Oh Keith,
So sorry to hear that news….I can't imagine how you must feel about it.
On the positive, I'm glad you can wait till after your holidays, and if it helps, I never suffered badly with revlimid when I had it with dex (or without the dex now). The worst thing was the fact that everything tasted peculiar….not horrid, just weird!!!
Have…[Read more]

Hello Jen.
Welcome to the forum. Sorry that you have had to join but hopefully you will find plenty of support and advice. Multiple Myeloma is an awful disease that presents in many ways. Everyone's journey with MM is different and so is their treatment.
I was diagnosed in October last year and as yet have only had one lesion as far a I know.…[Read more]

This is an article from Cancer Research

http://info.cancerresearchuk.org/news/archive/cancernews/2011-11-27-Scientists-identify-first-genetic-link-to-myeloma

My understanding is that we may have something that genetically means we are more likely to get myeloma than other people. BUT, there is some unusual stimulus (and they still don't know…[Read more]

Hi Jane.
Welcome to the forum. You will find lots of support and advice here. Good luck with your treatment and your fight against MM. I myself was diagnosed Oct2011 and have had my ups and downs with my battle with MM. It's important to listen to your body and if your feeling tired rest up.

Take care.
Andy xx

Hi Chris
Welcome to the forum that we would all rather we had never needed. You will find that we are all a friendly bunch and some a gold mind of information. Ask any questions you like and you will get honest and frank answers you will also get lots and lots of support. No two peoples journey along the MM road are the same we all react…[Read more]

Hi Paul.
If everything went according to plan – which I hope it did – you should be out of hospital now and recovering from the treatment. I hope you didn't/wont suffer to many side effects and those stubborn pp's have been given an a**e kicking.

Take care.
Andy

Hi Eve and Slim.
What great news Slim is back home.
Hopefully the road ahead will be smooth and pass quickly till Slim is into a long remission.

Wishing you both all the best.

Andy xx

Hi Liz

I am so sorry to hear that Kev has relapsed, I hope all goes well with velcade.

Much love Michelle x x

Hi Only me

I have asked previously about a hereditary link,and the answer has always been no, however, recently I had some blood tests done and had raised ESR ……. this then led to me having to be tested for Myeloma!! the doc said best to rule it out with my Mum having it!?!
So really not sure but think that it sounds like it is something…[Read more]

Hi KAren,

Welcome to the site. And drop Scotty an email and she will send you an invite to the under 50 site.

We're all here to help you through the early days, which can be really scary. But you will come out the other side.

Take care
Debs x

Hi Deborah

I think Dai has given you the low down on velcade. It worked brilliantly for me, but you must watch out for the Peripheral neuropathy and don't let your mum downplay it. I did and ended up with it for 9 months and needing quite serious painkillers.

It was absolutely worth it for the result, but I was worried at one point that I…[Read more]

Hi Paul….and Andy

I just wanted to say good luck to both of you with your next steps….I am sure that there are a number of treatments still out there so try to keep positive….though I'm sure it's Bl*ody hard at times!!!

Debs x

Hi Antoinette

So sorry that you have had to join us all here, but I would also say that there isn't a better place to be.
Reading your post made me think back to when I was diagnosed in 2009. I was 34 with a 2 year old and a 4 year old and it really does turn your life upside down. I think it is natural to be teary and to feel out of control…[Read more]

Dear carol

I am so sorry to hear of your loss, I lost my Mum on the 13th of May to this dreaded disease. I fill like there is a great big hole where she should be, I still can't get it into my head that she is really gone.

I hope as people say it does get easier.

Much love Michelle x x

Hi Teresa.
My bone marrow test wasn't too bad on Tuesday though the doctor had to go in twice! My blood test showed I was Neutropenic so that meant I had to be careful and try and avoid people with bugs. Today I went for more blood tests and also saw my consultant. My bone marrow test showed my healthy marrow had been cleaned out, hence the…[Read more]

Hi Paul.
I've had the DT PACE treatment. I only had one cycle of it though and it was deemed to be a failure for me. It didn't bring down my paraprotein levels but there again none of the treatments I've been through have been successful at lowering my levels below the mid 30's.
I coped ok with the DT PACE I didn't have any serious side…[Read more]

Hi Sarah

Well done and glad you raised awareness for myeloma

much love Michelle x x

Hi All
Thank you all for your lovely comments …… it's a very tough time at the moment, just not sure what to do with myself!! Still can't believe she has gone and that I will never be able to talk to her again, I want to pick up the phone so badly just to speak to her one last time.

Much love Michelle x x

Hi Teresa.
I'm glad you had a good time at the brew pub for mothers day. I hope this weekend goes well for you and Peter with your children and grand children around you for the long weekend.
I go for my bone marrow test on Tuesday – though I'm not looking forward to the test itself it's the results I'm more nervous about.
We had a fun night…[Read more]