Hi there.
I thought I'd add my experience and say thanks to you all for your replies as they've helped me too!
I've been on zometa since November 2010 (with a break for transplant) and other than the 1st time hadn't experienced the cold/flu/ muscle aches.
However the last two times I've had it, I've been really achey and have had chronic muscle…[Read more]

Dear Anne & Pete

Thanks for that….I'd sort of not clicked that I'd be seeing our faces on the front cover! A bit of a shock to say the least! Anyway, I hope it helps someone out there a little bit…

Hope you are well

Debs x

Hi Dai.
That C.diff is really hanging around causing you problems. Really glad that your starting to feel better. Glad that you can start the bendamustine after Christmas and your birthday. Hopefully you'll be home in time to enjoy Christmas, I was discharged last Xmas eve, and your birthday.
Take care Dai.
All the best to you and Janet…[Read more]

Hi folks.
Thanks for all the replies.
It does help boost morale that you all take time out of your own personal battles to read and reply. I read the posts all the time but sometimes find it difficult to post my news or give my insights when there's so much good news going around and so many new members on here with me being a difficult case.…[Read more]

Hi Sarah Jane.
I'm on RCD though not on the trial. I'm on cycle 10 🙂 and my PP's are only creeping down at 21 last reading. I've been on treatment for 14 months now! and that's the lowest count I've achieved.
Whoops I've gone off course of what I wanted to say lol. I've found it's the cyclophosphamide that causes the nausea with me. I've been…[Read more]

Hi Keith.
You sure are going through it at the moment! It shows how careful we have to be and to monitor our temperatures regularly. Things can go down hill really fast – NEW MEMBERS PLEASE NOTE – and it's important to ring in with ANY worries.
I'm glad your back at home now and hope you can stay home over the Christmas and New Year period. I…[Read more]

Hi Helen
Good news that you've reached the second anniversary and everything is going well. If only you could get rid of the last of your cough.
I had to read your second post twice, I thought you were calling the Prof. A hobbit lol 😎 I blame it on the steroids I'm on!

We hope you have a good Christmas and a happy new year Helen

Lots of…[Read more]

Hi all.
I had my zometa today errrr yesterday which was administered with the usual effiency. Then we had our meeting with my consultant. My paraproteins have drop slightly again from 23 to 21 – not brilliant but moving in the right direction. So I'm putting it down as good news – we haven't had much to cheer about since diagnosis Oct 2011. She…[Read more]

Hi Mike,
So wonderful to hear from you! You are more than welcome to come. The next meeting is 7 Dec @ 14:00. It's on thev1st floor Jubilee Wing Seminar Room. It's right behind reception. Where are you possibly aving you SCT. Hope to see you on the 7th, if you need anything before please don't hesitate to contact me: burtonmyelomasg@ahoo.co.uk or…[Read more]

Hi everyone.
Many thanks for your posts and kind words. Yesterday was a blow but my journey from the start has been one disappointment followed by another so we're getting used to it.

Dai the reason I was given why I can't have an auto sct is my bone marrow has been battered by so many drugs that I wouldn't produce enough stem cells. My last…[Read more]

Hi Vicki & Colin.
What great news having Colin home. Vicki tie him to the chair we don't want him to wander off back to the hospital any time soon. I know you'll be keeping a close eye on Colin Vicki make sure he doesn't try to run before he can walk. You must have mixed emotions having home elation and worry but I'm sure the worry will fade…[Read more]

Hi Maria.
Welcome to the forum. This is the place to let off steam, ask questions and hopefully get some answers.
Although none of us want to be members we are a friendly bunch and at times a funny bunch – especially that Tom. None of us are experts but if you ask a question you'll always find someone has an answer through experience. We all…[Read more]

Hi Tina.
It's good news that your feeling better. Long may it continue and improve.
Best wishes
Andy xx

Hi Keith
Just checking in to see how your coping with the new regime. How are you tolerating it?
I know you've just started but I hope it's going we'll with little or no side effects.
Good luck.
Andy

Hi Vicki & Colin
Hang in there Vicki I'm sure they will get to the bottom of Colin's pains. I haven't googled his new diagnosis so I won't pass comment on it. I've been reading up a lot about sct's lately ( allo sct's for personal reasons ) and they are frought with problems it is a major major reboot of the immune system. Unfortunately some…[Read more]

Thanks Eve
The tablets don't agree with me neither 🙁 will have to get some bananas when the shops open. Coffee and beer gave potassium in them too! Can feel a drink or 2 coming on tonight. 🙂
Have a great time in New Zealand hope everything goes well.
All the best
Andy xx