TomLappin

  • andyg started the topic Paraprotein news. in the forum General 12 years, 12 months ago

    Hi everyone.
    I haven't posted much lately as I haven't had much news to share – I still don't – but I have been keeping up on everyone's news. Most of the news lately has been good though there has been some struggles. It's a strange sort of place I'm in a kind of limbo with my emotions at times swinging from jealousy of those who are…[Read more]

  • Dear Teresa.
    Like Helen I don't have the words to ease your pain of the loss of Peter. Hopefully time will lessen the pain and your memories of Peter will be mainly of all the good times you shared together.
    I found your post very emotional and brave.
    I hope the future is kind for you and know that we are all thinking of you and your family…[Read more]

  • andyg started the topic Second opinion result. in the forum General 13 years ago

    Hi All.
    Today hmm start again 😉 yesterday we had our meeting with Prof. Jackson at the Freeman Newcastle. The outcome of which is I'm to continue with my cyclo/rev/dex regime for now. He wasn't worried about my PP levels hovering between 35 – 41 as long as I wasn't presenting with any other symptoms. He also ran through some options that were…[Read more]

  • ChelleMc started the topic Fundraiser. in the forum General 13 years ago

    Just wanted to make anyone aware.. I am hosting a ladies night, Fashion Show & Sale Fundraiser. It is on Wednesday 5 Sept @ The National Brewery Centre in Burton on Trent Staffordshire. Doors open at 7p and show starts at 7:30p. Tickets are £6. Clothes are from the High Street Stores and up to 75% off!! You can see, purchase and take hoe your…[Read more]

  • ChelleMc started the topic Fundraiser. in the forum Off topic 13 years ago

    Just wanted to make anyone aware.. I am hosting a ladies night, Fashion Show & Sale Fundraiser. It is on Wednesday 5 Sept @ The National Brewery Centre in Burton on Trent Staffordshire. Doors open at 7p and show starts at 7:30p. Tickets are £6. Clothes are from the High Street Stores and up to 75% off!! You can see, purchase and take hoe your…[Read more]

  • ChelleMc replied to the topic Lost in the forum End of Life and Grief 13 years ago

    Hi,
    I am so sorry for your loss. My husband passed 10 March. There are good days, bad days and days I still feel lost. Have you thought of bereavement counsiling? I had my 1st one on Monday & found it very helpful. I wish I knew the magic words to help but unfortunatly they're different for everyone. Just know there is always support on here.…[Read more]

  • andyg replied to the topic Second opinion in the forum General 13 years ago

    Hi everyone.
    Thanks for all the good wishes for my appointment on Tuesday. I must admit the closer it gets the more anxious I'm becoming 🙁 Anyway as they say worrying never changes anything so I'm trying to be as positive about it as I can be.

    Dear Teresa my back pain has eased off since my radiotherapy. So as long as I don't overdo…[Read more]

  • Debs replied to the topic charity night in the forum General 13 years ago

    Hi Nicola,

    Definitely do the skydive….I did one about 18 years ago (!) and absolutely LOVED it! I would do it again, but I'm not sure anyone would sponsor me now as they know I can do it. I didn't stop smiling from the minute I jumped until about an hour after I'd hit the floor (standing 🙂 )

    Go for it!

    Debs x

  • Hi Judd,
    I don't live in London, but in High Wycombe and have family and friends in London.
    I would definitely recommend the Under 50 that Scotty and Phil run, but I'd stay on here too…they both have lots to offer!
    Not everything is inevitable so try to keep positive – though I think that is harder when you are first diagnosed, it becomes…[Read more]

  • Debs replied to the topic Just Diagnosed in the forum Newcomers 13 years ago

    Hi Charlie,

    I think everyone has pretty much covered things and I even wondered about not replying! But I thought I would say good luck with the Myeloma XI trial and tell you how well it has worked for me.
    I got randomised to revlimid and had 4 cycles of that which brought my pp levels from 50 down to 28 – then I plateau'd. I was gutted. I…[Read more]

  • Debs replied to the topic charity night in the forum General 13 years ago

    Good luck with it Nicola!!!

    I know how hard it is to organise these things so well done to you for doing it and I hope that you raise loads and have a great time at the same time.

    Debs x

  • Debs replied to the topic Nearing the End? in the forum End of Life and Grief 13 years ago

    Dear Gill,

    I am really sorry that you are reaching this difficult time for you and Stephen. Like Tina has said, I hope that you are able to make the most of every minute with him (and that the short temper isn't too horrendous).

    Thinking of you
    Debs xx

  • andyg replied to the topic New Need to talk in the forum Carers 13 years ago

    Dear Teresa.
    We're so sad and sorry to hear about Peter. We hope you are managing to cope with your sad loss. We hope you have your family and friends support in this difficult time. It's difficult to find words of comfort for you but please know that we are thinking of you and your family in this time of sadness.

    Lots of love
    Andy & Steph…

  • Debs replied to the topic Second opinion in the forum General 13 years ago

    Good luck ANdy….really hope you get some answers and a good plan for you.

    Will keep an eye out on fb for how it goes!

    x

  • Debs started the topic Glitz and Glamour Raffle. in the forum Off topic 13 years ago

    Hi everybody.
    I hope that you're all doing ok in your own individual ways!
    I've already posted about the Glitz and Glamour Ball I'm holding on November 10th in Marlow in aid of Myeloma UK and we are all sold out (bar the odd pair of tickets here and there!). We want to raise over £10,000!
    We are really excited to announce that our Glitz and…[Read more]

  • Debs replied to the topic The Under 50s Group in the forum Under 50s 13 years ago

    Chris, that is amazing news and like the others say, thank you so much for sharing your great story.
    I don't think any of us find it easy to think that we have 20 years ahead of us….I try to be positive, but at the back of my mind is that it is very unlikely. But stories like yours are so important for us to hear so that we start to REALLY…[Read more]

  • andyg started the topic Second opinion. in the forum General 13 years ago

    Hi all.
    I have got my referral through to see Prof. Jackson at Newcastle Freeman hospital next Tuesday. I don't know if I should be excited or worried :-/ Hopefully I'll come away with more information and maybe a treatment plan 🙂
    I just got my latest PP results they're down from 41 to 36 not a big movement but in the right direction – not…[Read more]

  • andyg replied to the topic Another Club Member! in the forum Newcomers 13 years ago

    Hi Michele.
    Welcome to the forum that we'd all rather we had never heard of.
    It's good you have come through your treatment well. As you'll know by now nearly everyone ones journey with MM is different so the more contributors we have the better the MM journeys are covered.
    I look forward to reading your posts as you enjoy your long and…[Read more]

  • andyg replied to the topic Just Diagnosed in the forum Newcomers 13 years ago

    Hi all.
    Just thought I'd add to the benefits discussion. I get the higher rate DLA and mid rate AA and I also get ESA. Just got my blue badge too. I had help with the DLA form from a charity at my hospital. My specialist nurse and consultant both told me about them. So I would advise everyone to ask for help with the form because it's a…[Read more]

  • andyg replied to the topic Stem Cell Harvest & SCT in the forum Treatment 13 years, 1 month ago

    Hi Paul.
    Well done. Glad to see DT PACE did the trick for you. I hope the SCT goes smoothly and you have a long and successful remission.

    All the best

    Andy

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