that I had my zometa last time over 30 minutes and it made the side effects much better than when I had it over 15 minutes. (Previously I'd had no problems with it).

I've been on zometa for about 3 years now (although I came off it for my transplant in 2011 – blimey it doesn't feel that long ago!), 18 months since transplant. I…[Read more]

Oh Jean
I'm a rubbish friend! I didn't even realise that Frank had gone in as I've hardly looked at the site recently.
It sounds like he's on his way up though and you'll be surprised how it will change now….probably not too long before he'll reach that magic number.
How are you doing with it all? I always felt for Nick….he'd travel 3…[Read more]

Hi Helen.
Can't say I've ever felt the need to shave my legs not even for Red Nose Day 😉 as for curly hair well! Not having been through SCT I guess that's one treat I'm going to miss out on. :-/ I remember having hair – just – got some old b&w photos somewhere showing me with hair though I seem to recall I was also running around in shorts at…[Read more]

Hi Rab
Welcome to the site. Sorry you have to be here but I guess we are all sorry to be here. It's a warm and friendly place to be.

The good news is as the letter states your in complete remission so well done.

Zometa is a bone strengthening drug that also has shown to work against myeloma. I'm sure you'll of been prescribed it to prevent…[Read more]

Hi ner
I'm sorry that your mum has been diagnosed with MM. Welcome to the forum that all of us would prefer not to be members of.

Everyone's journey with this awful disease is different – but the starting point can be very similar – I too started off with back ache and it took 18 months for me to be introduced to the world of multiple myeloma.…[Read more]

Haha David,
I'm catching up on the site a bit late but this made me smile….and I needed that so thank you 🙂

Debs